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Washington Dc

Beesonic

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Beesonic Newbie
Beesonic
Posted

Would love to find a few fellow celiacs to navigate the DC food scene with me. Maybe a monthly dinner group? Write me!

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M-3 Gal Rookie
M-3 Gal
Posted

Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

  • 2 weeks later...
EricaDC Newbie
EricaDC
Posted

I would be interested in a monthly dinner! I live in the district in NW.

happygirl Collaborator
happygirl
Posted

i am currently in vabeach, but may be moving to nova---so maybe i can join :)

  • 3 weeks later...
Tim-n-VA Contributor
Tim-n-VA
Posted

I live in Burke, VA. New to all of this. I spent the weekend looking for gluten-free stuff at local stores. Wegmans seemed to have the most friendly labeling but I haven't tried any of it.

KaitiUSA Enthusiast
KaitiUSA
Posted

I live near Frederick MD

  • 2 months later...
mom2jpb Newbie
mom2jpb
Posted
I live near Frederick MD

Did you guys get a dinner group going? I live in Laurel. I was diagnosed just a few weeks ago. The support group in Annapolis sometimes does lunch together, but I don't think I've heard about a local group getting together for dinner.

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  • 2 months later...
gbrad71 Newbie
gbrad71
Posted
Hey, we live in Fairfax, VA and I am trying to find some fellow dinners, if you will....let me tell you, I have not even been officially diagnosed yet, however I have learned so much so far about allergies. It is difficult because we use to eat out almost every day.....so it is a change to say the least. I would love to chat.

Lisa

I live in Falls Church, VA and was diagnosed two years ago after having three blood tests done with celiac disease. I stayed in denial for a very long time and keep eating what I wanted to eat, including pizza, hot dogs (the buns) etc. Eventually just got tired of the pain in my joints, gut, discomfort, sadness etc, so about a month ago I completley stopped eating anything with wheat rye or barley. I feel so much better now, and I am off the meds now the doctor was giving for the pain I was experencing and that is wonderful. Me and my fiance (she has IBS) are always looking for restrurants that we can go to in the area, places to buy gluten free stuff etc. so I wanted to send you a quick hello, because I would very much want to meet/talk to others in the area that have gluten intolerance as I do. With this diet we need all the group support we can get. I wish there was some kind of meeting every week/month that people in the area could attend. Hope to talk to you soon!

Greg

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  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

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      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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