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Should I Look For A New Doctor?

munchkinette

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munchkinette Collaborator
munchkinette
Posted

OK, so I've been gluten-free for about 6 months, and I'm still TIRED. All the time. Nothing I try helps. I told my doctor last week during my physical, and she did all the tests again including iron and thyroid tests. Everything is in the normal range, but still at the very low end of the normal range. What should my next step be? I've been complaining about being tired for a few years, and she keeps running these tests, but then we don't take a next step. I've talked about this with my psychiatrist (a doctor, not a therapist) and he seems to think that my general doctor needs to do something more. I'm just not sure what to do or where to look.

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ravenwoodglass Mentor
ravenwoodglass
Posted
OK, so I've been gluten-free for about 6 months, and I'm still TIRED. All the time. Nothing I try helps. I told my doctor last week during my physical, and she did all the tests again including iron and thyroid tests. Everything is in the normal range, but still at the very low end of the normal range. What should my next step be? I've been complaining about being tired for a few years, and she keeps running these tests, but then we don't take a next step. I've talked about this with my psychiatrist (a doctor, not a therapist) and he seems to think that my general doctor needs to do something more. I'm just not sure what to do or where to look.

Are you supplementing with iron and sublingual B12? If not I would start. I wish I could be of more help.

CarlaB Enthusiast
CarlaB
Posted

The thyroid tests can be inaccurate. Do a search on Broda Barnes, a medical doc who pioneered research on other ways to test. He came up with a basal temperature test that is more accurate. I know I was subclinical low thyroid and taking some over the counter sure helps me a lot!!! It brought my temps up, too.

My doc always has tested hemoglobin for iron, but I had another doc do an iron saturation test. You might ask for this as well. I don't really know the difference, but it might be worth looking into.

eKatherine Apprentice
eKatherine
Posted

I knew a guy who said he found after giving up milk that it was what had caused his constant fatigue and brain fog.

munchkinette Collaborator
munchkinette
Posted
  • Author

Well I don't have a whole lot of dairy. I use lactaid on cereal. Besides that, I only have dairy in cheese form.

I've had the CBC (blood count) and ferritin.... maybe some other ones for the iron tests. I've had TSH and Free T4 for the thyroid.

Rikki Tikki Explorer
Rikki Tikki
Posted

I don't know, just based on when you went gluten free you haven't been gluten-free for that long, it's all relative to how long you were sick before diagnosis.

Have you had all your vitamin levels checked? The one's off the top of my head, B, K, D, folic acid? If all levels have been checked give your body some time to recover. It has taken me almost 3 years.

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    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
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      By Scott Adams · Posted

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    • xxnonamexx
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    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
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