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weathertopmama

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weathertopmama Rookie

Hi, I'm Amy. Nice to meet you! :)

Our story is long and convoluted and painful, but sadly typical, so I'll spare you the details ;) .

The short version is that I have celiac disease and at least 3 of our 4 sons have it, too. I think the fourth would have been diagnosed later if he'd continued on a regular diet. The older two showed no symptoms until they were over 6 years old, and the blood tests were the same for all.

We all eat gluten-free, even DH does at home. We've been gluten-free for about a year. I try really hard to put the tough stuff behind us and just be happy! The boys are doing really well now but we had some very hard times.

I'll admit the costs of gluten-free food are killing us! And I've accidentally glutened us all twice in the past month, after being successful for a really long time :rolleyes: .

Anyway I'm sure I'll tell more of our story as time goes by, I look forward to meeting you all!


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jennyj Collaborator

Welcome. You will find this site a place of solace, understanding, and a good place to vent without being judged.

Lisa Mentor

Hey Any:

Welcome, but won't spend too much time on that. Carriefaith, on this site has some wonderful gluten free recipies and they go on forever, many, many good things that are easy and good. Do a search on "recipies".

I haven't been feeling too well this week, so I will pass on to others.

Glad you found us, You will never meet a more informed, comforting place than here.

Lisa

dlp252 Apprentice

Hi and Welcome!!!

plantime Contributor

Welcome to the board!

taz sharratt Enthusiast

hi amy, nice to meet you to. welcome. you will find this site really helpfull.

flagbabyds Collaborator

¡¡welcome!!


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weathertopmama Rookie
:) Thanks for the welcome! :D
Sarah8793 Enthusiast

Welcome Amy! :)

I love this community. I am newly gluten free and addicted to this board. :rolleyes:

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    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
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      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
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      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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