Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Possibly From Gluten?


Lymetoo

Recommended Posts

Lymetoo Contributor

I've had bad pain in the area of my kidneys for about a year. I had a CT scan several months ago and it showed that the kidneys were fine. My bloodwork is slightly abnormal on the BUN/creatinine.

I've been getting foot and hand cramps for several months. It seems to happen if I forget to take my calcium. So I was wondering if maybe I'm not absorbing the calcium?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BeckyW Contributor

I get hand and feet numbness and tingling when my calcium levels are low. I had my thyroid removed in February and I am not producing calcium and have to take mega doses of calcium daily. Not sure about the kidney pain though. Have you had a blood calcium level checked? Hope this helps!

Lymetoo Contributor
I get hand and feet numbness and tingling when my calcium levels are low. I had my thyroid removed in February and I am not producing calcium and have to take mega doses of calcium daily. Not sure about the kidney pain though. Have you had a blood calcium level checked? Hope this helps!

Well, I just started on armour thyroid about 2 months ago. I wondered if the "kidney" pain might actually be from my colon??

Need to see about blood calcium levels. Thanks!

Ursa Major Collaborator

I had excrutiating back pain most of my life (from the age of about 7), and nobody could figure out why. It went almost totally away the day after eliminating gluten! And my back is still the best it's been since I've been a little kid. The back pain comes right back when glutened (or if I eat rice, eggs or soy, but most with gluten).

So, it is entirely possible that your backpain is caused by gluten intolerance. I also used to get pain/cramping/tingling/numbness in my hands and feet, and don't any more.

jerseyangel Proficient

I had tingling and numbness in my face, left arm and both legs before going gluten-free. It has gone away, except for the facial numbness, which gets worse when glutened. My left arm would feel strange--I still don't know how to explain it--heavy, numb, like it didn't belong to the rest of my body. It was scary at the time--I had no idea about Celiac or what it could cause.

I still get cramping in my calves, especially at night. I am awaiting results of blood tests which included TSH, T3 and T4 to check my thyroid.

Lymetoo Contributor
I had tingling and numbness in my face, left arm and both legs before going gluten-free. It has gone away, except for the facial numbness, which gets worse when glutened. My left arm would feel strange--I still don't know how to explain it--heavy, numb, like it didn't belong to the rest of my body. It was scary at the time--I had no idea about Celiac or what it could cause.

I still get cramping in my calves, especially at night. I am awaiting results of blood tests which included TSH, T3 and T4 to check my thyroid.

Thanks! I was just thinking about the gluten being the cause of the back pain today. It would be a relief to get rid of that!!

olalisa Contributor

Before my dx I had intermittent back pain. A few months before my dx I began to have foot cramps multiple times daily. It was one of the symptoms that got me BACK to the doctor AGAIN and made me demand that they figure out what the heck was wrong with me! The foot cramps (and the back pain) resolved about 2 weeks after going gluten free. Now I only get them when I've been glutened--esp the foot cramps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lymetoo Contributor
Before my dx I had intermittent back pain. A few months before my dx I began to have foot cramps multiple times daily. It was one of the symptoms that got me BACK to the doctor AGAIN and made me demand that they figure out what the heck was wrong with me! The foot cramps (and the back pain) resolved about 2 weeks after going gluten free. Now I only get them when I've been glutened--esp the foot cramps.

Thank you! That gives me hope!! :)

jams Explorer

Very interesting... I just had a ct scan 2 days ago for kidney pain. They took my gallbladder out and thought it was maybe the pylop on that that was causing the pain. It is a dull nagging pain on the right side. I have had it for 2 years and I am gluten free. I won't get the results until Monday.

wozzy Apprentice

It's hard to tell. Symptoms can be caused by so much. I start to drive myself crazy if I think about what's causing every one of my ailments.

Guest Robbin
It's hard to tell. Symptoms can be caused by so much. I start to drive myself crazy if I think about what's causing every one of my ailments.

I hear you on that score--I hurt at some point on my body continuously and I wonder sometimes how would I know I don't have cancer or something life-threatening? I try not to think about it too much unless I am unable to walk, talk or breathe :blink: . My back has hurt for as long as I can remember. I've had malabsorbtion probably since childhood for which I blame the scoliosis, then had a herniated disk and broken tailbone from a forceps delivery of my second child. I've been gluten-free since January and have had improvements everywhere except the back. You give me hope, Ursula.

I suggest that anyone with a back problem make sure that their dr. checks their gallbladder too. It can cause back pain-weird, but true. Also, have your feet and legs checked out. Sometimes foot abnormalities and one leg shorter than the other -even1/4 -1/2 of an inch--can cause problems too (I have those lovely conditions too :blink: ) Take care.

andrew1234 Newbie

Dear Lymetoo,

your sympotoms could be caused by hypocalcemia (low blood levels of calcium) which is common in celiac sprue. For your body to absorb calcium you need to first absorb vitamin D. The main function of vit. d is intestinal absorption of Calcium. Hence if you're not absorbing vit. d then you're not absorbing Ca. Some people also mention that they have tingling, or bone pain. These are all signs of hypocalcemia because if Calcium is not absorbed from the intestines then the body tries to take it from the bone (the major source of Ca. in the body). Tingling is due to the fact that Ca. is needed for the function of nerves. Your kidney pain is probably due to "secondary hyperparathyroidism" which occurs after long term hypocalcemia. I hope I am not too technical in my explanation. I would talk to your doctor and have your parathyroid hormone levels checked.... I hope this helps....Andrew

eKatherine Apprentice

I used to get foot and leg cramps that calcium didn't help. It turned out that they were cured by taking vitamin E caplets (d-alpha tocopherol only). If the calcium supplementation doesn't do it, you might want to try that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.