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I Want To Be The First Celiac To.....

Guest BERNESES

By Guest BERNESES
in Publications & Publicity

Recommended Posts

DingoGirl Enthusiast
DingoGirl
Posted

All good ideas Amybeth....but we must also make them understand our PAIN and SUFFERING while having these big food parties!!!

I wonder if we should make the gluten-free food we serve them taste really ghastly, so they feel even MORE sorry for us? ;)

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Guest BERNESES
Guest BERNESES
Posted
:lol::lol::lol::lol::lol:

this is fantastic....

oh and by the way, Bev and everyone, I think CRAZY is actually when you fully lose touch with reality, right?....unfortunately that never happened to me, because I think that would have been enormously more enjoyable.... ;)

OH I HEAR YOU!

All good ideas Amybeth....but we must also make them understand our PAIN and SUFFERING while having these big food parties!!!

I wonder if we should make the gluten-free food we serve them taste really ghastly, so they feel even MORE sorry for us? ;)

:lol::lol::lol::lol::lol::lol::lol: LMAO

mellajane Explorer
mellajane
Posted

Well hopefully then you are like every other celiac you wan toto do more for the cause.... Before I knew I hab celiac I was a Caterer, challenging yes.... so now I am trying to make my desserts gluten free and sell them.. This disease is so new getting involved now is going to be a very very great thing. Do what you can use your skills and your heart to help. I wish you the Best of Luck.. Good for You!

OK- so I NEED something to get me going again after everything that's gone on the last 3 months (quick version: had gall bladder out, took PhD exam, 36 year old husband had stroke, and now I have C Diff). I need something to look forward to, to strive for..... no, finishing my PhD is all well and good, but something more than that. That's like my career.

So, I was thinking I wanted to do something to raise Celiac awareness and money for Celiac research and be the first person with Celiac's to..... and that's where I get stuck. I want it to be something challenging, that I have to train for, but not too extreme. Don't want to be the first person with Celiac's to climb Mt Everest (too easy :P ). Something that I can raise money for and traon for between now and June 2007 because I could do it over next summer.

So, of course I've come up with silly ideas like:

1. First Celiac to try every gluten free beer in the world :P (OOH YEAH!!!!!!)

2. First Celiac to swim her way cross country (not literally- but drive from state to state and swim in at least one river/ocean/lake in every state (check out www.swimmingholes.org)

3. First Celiac to eat a pizza without keeling over (not worth it)

But I'm having trouble thinking of ideas that aren't too outrageous (like surfing on every continent which I would KILL to do but I have a hard time believing anyone would give me money to do this. Too fun!)

Marathon running is out (no back).

Someone biked across the US last summer to raise Celiac awareness so that's already been done.

Lets see- I like to swim, surf, ski, photograph, travel, walk, hike,

Looking for inspiration

Funny and outrageous ideas totally welcome!!!!

tiredofdoctors Enthusiast
tiredofdoctors
Posted

If you want them to feel our pain, then let's do this: Have the world's largest Celiac pizza-eating convention . . . . and then hold the Guinness Book of World Record for the largest number of port-a-potties used during a 24 hour time period!!!!! :lol:

jerseyangel Proficient
jerseyangel
Posted
If you want them to feel our pain, then let's do this: Have the world's largest Celiac pizza-eating convention . . . . and then hold the Guinness Book of World Record for the largest number of port-a-potties used during a 24 hour time period!!!!! :lol:

(Shuddering :unsure: ) I wouldn't even want to think about that! :o

Guest BERNESES
Guest BERNESES
Posted

:lol::lol::lol::lol:

OUCH!!!!!!!!!!!!!!!!

penguin Community Regular
penguin
Posted
If you want them to feel our pain, then let's do this: Have the world's largest Celiac pizza-eating convention . . . . and then hold the Guinness Book of World Record for the largest number of port-a-potties used during a 24 hour time period!!!!! :lol:

That's funny, my mom was going to go to a gluten-free vendor fair in NY for me but she had a UTI and didn't want to go because she said, "I don't want to be somewhere and have to worry about there not being a bathroom."

I laughed and said, "mom, think about this for a second: It's a building full of celiacs, trust me, there will be bathrooms EVERYWHERE!" :P

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tiredofdoctors Enthusiast
tiredofdoctors
Posted
:lol::lol: That's a hoot!!!!! :lol::lol:
Sweetfudge Community Regular
Sweetfudge
Posted

OMG THis sounds like so much fun! I really like the book idea. I looked on the chickensoup.com page and they have proposal ideas. What do you all think? I would love to be a part of putting this book together. I would also be very interested in a photography book...avid photographer here! :D I'd do a bike riding thing too...that would be fun!

Even better news...I have no life!!!!! So, if anyone is really serious about any of this, email me, cuz I'm all over it! I say let's start crackin' guys! Who can we get to help fund this, what should we do...LETS GO!!!

Seriously drop me a note, I'm so full of energy and ready to spread the celiac awareness to the WHOLE WORLD!!!

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    • ElenaM
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      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
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      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
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