Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have A Medication List Of Do's And Dont's

Sharon1422

Recommended Posts

Sharon1422 Newbie
Sharon1422
Posted

:( Today was the first day that I realized that this is going to be a major problem Gluten one big nightmare. I was scheduled for my biopsy on Friday. When the office called and asked me all of my information about surgeries and health history they decided to cancel my biospy. I have a cough they I've had for a couple of months now along with asthma. Well, now I have to get clearance from my regular md. so off to the md I go. Explaining all the test and results and then that wonderful word....gluten ......which of course he said he knows nothing about....ok antibiotic and prevacid precriptions....ok "do you know if these have gluten in them" "dont know check with pharmacy"....ok....pharmasist...."dont know" you said gluten....ok changed pharmacies.... Oh, did I mention hiatal hernia....the gastric juices have been coming up and causing the problem with my throat and phlem. It been a wonderful week.

I need to know if anyone knows of a list thats out there to bring to pharmacy and doctor.

Any help would be great....thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
:( Today was the first day that I realized that this is going to be a major problem Gluten one big nightmare. I was scheduled for my biopsy on Friday. When the office called and asked me all of my information about surgeries and health history they decided to cancel my biospy. I have a cough they I've had for a couple of months now along with asthma. Well, now I have to get clearance from my regular md. so off to the md I go. Explaining all the test and results and then that wonderful word....gluten ......which of course he said he knows nothing about....ok antibiotic and prevacid precriptions....ok "do you know if these have gluten in them" "dont know check with pharmacy"....ok....pharmasist...."dont know" you said gluten....ok changed pharmacies.... Oh, did I mention hiatal hernia....the gastric juices have been coming up and causing the problem with my throat and phlem. It been a wonderful week.

I need to know if anyone knows of a list thats out there to bring to pharmacy and doctor.

Any help would be great....thanks :)

As far as prescriptions go. The easiest thing to do is get the manufacturer name from the pharmacy and call the company yourself. You can do a search online for the company and they have people on staff that can tell you the gluten free status of the RX.

If you call yourself then you can make sure to ask the right questions and you can hear first hand their response.

-Jessica :rolleyes:

olalisa Contributor
olalisa
Posted

there's a website you can go to called glutenfreedrugs.com. This site will generally have the answer :) and has been a lifesaver for me!

lovegrov Collaborator
lovegrov
Posted

Prevacid is gluten-free and all antibiotics I've ever seen. BUT, you still just need to call the companies. If a company tells you the product is supposed to be gluten-free but they can't guarantee the ingredients from a supplier, don't worry about it. It's gluten-free.

richard

Sharon1422 Newbie
Sharon1422
Posted
  • Author
there's a website you can go to called glutenfreedrugs.com. This site will generally have the answer :) and has been a lifesaver for me!

Your information was so helpful. I pulled up the website and I have a list. Im making copies and taking it to my doctors and to the pharmacy. Thank you... :D

kbtoyssni Contributor
kbtoyssni
Posted

I'm surprised your pharmacy didn't find this information for you. My pharmacy was great and called all the manufacturers of my meds for me.

Sharon1422 Newbie
Sharon1422
Posted
  • Author
I'm surprised your pharmacy didn't find this information for you. My pharmacy was great and called all the manufacturers of my meds for me.

I would of assumed that a pharmasist would be updated on Gluten Free Medications....but, when he pulled out an insert and started reading and then a medical pocket dictionary I got a little nervous. He said oh just take some Benadryl for the reaction. He also said that I have taken the antibiotic before and it didnt bother me. I tried to explain that I was just found out about this condition. He just didnt understand any of it. I left and went to another small home town more personal pharmacy and had a discusson with the pharmasisit and then had called the other pharmacy to fax over my prescriptions. By this time I was so discussed. I then got the prescriptions but looked it up online and sent an email to the company. But, thank god for this site I was able to get a website and a really good list. Im feeling alot better knowing that this site can really help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
I would of assumed that a pharmasist would be updated on Gluten Free Medications....but, when he pulled out an insert and started reading and then a medical pocket dictionary I got a little nervous. He said oh just take some Benadryl for the reaction. He also said that I have taken the antibiotic before and it didnt bother me. I tried to explain that I was just found out about this condition. He just didnt understand any of it. I left and went to another small home town more personal pharmacy and had a discusson with the pharmasisit and then had called the other pharmacy to fax over my prescriptions. By this time I was so discussed. I then got the prescriptions but looked it up online and sent an email to the company. But, thank god for this site I was able to get a website and a really good list. Im feeling alot better knowing that this site can really help.

I work in a pharmacy part time as a tech. There is absolutely no way for a pharmacist to know every ingredient in ALL medications and their generics. They are lucky if they know the active ingredients (the ones that count). If wheat was used in a med. it would most likely be as a binder which wouldn't be a terribly important ingredient to remember to the average person.

That is why your pharmacist pulled the package insert and started reading. He probably also pulled a drug book that lists information on drugs (not always full ingredient listings). He was doing the best that HE/SHE could do.

Your best bet is to ask them the name of the manufacturer and call them yourself. That way you are getting the information 1st hand from the people who are making the drug.

-Jessica :rolleyes:

jerseyangel Proficient
jerseyangel
Posted

My suggestion is to call the manufacturer of the drug yourself. The gluten-free drug list may not always be completely up to date. Any time I have called a drug company, and this includes generic, they put me thru to a pharmacist or nurse who answers my questions. All have been very nice and knowledgeable. You can get the phone numbers from the pharmacist or on the company's website.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I agree with Patti -- I always call the manufacturer myself. My pharmacist is so unbelievably busy, that I don't know how he keeps up with all the new medications coming out, much less the ingredients in them all! But, they are always very helpful in giving me the phone number of the manufacturer.

I was really glad that I called . . . my generic Synthroid, my generic Klonopin (which they were giving me FOR the spasticity that the Gluten Ataxia has caused), and one other one (can't remember) were all gluten-containing. Now, my doctor writes Name Brand Only . . . and I still call the company of the name brand one just to make sure!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,573
    • Most Online (within 30 mins)
      7,748
    Dawn Nauman
    Newest Member
    Dawn Nauman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.