Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Conference In Stanford, Ca - Sept '06


DingoGirl

Recommended Posts

Rikki Tikki Explorer

Looks like I won't be able to come to the conference after all :(:(:(

Welcome Katja:

It takes a long time to be sure you are 100% gluten free. You will find so much valuable information from the other posts, just read through them. You can also do a search if you have a specific question. Just a few things off the top of my head, watch any medications as sometimes gluten is added to them, Kraft will list any of their products that use a grain. Gluten can be found in catsup, mustard, things like that. Be careful of cross contamination when you eat out. I don't know about your living arrangements, if you live alone then throw away your toaster. If you live with someone, be sure to keep your things separate as it doesn't take much to set you back. Make sure you use your own butter, peanut butter etc.

Glad to have you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 68
  • Created
  • Last Reply
jayhawkmom Enthusiast

Tavi,

Why can't you go??

  • 2 weeks later...
gf4life Enthusiast
Looks like I won't be able to come to the conference after all :(:(:(

Neither will I...

I had the form all ready to mail out with the check on payday, then I got called into a meeting at my daughter's dance studio to get the new schedule for the coming dance season. She is scheduled to meet with the out-of-town choreographer on Sept. 16th for 4 hours! She has to go to that. It is a one time thing. This is her first year on the competition team and the rest of the team will be there. They will have a hard time learning the dance if she isn't there. So we had to cancel our plans to go to the conference AGAIN! One of these years we are going to make it. I'm determined.

My daughter is cute though. She says to me, "Mom, can't you just drop me off with the dance teacher and you guys can go to the conference without me?" Not quite. I guess she didn't realise how far away the conference was from the choreographer!

  • 3 weeks later...
flagbabyds Collaborator

So who's going?

want to have a place to meet or something, i'm not sure on the setup yet, we will set up the night before

it's coming up

the teen program promises to be really fun, and i am pretty sure that there is still some more room for registration if you still want to register for anyone.

just a reminder the kids have to be over 5 if you are going to bring your kids and have them be in the kids program.

dlp252 Apprentice
So who's going?

want to have a place to meet or something, i'm not sure on the setup yet, we will set up the night before

Me. :) I'm registered and everything.

  • 2 weeks later...
flagbabyds Collaborator

hope you all who came had a LOT of fun, it was really successful!

wow im exausted, i got there at 7 this morning and was there until 10 last night.

going to sleepppppppppppppppppppppppppppppp

Rikki Tikki Explorer

Well, I am waiting. Did anyone meet up? How was it, you must tell all! :D:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

So who actually came?

I was there early and if you saw me I was the girl in the tye-dyed gluten free flower shirt and before 8:30 was the girl running around everywhere and hitting everyone with baloons cause i needed to put them up.

I didn't go to any of the talks except for the Danna Korn one at the end, which i really liked, but a lot of people had already left.

The teen program went really well! it was really good and laid-back.

The kids program also went really well (better afternoon than morning) and yeah...

Hope you all had fun,

I want to know what you think and who all was there!

DingoGirl Enthusiast

I was there! Molly, met your mom, she's so nice, and saw the book she wrote about your experience in hospital. Wow! I also saw you, but didn't introduce myself....was sitting at lunch enjoying gluten-free beer (it was SO good! :rolleyes: ) with some really nice gals, one of whom you babysit for! I can't remember her name....she has a science background and a set of twins, one of whom is Celiac.

Interesting lectures, but sadly I got there just as Dr. Greene was ending, and he was the one I wanted to see the most. :( I did speak with him later and asked a couple of questions. I find him very attractive in an older Russel Crow sort of way.....and that accent and all.....oops, did I say that out loud?

I ate and ate and ate gluten-free snacks like crazy.....SO many delicious baked goods, pizza, everything, I hadn't had any baked goods since going gluten-free. THE most delicious cupcakes, made here locally at a bakery - OMG am going to figure out how to make cake.

I left early as wanted to hang out with my friends here - missed danna's lecture.

Anywho, it was fun but I didn't meet anyone from my area (Central CA), it would have been great to meet Valley Celiacs.....also great networking for people who live in this area, lots of meetings and such but I am three hours away.

DONNA - where were you? You could have been there for all I know, lots of people.....would have been great to meet up!

that's my report....gotta go play now and enjoy this glorious weather! the dingos are so happy to be out of Fresno....

:)

dlp252 Apprentice

Susan, glad you went! I ended up not going...I dropped off the old paint supplies at the drop off, then decided I didn't feel like a whole day thing...so just went and hung out with my mom for a while. I was still feeling a bit "off" yesterday, couldn't even finish my lunch (which had my mom worried, cuz I ALWAYS feel like eating, lol).

AndreaB Contributor

Susan, I'm glad you went and had a good time. You gotta come up to Portland again. I could meet you there. :)

Donna, I hope that you are feeling better today. Too bad you and Susan couldn't meet up.

jayhawkmom Enthusiast

I was there, and I saw you Molly!!! =)

I actually was sitting with a very nice lady from OK, who's son was in the teen program. When I was getting my lunch, I heard a bunch of kids yelling, "MOLLY, MOLLY" over and over. And, I thought... "who else could it be?"

LOL!!

I learned SO much! I was SOOOOOO glad I went!!!

pturse Apprentice

I was there! It was really great. I learned so much and wish I had known about this conference when I was first diagnosed. My DH went too just so I wouldn't have to go alone and he actually learned a lot AND really liked the gluten free beer (so did I).

We also ate our body weight in snacks and treats. I felt so ill when I left from all the "free" samples!! Free samples = no calories right?? :lol:

Either way, great conference and my aunt wants to attend with me next year. Dr. Greene was great, quite the speaker. He makes it entertaining AND interesting. Danna Korn was great too. I have to say though, it is easier listening to a doctor/nutritionist who actually lives with Celiac then it is to just listen to a regular doctor. Dr. Greene doesn't have celiac but there was another female doctor who spoke that lives with celiac (Gayle Phyle I think) and she was great too!

jayhawkmom Enthusiast

I missed the beginning of Gail Pyle's talk - as I was "eating my weight in treats" --- but I did see Melinda Dennis, the nutritionalist.... and she has Celiac. I really learned a LOT from her.

Ok, so did any of you who went win any of the baskets?? The two people sitting on either side of me BOTH won baskets. I was so mad. LOL!! I would never have been able to get one on the plane, but it would have been nice to have one. They looked GREAT!

flagbabyds Collaborator

yeah we spent a LOT of time on them!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

and the goody bags at the beginning

yes they were yelling my name, we have 1/2 an hour off and went around to all the vendors and ate all the chocolately gsuarys good stuff so all the teens were REALLY hyper by the end.... :)

pturse Apprentice

My hubby and I wanted to win a basket SO bad too!! People in front of us and behind us both won them. We decided next year we have a new strategy in buying out tickets!! :lol:

Melissa Dennis wasn't it? Maybe it was Melinda, either way, you are right. She was fabulous. I went out and bought two new grains over the weekend because I am one those celiacs who immediately went to the "potato, corn and rice" diet and gained way too much weight. :blink:

jayhawkmom Enthusiast
I went out and bought two new grains over the weekend because I am one those celiacs who immediately went to the "potato, corn and rice" diet and gained way too much weight. :blink:

Same here. In fact, I just had some buckwheat with bananas for breakfast. YUM!!! I actually am 1 year postpardum - and I have only lost about 20 of the 70 lbs I gained during pregnancy. I'm now blaming the corn, potatoes, and rice for not being able to lose any more weight. So, I'm going to leave them behind for a while, and eat Buckwheat, Amaranth, and Quinoa and see if I can get this weight to shift again!!!

After the birth of my 2nd child, the weight melted off. This is frustrating!

And Molly..... I'm hoping to bring my daughter with me next year. She'll be 6. I saw many small children around that age. Did you work with them as well?? I'm wondering how well kids that age group seperated from their parents in a strange situation. My daughter cried all weekend because I was gone. =(

pturse Apprentice
Same here. In fact, I just had some buckwheat with bananas for breakfast. YUM!!!

How did you make the buckwheat? I tried the millet in the rice cooker last night. Seemed to work. I read online you can do the same w/the buckwheat . . .

jayhawkmom Enthusiast
How did you make the buckwheat? I tried the millet in the rice cooker last night.

I actually bought "cream of buckwheat" cereal, after making certain that buckwheat was ALL it contained. I made it stovetop, just like oatmeal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.