Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reality Hits Once Again...


num1habsfan

Recommended Posts

num1habsfan Rising Star

Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tammy Community Regular
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

I see the forest through the trees on some days and others all I see is a lot of tall sticks with leaves...

I had to come to terms with the fact that I have more bad days than good. I also removed all "BAD" food from my house. Is this possible for you to do? If not, perhaps you could keep a supply of your absolute favorite, safe foods in the house... I just started to keep gluten-free brownies in the freezer for those special moments. Many people at work eat my favorite, unsafe foods often and I must see this. So in order to keep my head above water... I started to bring to work and keep at home my really favorite, safe foods. I love chocolate and I found a snack bar made with honey and sesame seeds that I love!!!

I hope it helps!!!!!!

jerseyangel Proficient

Aw Lisa--don't be too hard on yourself--it happens to all of us from time to time. It's natural to have feelings like that--experience them, and then let it go. :)

nettiebeads Apprentice
Just out of nowhere I started to cry over having Celiac, just because earlier I looked in the fridge seeing 2 of my favourite foods that i cant touch ... this is the first time this has happened in a LONG time ... and i feel like an idiot :(

~lisa~

Why should you feel like an idiot? You're a very normal human being that has a disease that is so not mainstream. It's frustrating at times. After nearly 10 years of this, I'll still look in the pantry and just want to give up - same ole same ole and I don't want to spend outrageous prices for something yummy or cook from scratch. At least this forum is a safe place to vent and find out you're not alone.

Annette

Lymetoo Contributor

I hear ya, Lisa! I"ve struggled for years with my health. I also have Lyme disease which is so misunderstood by the public. People have no clue how bad it is. Now I found out I'm celiac too and I've had it a LONG time, I'm sure.

I haven't cried yet, but I'm pretty down today as well. Crying is good for the soul and for your emotional well-being. Go for it! :)

Mango04 Enthusiast

Don't feel like an idiot. You can cry over food! Just go make yourself a yummy gluten-free pizza or cake or something :D

Lisa Mentor

Lisa:

I can truely relate. It will be a year in August in my attempt to be gluten free. I have not had the outcome that I wanted to achieve. It is a daunting task.

It has been a crazy year for me and now, life slows....It is now a point in re-evaluation for me.

I think every step of they way, you need to see where you are and make judgements as to where you are today and where you want to go tomorow.

Yeah, I get mad on the inside about what I have to do to eat. And, I get mad about the effort and the research, and the choice not to eat anything that I don't know is safe. I get mad that I can't go to a wondeful resaurant and order what sounds good. Can get really angry. And then what............

So I get pissed, or I can get over it. Those are the days long ago. They are over for me. So.. you adjust. You learn to be a better cook. Which I am. But I want those days, with a date night with my husband and a choice of a menue was not an issue or a hardship or an issue with the server.

sorry do be a downer tonight, just in that mood............what is the topic, by the way.??

Is this revelant to the post?????????? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ashley Enthusiast

I understand how having Celiac Disease seems unreal. Don't feel that way. You are certainly not an idiot. During the first three months, I would not go to any store. When a commerical came on showing my favorite, gluten-containing foods; the television was turned off. I have days too were it all crashes down and feel bad. In time, it will pass.

Wishing for better days for you :)

-Ash

Ursa Major Collaborator

Lisa, don't feel like an idiot! I get those moments, too. It really is hard sometimes, and it's good you can come here and vent, because we actually understand and won't say (like my daughter at times) things like, "What a baby you are, crying over food!" Well, since they can eat all the stuff I want, they don't have a clue what it's like!

So, I say, it's okay to sometimes cry over what you've lost, and then move on. It would only be a problem if you would be upset about it all the time.

num1habsfan Rising Star

Thank you guys for saying that I'm not dumb, and showing that I am not alone. I dont get it -- I have seen this food a zillion times before, and NEVER had a problem with it before ... so why it set me off now, I dont know.

Its not like I dont accept Celiac, maybe its just that everything else today is making me sad lol

~lisa~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.