Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Very First Glutening


AshleyE

Recommended Posts

AshleyE Apprentice

Well, I've managed to make it a little over a month living gluten free without any problems. Yesterday I went to a restaurant with my husband and some friends and I ordered this delicious polenta and vegetables dish that I thought would be safe. This morning proves to me that it wasn't completely gluten free. I've been in and out of the bathroom with D all morning, and my stomach is cramping horribly. I never had symptoms like this when I was eating gluten, so I wasn't sure how I would react, but now there's no question.

Does anybody have any advice on any way to make the pain and D a little easier, or do I jsut have to ride it out?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bbo1 Newbie
Well, I've managed to make it a little over a month living gluten free without any problems. Yesterday I went to a restaurant with my husband and some friends and I ordered this delicious polenta and vegetables dish that I thought would be safe. This morning proves to me that it wasn't completely gluten free. I've been in and out of the bathroom with D all morning, and my stomach is cramping horribly. I never had symptoms like this when I was eating gluten, so I wasn't sure how I would react, but now there's no question.

Does anybody have any advice on any way to make the pain and D a little easier, or do I jsut have to ride it out?

Ashley - It DOES go away, as soon as your body get's the poison out! (That's what gluten is to a Celiac - it's poison.) Drink lots of water - it's a natural way to cleanse without causing more problems. Also it will cut down on the butt-burn D can cause. NO MILK til all D is gone - it irritates the intestinal track=more D.

I have learned to be very careful in restaurants - send waiters to talk to cooks to find out if something contains wheat, ask the chef to tell the waiter what is safe to order, etc. Most places offer grilled meats and steamed veggies, baked potatoes, rice... just be sure to avoid sauces and dressings! Tell the waiter to put "ABSOLUTELY NO WHEAT" on your order.

Good luck with your new diet. I recently got a good book "The Gluten-Free Bible" - you can get it at Barnes & Noble, or they will order it for you.

~~Barbara in Nipomo, CA

gluten-free by intuition since January 2006 (negative blood test Oct '06)

Brother diagnosed Celiac July 2005

Nephew diagnosed Celiac August 2005

Oldest brother died Sept '02 with multiple Celiac symptoms for years, but no diagnosis

bbo1 Newbie
Well, I've managed to make it a little over a month living gluten free without any problems. Yesterday I went to a restaurant with my husband and some friends and I ordered this delicious polenta and vegetables dish that I thought would be safe. This morning proves to me that it wasn't completely gluten free. I've been in and out of the bathroom with D all morning, and my stomach is cramping horribly. I never had symptoms like this when I was eating gluten, so I wasn't sure how I would react, but now there's no question.

Does anybody have any advice on any way to make the pain and D a little easier, or do I jsut have to ride it out?

Ashley - Drink lots of water - it will help "flush" out the poison (yes, you've been poisoned - that's what gluten is to a celiac!). It will also help cut down on the butt-burn that accompanies D. NO MILK until the D is gone - milk irritates the bowels and it prolongs the effects.

When eating out, I've learned to ask waiters to check with the chef for wheat-free menu items - they know the ingredients that don't show up on the menu. Also, when in question, go simple - grilled meat or fish, steamed veggies, rice or baked potato...stay away from anything with a sauce, gravy or dressing. It's also ok to ask the waiter to write "Absolutely no wheat" on your order.

A good guide book I recently purchased is "The Gluten-Free Bible". You can get it at Barnes & Noble or they can order one for you.

Good luck with your new diet.

~~Barbara in Nipomo, CA

gluten-free by intuition since January '06 (negative blood test Oct '05)

Brother diagnosed Celiac July '05 after years of medical issues

Nephew diagnosed Celiac August '05

Oldest brother died 9-02 after years of Celiac symptoms & medical issues - undiagnosed

plantime Contributor

I had my very first typical gluten reaction the end of March. I thought I was going to die! I almost went to the ER, the diarrhea was so bad, and I was getting so dehydrated! Just keep drinking lots of water, it will help your body to flush out the gluten, so the reaction will stop.

AshleyE Apprentice

Thanks for the advice to drink lots of water. It's about three o'clock now and I'm starting to feel better. I've been kind of afraid to put anything else in my body. I'm hungry, but I don't want to make my body mad. I think I'll nibble on some rice cakes or something basic. Fruit sounds good, but probably a little too acidic.

Anyway, thanks again.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,742
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.