Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About Medical Braclets/necklaces?

dahams04

Recommended Posts

dahams04 Apprentice
dahams04
Posted

Does anyone have one for thier kiddos? Hunter is starting preschool next month, (they switch subs some days.) I think I am going to get him one. What should I put on it? TIA!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jayhawkmom Enthusiast
jayhawkmom
Posted

My daughter has one, as she's allergic to peanuts. She's 5 and has been wearing one since she was 17 months old. I might have to order her another one. Her's says, "Peanut Allergy, Call Immediately" - but I'm thinking of changing it to "multiple food allergy, severe peanut allergy."

Personally, I think it's a good idea. Even if you don't have an actual "medic alert" bracelet, some kind of identification bracelet is a good idea. Her's is a "genuine" medic alert, so it's connected to a number, which is connected with her entire medical history - accessable by EMT's /Doctors at a moments notice.

Since my dh and I are both "techie dorks" - I've given much thought to the "flash keychain" so I don't have to continue to pay for medic alert. It's a flash drive that plugs into a USB port - containing all pertinent information. You can purchase them with the medical logo on it, or just have a normal one that can be accessed.

Anyhow, I like the idea.

Jodele Apprentice
Jodele
Posted
Since my dh and I are both "techie dorks" - I've given much thought to the "flash keychain" so I don't have to continue to pay for medic alert. It's a flash drive that plugs into a USB port - containing all pertinent information. You can purchase them with the medical logo on it, or just have a normal one that can be accessed.

Anyhow, I like the idea.

That is a great Idea!!! :D:D

I am a computer tech and I never thought of that I have a flash keychain all ready. I could have one of those medical alert charms glued to it. I have a bad reaction to anasesia (sp). I almost died thie fist time I had surgry. I like to wearing braceletts and neckleces. but I can put that on my keyring and have it with me all the time. Thanks for that great info.

Jodele

Ursa Major Collaborator
Ursa Major
Posted

I have multiple medical problems, and just got a new medic alert bracelet. I think to get one just for celiac disease is a good idea for children, as people will take their gluten intolerance much more serious if they wear one, I think.

I would just have on it: "Celiac disease, intolerant to wheat, rye, barley, oats", so that people who don't know what celiac disease is, will able to read what foods he can't have. Then, if he can't explain it, either, he can tell them to read what his bracelet says. You might want to get him one of those sports straps, as they are more rugged than a thin chain. Here is a link to the sports bands Open Original Shared Link

Here is the link to what choices they have, including the new usb flash drive device with the information, which is a key ring. Pretty cool, too, for adults. Open Original Shared Link

skipper30 Enthusiast
skipper30
Posted

We got the id for our 3 year old who has Celiac. We also have a few t shirts that say..food allergy, or do not feed me with out talking to my parnets first. He is ok with the id bracelet...but he loves the shirts...and others have commented on them as well. He wears the shirts when we have get togethers with mulitple families or to church outings...hope that helps.

gfp Enthusiast
gfp
Posted
That is a great Idea!!! :D:D

I am a computer tech and I never thought of that I have a flash keychain all ready. I could have one of those medical alert charms glued to it. I have a bad reaction to anasesia (sp). I almost died thie fist time I had surgry. I like to wearing braceletts and neckleces. but I can put that on my keyring and have it with me all the time. Thanks for that great info.

Jodele

I keep my passport and other stuff on mine.

3 yrs ago on vacation I lost my wallet with ID, driving license and everything ... I found a internet cafe and printed out the relevant stuff and my bank details, photo ID etc. and my girlfriend who had previously laughed at the idea asked for one for her birthday.

Adding medical info is a great idea.... perhaps for kids a simple bracelet as well which says medical detials on USB key???

flagbabyds Collaborator
flagbabyds
Posted

ive got 3 (one necklace, two bracelet, that i wear most of the time. one for celiac, one for asthma, and one for my other food allergies. it works great and now i also have ID all the time

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I think I will be getting one since I have food allergies and I will put celiac disease on the bracelet as well.

dahams04 Apprentice
dahams04
Posted
  • Author
We got the id for our 3 year old who has Celiac. We also have a few t shirts that say..food allergy, or do not feed me with out talking to my parnets first. He is ok with the id bracelet...but he loves the shirts...and others have commented on them as well. He wears the shirts when we have get togethers with mulitple families or to church outings...hope that helps.

What does his bracelet say? I like the sports bracelets listed above, but I dont see where to order them...?

Ursa Major Collaborator
Ursa Major
Posted
What does his bracelet say? I like the sports bracelets listed above, but I dont see where to order them...?

Right now (until 4:00) the medic alert site isn't accessible, so I couldn't go and look. But I know you order right from the site, I've done it (from the Canadian site, of course). You have to become a member at the same time, since they keep your info, so doctors or medics can call them for details, doctor's phone no. etc. I'll have another look later, when they're back online.

skipper30 Enthusiast
skipper30
Posted

Cooper's bracelet just says Celiac Disease. However...I think that having that as well as all of the pertinent info on a USB key chain would be a fab idea...I mean it seems that some of these GI doc's know squat about Celiac...how could you expect a ER doc to be in the know....Try these links:(hope they work)

Bracelet: www.n-styleid.com (lots of cute kid choices)

Stickers:www.safetystickerstore.com or www.nurserysafe.com

Tshirts: www.cafepress.com (just search for food allergy ) or www.allergators.com

We use a combination of all of these things depending where we are going.

Dallas

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748
    M A Humphries
    Newest Member
    M A Humphries
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.