Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Scary Experience

jennyj

By jennyj
in Coping with Celiac Disease

Recommended Posts

jennyj Collaborator
jennyj
Posted

Yesterday afternoon I had a philly steak sandwhich(no bun) from a place that is aware of my condition and tries really hard to fix my food. About half an hour after eating I felt the familiar rumble. I went to the bathroom and realized that I was going to be awhile so I left work and went home. After several trips to the bathroom, and (sorry) vomitting once I went to stand up and all my muscles started shaking to the point I had to hold on to the walls to get to the bedroom. I sat on the side of the bed and wondered what was going on. I looked at the clock and it was 3:32, the phone rang and it was my son checking on me. He said "Well I'll let you get back to sleep." I looked at the clock because I hadn't been sleeping and it was 4:05. I don't know if I passed out, fell asleep, or what. The rest of the eving I was weak and didn't eat. Any ideas???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted

Hope you're better this a.m. Sounds like you got glutened big time. Don't know about all of your symptoms, but it does sound like it was a shock to your system.

Annette

jennyj Collaborator
jennyj
Posted
  • Author

I am still pretty weak but better. Thanks. I want to feel better for supper b/c it's our 26th anniversary and we have big plans.

taz sharratt Enthusiast
taz sharratt
Posted
Yesterday afternoon I had a philly steak sandwhich(no bun) from a place that is aware of my condition and tries really hard to fix my food. About half an hour after eating I felt the familiar rumble. I went to the bathroom and realized that I was going to be awhile so I left work and went home. After several trips to the bathroom, and (sorry) vomitting once I went to stand up and all my muscles started shaking to the point I had to hold on to the walls to get to the bedroom. I sat on the side of the bed and wondered what was going on. I looked at the clock and it was 3:32, the phone rang and it was my son checking on me. He said "Well I'll let you get back to sleep." I looked at the clock because I hadn't been sleeping and it was 4:05. I don't know if I passed out, fell asleep, or what. The rest of the eving I was weak and didn't eat. Any ideas???

i feel like this when glutend but am not phisically sick. if these are your regular symptoms of glutening dont worry you will return to normal soon otherwise if its not you may have some food poisoning, go to your doc if you are unsure.

Lymetoo Contributor
Lymetoo
Posted

Whew! Hope you feel better soon!

kbtoyssni Contributor
kbtoyssni
Posted

Weird. Something similar happened to me a few weeks ago. I started getting really weak and confused and could barely make it up the stairs to my apartment. Then I started shaking uncontrollably and was freezing cold even though it was in the 90s that day. I threw up and then pretty much passed out because I felt like I was going to die. The next day I stayed home from work because I felt like I was recovering from the flu. Not sure if this is the same thing. I couldn't trace it back to gluten and I never react to gluten like that so I have no idea.

jennyj Collaborator
jennyj
Posted
  • Author
Weird. Something similar happened to me a few weeks ago. I started getting really weak and confused and could barely make it up the stairs to my apartment. Then I started shaking uncontrollably and was freezing cold even though it was in the 90s that day. I threw up and then pretty much passed out because I felt like I was going to die. The next day I stayed home from work because I felt like I was recovering from the flu. Not sure if this is the same thing. I couldn't trace it back to gluten and I never react to gluten like that so I have no idea.

Sounds similar. I was cold too and wrapped up in a blanket with it 98 outside.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Jenny, that sounds more like food poisoning to me than a gluten reaction. But since it came back out both ends in a big hurry :blink: you may have gotten rid of whatever it was quick, and will probably be better soon. I hope you'll be okay for your anniversary celebration!

jennyj Collaborator
jennyj
Posted
  • Author
Jenny, that sounds more like food poisoning to me than a gluten reaction. But since it came back out both ends in a big hurry :blink: you may have gotten rid of whatever it was quick, and will probably be better soon. I hope you'll be okay for your anniversary celebration!

Thanks for your concern. I am felling better.

andrew1234 Newbie
andrew1234
Posted

Actually, if you have severe diarrhea combined with vomiting than you could develop hypokalemia, which is potentially serious. Next time it happens I would go to the E.R. for fluid and electrolytes replacement.....although you could have just been tired/dehydrated.

Daxin Explorer
Daxin
Posted

I would say gluten except for the weak muscles thing. I agree with Ursula, it sounds more like food poisoning than anything. Hope you are feeling better this morning.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    2. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    3. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    4. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
    5. Scott Adams
      - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,913
    • Most Online (within 30 mins)
      7,748
    Jennrhart
    Newest Member
    Jennrhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.