Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin B12

Guest Shirelle

By Guest Shirelle
in Coping with Celiac Disease

Recommended Posts

SandraB Newbie
SandraB
Posted
Thanks for the info. Should have taken my mag. last night(had a chopin martini at Chang's last night). I always thought chocolate cravings meant lack of calcium but makes sense-mag. makes calcium work. I started adding mag. when I had no energy and also to protect the heart. What is the relationship of anemia to B12? LindaLee

Hi again - well magnesium works for my chocolate cravings. And another thing - I notice taking it has improved my speed of reaction. Bizarre but true. So some of those kids at school who are no good at ball games may have mineral deficiencies. I was useless myself. Something to do with potassium and you can't absorb it unless you have enough magnesium.

SandraB

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest southgoingzax
Guest southgoingzax
Posted

Can anyone tell me where to order injectible B vitamins? I was getting injections until my nurse practitioner went crazy and wont treat me anymore - and I think it was really helping with my fatigue, depression, and hair loss. Do I need a prescription?

Thanks,

zax

Turtle Enthusiast
Turtle
Posted

I am probably gonna sound dumb but ya'll should be used to that by now, HA!

My questions are these....

I recognized some symptoms in myself that were mentioned here with regards to the magnesium. (tingling & chocolate (which I before going gluten-free I hardly ate chocolate, now I want it all the time). Is magnesium something that you buy OTC or do you have to have a script?

I'm currently taking Centrum Silver chewables and Caltrate chewables (i'm a whimp and can't swallow those horse pills).

Also, w/ the B-12 if your levels are normal, does taking B-12 anyway still help? I asked my dr about this a while back b/c I have low energy level most of the time and he told me my levels were fine & that taking B-12 wouldn't make much difference. Anyone have any insight or comments??

Thanks for all the good insight!

lindalee Enthusiast
lindalee
Posted
I am probably gonna sound dumb but ya'll should be used to that by now, HA!

My questions are these....

I recognized some symptoms in myself that were mentioned here with regards to the magnesium. (tingling & chocolate (which I before going gluten-free I hardly ate chocolate, now I want it all the time). Is magnesium something that you buy OTC or do you have to have a script?

I'm currently taking Centrum Silver chewables and Caltrate chewables (i'm a whimp and can't swallow those horse pills).

Also, w/ the B-12 if your levels are normal, does taking B-12 anyway still help? I asked my dr about this a while back b/c I have low energy level most of the time and he told me my levels were fine & that taking B-12 wouldn't make much difference. Anyone have any insight or comments??

Thanks for all the good insight!

Magnesium deficency causes cravings for chocolate. I'm not sure about the tingling. You can get mag. from dairy, nuts, vegetables, fish, meat and seafood. I eat alot of nuts! Corn syrup leads to copper deficiency -which leads to bone fragility, anemia, high cholesterol, etc. People with functional bowel disease are very sensitive to fructose. It produces pronounced gastrointestinal distress which leads to mineral losses especially higher fecal excretions of iron and magnesium. Corn syrup is the cheap form of fructose. Eat those foods and hopefully that helps. LindaLee

lindalee Enthusiast
lindalee
Posted
Hi All,

I'm back and with bad news - test results from brain MRI indicates MS. I am going for the spinal MRI Sunday morning and according to the doctor this will confirm MS if results are positive. Has anyone been misdiagnosed with MS and found it to be the B vitamins? Also, I have even read there is a suspected connection between MS and Celiac. This is only the first Doctor opinion and I will be going for another. Any input would be helpful.

Dr. David Perimutter ("The Brain Book") said celiac and wheat intolerants often develop white matter changes in the brain and are diagnosed as MS (says to go on a gluten free diet) He was on "YOUR HEALTH" last week. His site is www.Dr. Perimutter.com. Hope that helps you . LindaLee

  • 2 weeks later...
queenofhearts Explorer
queenofhearts
Posted
Anyway - worth a try, certainly if you have any of my symptoms. Magnesium ddoesn't spring to mind as being associated with tingling and twitches but apparently it is.

Hope this helps someone.

SandraB

I'm so glad you posted this! I'd thought for a while I might be magnesium-deficient, but before I went gluten-free I was always afraid of the D effect... now that's under control so I tried it, & noticed a marked increase in energy... not 100% sure it was the magnesium, but it certainly did coincide. So thanks!

Leah

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

-

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted
Hi All,

Diagnosed with Celiac a year ago this May after experiencing severe anemia and advanced Osteoporosis along with all the other classic digestive symptoms. I have adhered very strictly to the gluten-free diet but within a few months after switching over to the gluten-free diet I began to experience alot of problems. Although I felt better and the anemia reversed I started having alot of problems with burning and tingling on my lips, face and sometimes tingling and pain in my hands and feet. I recently read a posting here where someone had talked about vitmain B12 defiencies. Has anyone experienced any of the types of problems. It's been a year now and I am beginning to get discouraged with these conditions and thinking I wa better off before.

Discouraged

( I am not normally this short in my posts, but it is late, and I am on vicodin for dental work, and just killing time while my soup re-heats)

Hi Shirelle, I had the same symptoms. I have pernicious anemia. If my B12 isn't low, then it is my folic acid (currently low). I take TriVita sublingual B complex (B12, Folic Acid, and something else......). The GNC sublingual B12 is also gluten-free. Lynne is great, so follow her advice (at least I would) but if you can't find her B12's, you can get them at a local GNC too, just wanted to let you know they are gluten-free also. Nice to meet you! Night night....

  • 2 weeks later...
SandraB Newbie
SandraB
Posted
I am probably gonna sound dumb but ya'll should be used to that by now, HA!

My questions are these....

I recognized some symptoms in myself that were mentioned here with regards to the magnesium. (tingling & chocolate (which I before going gluten-free I hardly ate chocolate, now I want it all the time). Is magnesium something that you buy OTC or do you have to have a script?

I'm currently taking Centrum Silver chewables and Caltrate chewables (i'm a whimp and can't swallow those horse pills).

Also, w/ the B-12 if your levels are normal, does taking B-12 anyway still help? I asked my dr about this a while back b/c I have low energy level most of the time and he told me my levels were fine & that taking B-12 wouldn't make much difference. Anyone have any insight or comments??

Thanks for all the good insight!

Hi. You can buy magnesium pills over the counter at any health store - it is worth researching on Google to see which people recommend. Some seem to be absorbed better than others.

Re an earlier question, I read ages ago that research now shows that a mega Vitamin B pill is just as effective as injected Vitamin B - might be worth checking for that on Google too because I can't remember where I read it.

Glad to hear the chocolate craving is a normal gluten-free diet development.

Another thing - is anyone looking at Vitamin E deficiency which seems to be associated with celiac disease too? Anyone out there experienced an improvement in any area with Vitamin E supplements or mega portions of almonds and spinach which apparently contain lots of Vit E?

SandraB

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,049
    • Most Online (within 30 mins)
      7,748
    Penny Puckett
    Newest Member
    Penny Puckett
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • tiffanygosci
      Celiac support is hard to find

      By tiffanygosci · Posted

      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.