Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Psychologist Is Interested In Celiac Connection


Nantzie

Recommended Posts

rinne Apprentice
{{{{{HUGS}}}}}} and thank you everyone for posting your stories. Thank God for this forum, for celiac becoming more known about, and for everyone here who makes this forum such a wonderful, comforting and welcoming place to be.

I have found it incredibly helpful to hear each person's story Nancy, this is a wonderful thread, thank you to everyone.

All I can do is pray for him, love him sooo much, try to get my life together at 45, take the best care I can of my other son and husband. The ache is always there, though. I hope as I heal, maybe he will see it and become convinced. It seems like an elusive dream to feel happy & healthy and to have a happy & healthy family sometimes. Sorry, I am having a bad day.

Robin, your story brought me to tears, I am so sorry that you have suffered in this way and continue to.

When I was a very young woman I gave up custody of my son to my ex-husband, I was incapable of raising him and very afraid that I was, as my mother had told me repeatedly, "just like your father". My father was alcoholic, violent and abusive. To say that I hated myself for what I did in abandoning my child cannot express the years of grief and shame I felt not to mention how broken my heart was. I know that the decision gave him a better life than I could have and I know he would have lost one parent anyways but that doesn't lessen the sorrow. Through his growing up years we had visits and for the most part those were O.K. but by the time he was 21 his anger at me was overwhelming for him. He let me know then what he thought of me and we did not have any contact for just over ten years but in the past year we have begun to talk again, I realize now that I am being given another chance and I am grateful.

I rarely speak of this to those I do not know well. It has been my experience that what I did is so horrifying to people, to mothers particularly, that I have been repeatedly judged for it. I recall an Oprah show, which was at least 15 years after I gave up my son, on non-custodial mothers and the audience for the most part was incredibly hostile.

I feel that what we can do for those we love and have hurt is to heal and to become the loving people that we most deeply want to be. Robin, I hope your son will see the changes in you and come around. 21 does seem to be the age when the world is most clearly black and white and judgments are easy to make.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 80
  • Created
  • Last Reply
DingoGirl Enthusiast
This thread is so unbelievably moving and I don't know where to begin, I was to the brink of suicide so many times I cannot count. I would have D, joint pain, brain fog, severe headaches for a week, then like the sun shining through clouds, I would have a couple of good days and wonder -What the heck was THAT?-Then, it all would begin again like a vicious merry-go-round of blackness. My marriage suffered and my relationship with my children, especially with my oldest son, suffered. He barely speaks to me now. The pain of that is almost unbearable sometimes. I am convinced he has celiac along with type 1 diabetes, but he has the same rages and irrational behavior that plagued me, and barely even checks his blood sugars let alone try to go gluten free. He prefers to think I was a miserable mom for sending him to live with my former husband, his dad, when he was a teen, but really I was at the point of losing my mind completely at the same time he was having teenage angst. He is 21 and angry and lashing out and I see what is happening to him (and see so much of myself) and am powerless to do a thing. He considered me a lazy, hypochondriac, nut-case even now and quite frankly, I don't blame him. All I can do is pray for him, love him sooo much, try to get my life together at 45, take the best care I can of my other son and husband. The ache is always there, though. I hope as I heal, maybe he will see it and become convinced. It seems like an elusive dream to feel happy & healthy and to have a happy & healthy family sometimes. Sorry, I am having a bad day. Many thanks to you all, I honestly don't know what I would have done if I hadn't stumbled on to this forum. When I think of how I was six months ago-ready to die and writing my own obit-no kidding--it makes me very humble and thankful to God.

ROBBIN - dear soul - - this could have been written by me. Am going to PM you....

  • 2 weeks later...
eLaurie Rookie
I hope as I heal, maybe he will see it and become convinced.

Robin, this is part of my prayer for you and your son. That you will heal gluten-free, that your relationship will heal, and that he will be inspired by you to better care for himself.

God bless, dear sister,

Laurie

ravenwoodglass Mentor

Something happened yesterday that brought me to tears and I thought I should share. My DH and I have lived seperately for 15 years now. I have always blamed myself for the split, the mental effects of gluten had me frankly 'nuts' for years and living with me was like living with a time bomb. My DH was always placid and seemed to not be bothered by anything. The years of guilt for tearing my family apart during the time I was on seizure drugs and antidepressants was incredible. We were talking yesterday, my DH has now been gluten-free for a few months. I had noticed he was more alert and that his mental functioning had improved but as he had been resistant toward the thought that gluten was causing a mental problem "It's just the way I am" I had not talked to him about the changes I saw. He said yesterday that now that his gluten fog has finally lifted he realizes that his withdrawl had just as much to do with our difficulties as my mood swings did. He never realized how severely depressed he was until he wasn't anymore. He was in such a fog that if I didn't call to remind him to feed the kids when he had them at his house he wouldn't even think about it. I thought for a long time that he just didn't care about anyone other than himself, not the case at all. My whole family is just starting to realize the extent that gluten impacted us all, and with that understanding has come a level of forgiveness that I never thought would be possible. Not just for others but for ourselves as well. I am hoping that this occurs for other families as well. Who would have ever thought that a family rife with mental illness would recover their health and sanity just by avoiding a food.

jerseyangel Proficient

Ravenwood, That is amazing news. I wasn't aware that you and you husband lived apart. What a shame that all this time you were both so deeply under the influence of gluten. That makes me sad. I lived with the same kind of fog that must have seemed, on the surface, to look like indifference. I hope that now your family will come to a place of healing. Thanks for sharing that--it does go to show how profoundly gluten can affect our lives.

rinne Apprentice

Ravenwoodglass, thank you for sharing that. How wonderful to come to a place where forgiveness and compassion are present not just for others but for ourselves.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.