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Washington Dc

Beesonic

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Beesonic Newbie
Beesonic
Posted

Would love to find a few fellow celiacs to navigate the DC food scene with me. Maybe a monthly dinner group? Write me!

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M-3 Gal Rookie
M-3 Gal
Posted

Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

  • 2 weeks later...
EricaDC Newbie
EricaDC
Posted

I would be interested in a monthly dinner! I live in the district in NW.

happygirl Collaborator
happygirl
Posted

i am currently in vabeach, but may be moving to nova---so maybe i can join :)

  • 3 weeks later...
Tim-n-VA Contributor
Tim-n-VA
Posted

I live in Burke, VA. New to all of this. I spent the weekend looking for gluten-free stuff at local stores. Wegmans seemed to have the most friendly labeling but I haven't tried any of it.

KaitiUSA Enthusiast
KaitiUSA
Posted

I live near Frederick MD

  • 2 months later...
mom2jpb Newbie
mom2jpb
Posted
I live near Frederick MD

Did you guys get a dinner group going? I live in Laurel. I was diagnosed just a few weeks ago. The support group in Annapolis sometimes does lunch together, but I don't think I've heard about a local group getting together for dinner.

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  • 2 months later...
gbrad71 Newbie
gbrad71
Posted
Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

I live in Falls Church, VA and was diagnosed two years ago after having three blood tests done with celiac disease. I stayed in denial for a very long time and keep eating what I wanted to eat, including pizza, hot dogs (the buns) etc. Eventually just got tired of the pain in my joints, gut, discomfort, sadness etc, so about a month ago I completley stopped eating anything with wheat rye or barley. I feel so much better now, and I am off the meds now the doctor was giving for the pain I was experencing and that is wonderful. Me and my fiance (she has IBS) are always looking for restrurants that we can go to in the area, places to buy gluten free stuff etc. so I wanted to send you a quick hello, because I would very much want to meet/talk to others in the area that have gluten intolerance as I do. With this diet we need all the group support we can get. I wish there was some kind of meeting every week/month that people in the area could attend. Hope to talk to you soon!

Greg

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    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

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