Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Response To Ny Times Article


Guest Bernice

Recommended Posts

Guest Bernice

A New York Times guest writer, Judith Warner, apparently said some things that people took issue with in a recent column titled, Less, and Less Often.

I found this reader's response in last weekend’s NY Times, but the original article is only available to paid online-subscribers, or in the printed copy. I didn't read the article in the paper, and had already thrown it out by the time the letter was printed.

To the Editor:

Judith Warner deplores parents' "joyless food-related fussiness (no gluten, no dairy, no pleasure — ever)." She should know that many of us, much as we would welcome the joy of eating gluten in our lives, cannot do so because we have celiac disease.

For us, consuming the gluten found in wheat, rye, oats and barley makes us feel unwell and threatens our long-term well-being. We fuss because we must.

Carolyn Makuen

Hartsdale, N.Y., June 30, 2006

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

this seems to be yet another instance of some author opening mouth and inserting foot, complaining about parents food fussiness, wasn't there some brou ha ha on Oprah not too long ago about the very same thing???

Some ignorant people spouting off about what they percieve to be parents just being overprotective, over reactive and just plain crazy, but they don't know a thing about Celiac or other food intolerances and what they can do.

just chalk it up to ignorance! If someone can find and share the orignial article that would be cool...

NicoleAJ Enthusiast

My school subscribes to NYT. Below is the actual paragraph the single sentence mentioning gluten came from. The article basically argues that the practice of 'grazing' on food should be reduced for American children. She believes that instead of feeding children several small portions of health foods each day that parents should give children a single cookie and milk at 4pm and somehow this will cure obesity. Even though she doesn't agree with grazing, she does believe that we need to reduce portion sizes (i.e. eating less and eating less often). Though the premise of reducing portion sizes is just fine, it seems to me that she really is ignorant about the fact gluten is not just a matter of being health conscious but that it is, in fact, a deadly substance to some and that a gluten-filled cookie and milk each day for a celiac, lactose intolerant child could actually kill said child.

"An excessive focus on ''good'' vs. ''bad'' food has its place, too, in the development of eating disorders, a much less frequent, but -- in the case of anorexia nervosa -- no less deadly problem than child obesity. And at the very least, the good-bad dichotomy feeds the joyless food-related fussiness (no gluten, no dairy, no pleasure -- ever) that's so prevalent among parents -- and that really ought, as a public mental health measure, to be targeted for extinction in the next generation."

Guest nini

I don't have time to do it right now, but ALL of us need to write the NYT and educate them that gluten free diets are NOT about weight control and not about parents having a mental disorder or feeding mental disorders...

we should demand a retraction of that paragraph and educate the author that many parents have their children on a gluten free diet because feeding them gluten causes them to be very ill and could even kill them... Most people don't even have a clue what gluten even is and think that a lot of us are just plain crazy. We need to educate as much as possible and remove this stigma that is becoming attached to gluten free. We are fussy because we HAVE to be.

gfp Enthusiast
I don't have time to do it right now, but ALL of us need to write the NYT and educate them that gluten free diets are NOT about weight control and not about parents having a mental disorder or feeding mental disorders...

we should demand a retraction of that paragraph and educate the author that many parents have their children on a gluten free diet because feeding them gluten causes them to be very ill and could even kill them... Most people don't even have a clue what gluten even is and think that a lot of us are just plain crazy. We need to educate as much as possible and remove this stigma that is becoming attached to gluten free. We are fussy because we HAVE to be.

I'm with you on that....

Not only is this insulting but it also directly causes us problems... next time you ask for gluten-free and the waiter gives you that knowing look, perhaps he has been reading the NYT.

ravenwoodglass Mentor
I don't have time to do it right now, but ALL of us need to write the NYT and educate them that gluten free diets are NOT about weight control and not about parents having a mental disorder or feeding mental disorders...

we should demand a retraction of that paragraph and educate the author that many parents have their children on a gluten free diet because feeding them gluten causes them to be very ill and could even kill them... Most people don't even have a clue what gluten even is and think that a lot of us are just plain crazy. We need to educate as much as possible and remove this stigma that is becoming attached to gluten free. We are fussy because we HAVE to be.

I agree and will do so this afternoon. If only I had known to be a 'fussy' food neurotic mother when my kids were young. My son would be more than 5' tall and my DD would not have permanent scars on her body from the psychological effects of the disease and the toxic meds they push on us. This is disgraceful and can be a real set back for folks struggling with the should I or shouldn't I question.

ms-sillyak-screwed Enthusiast
Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

Here's the comment I made on the re-posted version of the article:

This author has no understanding of the true medical conditions that require adults and kids to eat gluten and dairy free. Celiac disease, which affects 1 person in 133 in the United States causes an autoimmune reaction in people who consume gluten. While obesity is becoming an obvious problem here in the US, Celiac is, as well, and is linked to many more fatal conditions than obesity. In fact, Celiac can also cause obesity.

This is the sentence from the author I object to, for it belittles parents who are right for making their children’s health a priority: “And at the very least, the good-bad dichotomy feeds the joyless food-related fussiness (no gluten, no dairy, no pleasure — ever) that’s so prevalent among parents — and that really ought, as a public mental health measure, to be targeted for extinction in the next generation.” It’s attitudes such as the author’s that ought to be targeted for extinction in the next generation.

I expected more compassion from a “TrueLiberal” site.

Stephanie

Comment by skbird | July 5, 2006

Stephanie

jenvan Collaborator
Here's the comment I made on the re-posted version of the article:

Stephanie

Love the response--esp the part about her attitude going extinct. Couldn't have said it better :)

queenofhearts Explorer

Wow... so now its "fussiness" to want your child to be well? Yikes. I just sent a reply too.

Leah

Guest nini

I am also a Celiac AND a parent of a child with Celiac disease, while the author makes some valid points about childhood obesity, her statement about “food related fussyness” especially in reference to no gluten, were extremely offensive to me. I wish that my parents had been that kind of fussy when I was a child. Then I wouldn’t have had years of health problems because of gluten. No, my parents fed me a diet rich in whole grains which they were told was healthy for me…

I demand a retraction of the statement about gluten in regards to food related fussyness. Unless you have been ill from food or have a child that gets violently ill from it, you have no business calling us fussy.

Comment by Nisla | July 5, 2006

here's my reply

2Boys4Me Enthusiast

Here's my reply:

The author’s comment “no gluten, no dairy” is completely out of line. I am sure the author is aware that wheat(gluten) and dairy are two of the top eight allergens. Would she consider “no peanuts” fussy? My son’s health is my first priority and you bet I’m “fussy” if it means I’m keeping gluten out of his system and maintaining his health now that we finally know that “healthy whole grain” food is the least healthy thing he can eat.

Linda

Comment by Linda | July 5, 2006

ms-sillyak-screwed Enthusiast

?

frenchiemama Collaborator

I left a comment on her blog.

"When I first heard of the ignorant “fussy” food statement regarding gluten and dairy I thought, “No, that can’t be right. She must have been misquoted. Surely anyone would do even a modest amount of research before making such a claim against gluten and dairy free diets.” Sadly, I was wrong. I can’t tell you how disappointed I am that someone would include gluten and dairy free diets in a rant against all that is wrong with eating in America.

Not only does this belittle anyone with Celiac Disease and/or dairy intolerance (I happen to have both), but it sets back our effort to have our needs taken seriously by society as a whole. Ms. Warner has done a disservice to everyone who struggles with a restrictive and MEDICALLY NECESSARY diet.

I hope that Ms. Warner receives a bit more understanding from others if she ever finds herself living such a life (with no joy, as she so thoughtfully put it). "

gfp Enthusiast

I might be wrong but I very much doubt she will really even be bothered by these comments.

Since we have several professional writers here why not write a measured complaint and let everyone add their names to it and send it to the editor as a complaint.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    3. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

    5. - trents replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.