Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Husband Has Been Glutened.....


swittenauer

Recommended Posts

swittenauer Enthusiast

It seems as though my husband has been glutened. We are unsure of how as of yet. He was up all night with diarrhea & a horrible stomach ache. He has gotten rough & scratchy skin & is very itchy. He is basically feeling lousy all over. He is home from work today with our little girl. Any suggestions on what I can do for him or give him to make him feel any better when this happens. I just feel so bad that he is feeling badly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

You can't do much ... keep him hydrated. When I'm glutened water is not enough, I need something with electrolytes.

DingoGirl Enthusiast

So sorry about that, I just have to wait it out when it happens. BUT - - I have read about people using active charcoal when this happens - you could try that.

Good thing he has you for support!

swittenauer Enthusiast

I was hoping no one would say wait it out. I guess with each person the amount of time is different for it to go away or get better?

jerseyangel Proficient

I'm so sorry he is sick--I get the "itchies" when glutened, too. I wish I could offer more than to wait it out, but there really isn't much more you can do. I try to drink more water and I find that potatoes and bananas help when nothing else wants to sit in my stomach. A little food makes me feel a little better. Hope it passes fast :)

CarlaB Enthusiast
I'm so sorry he is sick--I get the "itchies" when glutened, too. I wish I could offer more than to wait it out, but there really isn't much more you can do. I try to drink more water and I find that potatoes and bananas help when nothing else wants to sit in my stomach. A little food makes me feel a little better. Hope it passes fast :)

Funny thing you say potatoes ... the only thing that I can eat when I'm having d is usually Ruffles. I don't understand it ... must need the salt and fat??? I used to buy them obsessively and kept them everywhere!

jerseyangel Proficient
Funny thing you say potatoes ... the only thing that I can eat when I'm having d is usually Ruffles. I don't understand it ... must need the salt and fat??? I used to buy them obsessively and kept them everywhere!

Ruffles! Me, too! Makes no sense to me either :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Ruffles! Me, too! Makes no sense to me either :D

:lol::lol::lol::lol:

Now when you start giving your husband Ruffles and Gatorade, he's going to wonder where you got that crazy idea from!!

utdan Apprentice
So sorry about that, I just have to wait it out when it happens. BUT - - I have read about people using active charcoal when this happens - you could try that.

I agree, active charcoal could help absorb a lot of the gluten and lessen unnecessary damage. I'm not sure, but the gluten seems to work on me for a week or so, not just the day I ate it. I used something else a few times, liquid bentonite, and it really helped after taking it immediately.

acousticmom Explorer

My son's GI prescribed NuLev, and it helps the pain subside quicker when he gets glutened. I know there was an earlier thread on different medications that some people found helpful. No one-size-fits-all magic pill, unfortunately.

Carol

swittenauer Enthusiast

How long can his reaction possibly last? I was thinking it would be a few days like it normally is but this time it is still going on.

CarlaB Enthusiast

I can react for 5 days. I'm still feeling bad after a glutening last Friday. My stomach still hurts, but haven't had d since Saturday morning. It's the fatigue and brain fog that have got me still.

mmaccartney Explorer

The only effective remedy for me is...to wait it out. Sorry!

Pain pills help with the pain I get in my guts, and arthritis.

I never feel like eating, and the lack of energy feeds the whole emotional reaction as well.

My reactions last 3-7 days in varying degrees and types of symptoms. Emotional symptoms can last longer. For example I got glutened Monday last week, and the "Gluten Paranoia" is still quite high in me today 7 days later!

  • 3 weeks later...
swittenauer Enthusiast

Well, today is the worst yet he says. My husband says he hasn't been this sick since it all started over a year ago. He has had diarrhea all day & has been cold, has a headache, aches all over & is sleeping again right now. He ate some rice noodles & Sierra Mist but I can't get him to eat or drink anything else. Isn't this disease just awful? I know he will feel better in a few days or maybe a week but I just hate seeing him hurt & feel so badly. Time will make it better. I think I atleast know how he got glutened so we can steer clear of buying that again. That is one positive of it all.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.