Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Regrowth


suziew

Recommended Posts

suziew Rookie

Has anyone who lost their hair, had it grow back? I have been gluten free for a year now. I quit using wheat shampoos, I started taking selenium and my doctor says my thyroid is okay. My hair is still falling out. Is there any hope?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice

How many hairs are you losing each day? Count the hairs in the brush, comb, and shower. It is normal to lose 50-100 hairs in a day. If your hair is thinning, it may not have anything to do with the celiac.

blueeyedmanda Community Regular

My hair grew back, it stopped falling out rapidly almost instantly once I went gluten-free. I was breathing the sign of relief. It really scared me when my hair started coming out in chunks.

mommida Enthusiast

Hair growth has three phases, rest, growth, and falling out. Most of the time the individual hair follicles following this pattern are scattered over (the head) and the pattern is not that noticable. If the body has all the hair growth restarted at the same time it is very noticeable. Give it some time and maybe try a shorter style for right now.

L.

suziew Rookie

It's been at least 5 yrs. since I noticed my hair falling out. When I look in the mirror now, I can see the shape of my head because there is no hair left. I guess I'll go back to the doctors again. The first 2 doctors only checked my thryroid and said it's part of growing old.

Rachel--24 Collaborator

I was losing a ton of hair before going gluten-free...I also had thyroid disease at the same time though. I remember counting hairs in the shower and it was well over 400. :(

It all grew back in time...I still go through bouts where I lose more...especially if I get alot of reactions from things in my diet. Thankfully it never gets as bad as it was in the beginning.

I know you said you've had your thyroid checked but even if the levels are in the normal range....it may not be normal for you...some people need their numbers to be in the low normal range for optimal thyroid levels.

Do you have your most recent test results (TSH, FT3 and FT4)? If you can post them I'd be curious to see what the numbers are...I'm betting high normal.

eKatherine Apprentice

I have heard women who had been anorexic say that even after they recovered their health with proper eating, their hair remained thin. It did not grow back as thick as it had been before their eating disorder.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elisabet Contributor

Is your hair loss patchy or diffuse?My son had lost alot of hair both in patches and over all.

He had to have a gluten-free cf sf diet and all his hair came back.

DingoGirl Enthusiast

I was losing a ton of hair - - my iron and other nutrients were really low. About four months after being gluten-free, it FINALLY stopped falling out. About one month after being gluten-free, I looked like a porcupine, as little hairs all over my head were sticking out from the longer hair. This made me very happy. How long have you been gluten-free? Have you had a complete blood panel? Much of it has to do wtih malnutrition.....

ravenwoodglass Mentor
Is your hair loss patchy or diffuse?My son had lost alot of hair both in patches and over all.

He had to have a gluten-free cf sf diet and all his hair came back.

Elisabeth, I am so happy to hear this!!!!! I know he had a tough time for a while.

Felidae Enthusiast

My hair stopped thinning and grew back to a decent thickness since going gluten-free. I also don't use wheat shampoos or conditioners.

elisabet Contributor
Elisabeth, I am so happy to hear this!!!!! I know he had a tough time for a while.

Thank you so much,and you have been such a wonderful support.

suziew Rookie

I don't have the numbers from my thryroid tests. The last doctor would never tell me anything. She just said it was normal. My hair is thinning on top, just like a man's head would do. I hate having my picture taken, because my shiny white scalp always shines through.

ravenwoodglass Mentor
I don't have the numbers from my thryroid tests. The last doctor would never tell me anything. She just said it was normal. My hair is thinning on top, just like a man's head would do. I hate having my picture taken, because my shiny white scalp always shines through.

First ((((((hugs)))))), second you have a legal right to copies of any tests and notes your doctor has done on you. Don't ask for them demand them.

  • 2 weeks later...
Guest southgoingzax

Hi there!

I don't want to depress anyone who has dealt with hair loss, but 3 years after diagnosis, I am still losing my hair. It seems to start every year between May and July and fall steadily out until December. Then I get baby hairs and then it starts all over again. I have been to a dermatologist and to several GI specialists (one of whom told me forcibly that he had no bald celiac patients), and there's nothing apparently wrong. I have also had my thyroid tested - no dice. However, after some extensive (and very expensive) allergy and vitamin/mineral absorption tests, I have learned that I am still vitamin and mineral deficient due to intestinal inflammation, not caused by gluten but by other allergens (soy, dairy, eggs, beef, salmon, shrimp, cranberries, green and black teas, and lettuce, to name a few!). Now that I have cut all of those out and added to my vitamin-mineral regiment, I am hoping the hair loss will eventually stop.

Some vitamin/mineral deficiencies that may cause hair loss:

Vitamin A

Vitamin B-12

Zinc

Calcium

Protein

I found that weekly B vitamin injections really seemed to help, but then my nurse practitioner and I had a falling out and she refuses to treat me any longer unless I buy custom-made vitamins that cost $600 for a 3-month supply. But anyway, you might try injections, as our ability to absorb anything in the intestines is usually pretty hampered.

Good Luck and Best Wishes,

zax

LKelly8 Rookie

I have age/genetic related hairloss. I was sooo sure it was vit def from celiac or one of the meds I take for rheumatoid arthritis but unfortunatly it's not, I'm just losing my hair just like my mom did, and her mom, and her mom. . .I come from a long line of shiny headed, angry women.

:D:angry::angry::angry::lol:

I'm going in for "the" haircut in August, short and a lighter color. Lighter color blends better with the exposed scalp.

I did notice some hair regrowth when I was taking a high dose (Rx 1mg) of folic acid. I was taking it to counteract the methotrexate (arthritis drug), so I don't really know what the deal was there.

  • 3 weeks later...
Ellen A. Newbie
Hi there!

I don't want to depress anyone who has dealt with hair loss, but 3 years after diagnosis, I am still losing my hair. It seems to start every year between May and July and fall steadily out until December. Then I get baby hairs and then it starts all over again. I have been to a dermatologist and to several GI specialists (one of whom told me forcibly that he had no bald celiac patients), and there's nothing apparently wrong. I have also had my thyroid tested - no dice. However, after some extensive (and very expensive) allergy and vitamin/mineral absorption tests, I have learned that I am still vitamin and mineral deficient due to intestinal inflammation, not caused by gluten but by other allergens (soy, dairy, eggs, beef, salmon, shrimp, cranberries, green and black teas, and lettuce, to name a few!). Now that I have cut all of those out and added to my vitamin-mineral regiment, I am hoping the hair loss will eventually stop.

Some vitamin/mineral deficiencies that may cause hair loss:

Vitamin A

Vitamin B-12

Zinc

Calcium

Protein

I found that weekly B vitamin injections really seemed to help, but then my nurse practitioner and I had a falling out and she refuses to treat me any longer unless I buy custom-made vitamins that cost $600 for a 3-month supply. But anyway, you might try injections, as our ability to absorb anything in the intestines is usually pretty hampered.

Good Luck and Best Wishes,

zax

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,153
    • Most Online (within 30 mins)
      7,748

    Mmoc
    Newest Member
    Mmoc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.