Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Cleans/kills Gluten? How Long Is It With Us?


sillyactsue

Recommended Posts

sillyactsue Explorer

My 22mo. old daughter has two copies of genes for gluten sensitivity. It keeps her from growing. I have not been tested but obviously have at least one gene. Her dad has been diagnosed with celiac. We are on a gluten free/casien free diet but I have never seen anything written about what actually cleans a surface in a way that makes it gluten free. It isn't a germ so I guess it isn't something you kill, right? What about money? Door knobs in places besides home? Isn't it basically going to be everywhere? The baby still puts her hands in her mouth. Why wouldn't she be continually contaminated. What cleaner cleans it off?aaaauuuuugggghhhhhhh!

Please help. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Soap and water and elbow grease. You just have to clean your surfaces and keep them clean. It's not going to stick around on smooth surfaces that easily, but nothings going to be a hypoallergenic bubble. No one (to my knowledge) with a anaphylactic wheat allergy, however, has gotten sick from a doorknob (well, I certainly wouldn't chance it in a bakery, but in general...).

gfp Enthusiast

Although you can't kill it you can do some things.... gluten is soluble in alcohol so using an industrial alcohol cleaner is probably a good idea, its also antiseptic and kills germs ...

Do NOT USE NEAR NAKED FLAME, HOT HOBS etc. etc.!

As for doorknobs... I see your point and its possible, I worry about public transport where people are eating sandwiches but being an adult I can not put my hands in my mouth but I do make a habit of washing them straight away when I get in (its not a bad idea anyway) ... in the end you can't live in a bubble and neither can your child. Regardless of however hard you try you will have slips and accidents because we are all human. Its not your fault much as you want to do everything to protect your baby .... accidents will happen we learn and we get stronger.

LivingFree Newbie

We experience problems if we go to a restaurant that has a playhouse. I can't normally see anything on his hands when he comes out of one, but if I don't clean them off before he eats his food (uses his fingers, not utensils) then we will undoubtedly have severe issues for several days. He has not had any problems with doorknobs, but the public pool can be difficult if they have had a party with hot dog buns, pizza, etc. Sometimes it will end up getting him. You just can't stop it all until they learn to make sure their hands are clean before putting them or anything else in their mouths.

Nantzie Collaborator

I've been wondering about that kind of stuff myself. The only thing I completely trust to wash my hands is soap and water. I happened to read an article a few years ago about how cleaners work, and it said that basically the soap loosens the dirt from the surface you're cleaning so that it doesn't stick to it anymore and can be rinsed or wiped away. The way I think of it is that gluten is sticky (remember making paste out of flour and water?), so the soap is the best bet because it unsticks things.

When I first went gluten-free, I started trying to use Purell to "wash" my hands when I touched gluten (like handing my non-gluten-free kids a gluteny cracker). I got glutened just about every day that week. I figured that what was happening was that maybe the gluten was getting loosened by the Purell, but since there was no rinsing of any sort, it wasn't getting washed away, so got re-stuck on my skin, just another spot. I'm not sure how Purell and gluten interact though, so I'm not sure if that's what's happening or if it just doesn't unstick at all.

All I know is that as long as I wash my hands with soap and water, and dry them on a towel that I know hasn't touched gluten (I keep a towel on a hook above my sink that's just for me), before I put anything in my mouth I don't get glutened. Even if I've been up to my elbows in goldfish crackers all day.

I have been wondering about alternatives like baby wipes or wet ones. Would it really get everything off (assuming you were very thorough), or would it be more like my theory about the Purell and just move it around? It would be nice to be able to just do something like that rather than have to wash with soap and water, especially when out. And it sure would make washing door handles and such much easier. Maybe somebody has tried it?

Nancy

gfp Enthusiast

Nantzie havn't tried but your theory sounds sound.

The whole think with the soap and water is washing it away not just moving it about.

queenofhearts Explorer

Something I learned years ago (I'm an artist, avid cook & gardener & my hands need LOTS of washing!)-- use liquid soap, put it on FIRST before you wet your hands, rub up a lather, & THEN rinse it off. This lets the soap do its solvent job much better. You'll notice the difference especially if your hands are greasy, but I have a feeling it would help with the gluten too.

Leah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Nancy--I agree with you. I use soap and water--often. I make sure I lather the soap for a good 30 seconds or so, and rinse well under running water. Not ony do I not end up glutening myself, but I don't get many colds and whatever else is going around.

LivingFree Newbie

When out and about with my son, I often use wipees. At times, it is all I have available. We have not experienced any problems when we use the wipees. I am very thorough with them, going around the nails and under them too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.