Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Oklahoma?

emcmaster

Recommended Posts

emcmaster Collaborator
emcmaster
Posted

I'd love to have a fellow celiac to meet up with!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sillyactsue Explorer
sillyactsue
Posted

Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

Lymetoo Contributor
Lymetoo
Posted
Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

I'm your neighbor in Missouri!! Was also your neighbor while growing up in Texas!!

Sue, you're not that far from me. I'm in Branson!

sillyactsue Explorer
sillyactsue
Posted
I'm your neighbor in Missouri!! Was also your neighbor while growing up in Texas!!

Sue, you're not that far from me. I'm in Branson!

Hey neighbor!

I had to look on the map. It looks like Little Rock is about half way between us. I have only been there once when the babe had to go to children's hospital.

Weird, but somehow finding someone close by (who is freindly and understands this stuff) kinda warms the heart.

I hope to hear more from you. :D

emcmaster Collaborator
emcmaster
Posted
  • Author
Ya, I'm in Oklahoma. What part are you from. I am in the south eastern corner a few miles from Beavers Bend State Park.

Hi! I'm in Norman... maybe we all should find a time/place to meet!

sillyactsue Explorer
sillyactsue
Posted
Hi! I'm in Norman... maybe we all should find a time/place to meet!

Sounds great. Isn't there a support group in Norman? I talked to a lady from there when I first found out about celiac disease. I need to give her another call too. Maybe you know her. I'll find her name.

Lymetoo Contributor
Lymetoo
Posted

That would be fun, Sue....I love your screen name, by the way!! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 months later...
Sissy Rookie
Sissy
Posted

Hi Everyone, I live in Cookson on Lake Tenkiller which is in in NE Oklahoma. I just found a support group that meets in Tulsa at St. Francis Hospital and hope to attend one of their meetings soon...I really want to find someone to just talk to about food, recipes and living thru this that will not be critical or just think I am nuts...I am going to post a note on our local health food store in Tahlequah to see if there might be any other Celiacs here. So happy to see there are others from OK...lets keep in touch... Do I sound desperate?? I feel desperate, I was just dx a little over 2 weeks ago and I am really rather overwhelmed.

Sissy

  • 4 weeks later...
SchnauzerMom Rookie
SchnauzerMom
Posted

I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

emcmaster Collaborator
emcmaster
Posted
  • Author
I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

I'm only about an hour from Lawton - in Norman. There's a fantastic OKC Celiac group that meets bimonthly. It'd be about 1-1/2 hours drive each way for you, but I think it would be worth it.

SchnauzerMom Rookie
SchnauzerMom
Posted
I'm only about an hour from Lawton - in Norman. There's a fantastic OKC Celiac group that meets bimonthly. It'd be about 1-1/2 hours drive each way for you, but I think it would be worth it.

Great! I may look into it. Thanks for telling me about it.

Ksmith Contributor
Ksmith
Posted

I'm visiting Norman in the near future--any restaurants good about gluten-free? Thanks!

  • 2 weeks later...
RiceAddict Rookie
RiceAddict
Posted

Hey, Ya'll. I live in Iowa now but am Sooner born, Sooner bred, and when I die I'm Sooner dead! So very good to hear folks talkin' bout places back home. Next time I am down visiting the folks in Edmond or college buds in Tahlequah I'll have to try and make contact.

A

  • 2 months later...
FGFP Newbie
FGFP
Posted

Good morning, I was just looking around and found this. I just registered. I was raised in Ok and go there all the time as I have a daughter who lives in Edmond and goes to OC. I have a lot of family that are still in OK. I actually live in Texas panhandle but still consider myself an Okie.

Guest cdmccool
Guest cdmccool
Posted

I'm in Oklahoma City. :)

CaraLouise Explorer
CaraLouise
Posted

I am in Oklahoma City too! :P

Guest cdmccool
Guest cdmccool
Posted
I am in Oklahoma City too! :P

Hello2u! ^_^

  • 3 months later...
MSM1133 Newbie
MSM1133
Posted

I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

CaraLouise Explorer
CaraLouise
Posted
I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

I am 22 and like in OKC not Tulsa, but I would be happy to talk to you and help you out with any questions that you have! :)

  • 3 weeks later...
little d Enthusiast
little d
Posted
I'm from Lawton in Southwest Oklahoma. I haven't been diagnosed with celiac but I know from hard experience that if I eat anything with gluten in it I have a bad reaction so my husband and I have been on a gluten free diet since the middle of October. Exept, yesterday. Yesterday I ate a piece of cake that was not gluten free and I am still paying for it.

Hey, Ya'll. I live in Iowa now but am Sooner born, Sooner bred, and when I die I'm Sooner dead! So very good to hear folks talkin' bout places back home. Next time I am down visiting the folks in Edmond or college buds in Tahlequah I'll have to try and make contact.

A

SchnauzerMom

Hi I am in Texas but have relatives in Broken Arrow, Lake Eufala and in Tulsa. I am currantly living in Arlington that is inbetween Ft Worth and Dallas.

RiceAddict

GO SOONERS, my husband loves them

donna

Guest micah
Guest micah
Posted

I'm in Tulsa! Nice to meet you all!

Micah

  • 3 months later...
McRhonda Newbie
McRhonda
Posted

Hello, I'm in Tulsa as well. :)

Rhonda

  • 3 months later...
glasgirl8 Newbie
glasgirl8
Posted
I just found out about this site through my People magazine, but have had celiac since I was born, but was diagnosed when I was about two years old. I am not 26 years old and living a healthy and wonderful life in Tulsa. Would love to talk with others or answer any questions for those that have questions about Celiac.

Hi, I am new to the site and have a daughter, 6, that I need to get tested and don't know where to start. We have had an upper IG and her Dr. swore that she had celiac but it came back normal (with live villi) so her Dr. is stumpped. Could you help?

  • 5 months later...
googlechef Newbie
googlechef
Posted

Hello! Tulsa here. We have lots of Celiacs come to our restaraunt. We have a Gluten Free Menu and I am the to guide guests and our kitchen staff through your meal.

Dennis

Thyme Bistro

30th place and Harvard

webthyme.net

  • 1 year later...
JenAnderson Rookie
JenAnderson
Posted

I live in Lawton. We're originally from Houston, but have been stationed here most of my husband's career. My 2 kids and I are gluten-free.

(So NOT a Sooner fan...Go Horns!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in...
    5. SilkieFairy
      - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.