Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Not Celiac! But......


ArtGirl

Recommended Posts

ArtGirl Enthusiast

I got the results of my Enterolab tests yesterday. It was only one week since they received the samples - quick turnaround!

I have two gluten senstitive genes (DQ3/7 and DQ1/6 - not the ones that predispose to celiac). No malabsorbtion. So my conclusion is that I haven't developed celiac. I'm almost 60 now and have had digestive symptoms for as long as I can remember, at least as far back as junior-high days. So I figure that if I was going to develop celiac I'd have done so long before now.

I'm happy to learn there's no malabsorbtion problem. I've been overweight most of my adult life so that would seem bear this out.

I'm glad I had the genetic test run because I now know that my son definitely has one of these genes from me (who knows what he got from his father!). He has had asthma since he was a kid and still has it, although it's not severe. So, one of these days I'll talk to him about how the asthma could be caused from gluten - although I'm not sure he'll believe it.

This is unrelated, sort of, but I'm puzzled about the Fecal Fat Score that is used to determine malabsorbtion. I had my gall bladder removed in 1975 and was told that I wouldn't be able to digest fats very well after that. And, I wasn't - but here in the last ten years or so I haven't had as much problems seemingly). But, according to the test, I am able to digest fats now, if this test result is to be believed, and I don't doubt it. I see a kenesiologist now and then (a type of chiropractic) and he said he had been told that a gall bladder can grow back, and when he was in training and was disceting a cadabra, it had a regrown gall bladder! (wierd, huh!) I'm wondering if mine grew back and because of this I am able to digest fats. (I'm going to email Enterolab about this and see what they say). Anyone here run across this before?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

I'd never heard of one growing back, but I know tonsils can, so it seems possible.

I'm not sure if I'm celiac or not, but like you, I know I am gluten and casein intolerant. I had a colonoscopy done last summer and it showed no damage, but this was before my symptoms got really, really bad, so maybe the damage occured between then and April, not that it matters. I refer to myself as celiac because it just seems easier that way...

mamaw Community Regular

I really don't believe one can grow a new gallbladder. Maybe some weird doc didn't take it all to begin with or it is a fluke....My question is if one person can grow new body parts why can't everyone???//

It sounds like science fiction ......

mamaw

eLaurie Rookie

Gallbladders cannot 'grow back'. They're storage organs for bile produced by the liver; bile still is produced by the liver and is delivered directly to the GI tract after the gallbladder is removed. This causes irritation to some patients, none at all to others, and some like you for a period of time after which the body adjusts.

Kinesiologists are trained in body mechanics, not organ function. This guy probably saw a tumor or perhaps scar tissue on the cadaver he was examining and made an incorrect assumption that since tonsils (lymphatic tissue) can grow back, anything could. ....Don't my dialysis pts wish!?!??

ArtGirl Enthusiast

Well, I wondered about the gall bladder thing. It's not something I wanted to ask an MD 'cause he/she'd just make me feel stupid.

Thanks for the feedback.

eLaurie Rookie
Well, I wondered about the gall bladder thing. It's not something I wanted to ask an MD 'cause he/she'd just make me feel stupid.

Thanks for the feedback.

You're welcome. It all gets confusing, I know. I get confused about medicine and nutrition on a daily basis ...and get paid for it. :D I feel so sorry for people with health problems these days who don't have health care provider friends or family. Unless you have great googling skills and are able to discern what is or isn't trustworthy info, it's difficult.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.