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Allentown/bethlehem/easton Support Group?

Guest GlutenFreeGirlfriend

By Guest GlutenFreeGirlfriend
in Introduce Yourself / Share Stuff

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Guest GlutenFreeGirlfriend
Guest GlutenFreeGirlfriend
Posted

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

  • 2 weeks later...
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daisy232 Newbie
daisy232
Posted
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

Did you ever find your support group? How long have you known that you have celiac disease? Are you having a hard time doing the new lifestyle? I have been gluten-free for a couple of years, and it is still hard!!

Let me know if you need any receipes for breads or whatever!!

Tricia, Kutztown, Pa

princealbertofpa Newbie
princealbertofpa
Posted
I'm looking for a support group in the Lehigh Valley area to do group dinners with or just chat and get together in general.

I e-mailed the contact person for the Bethlehem group that I found on this website, but she said that she is no longer involved. She told me she would forward my e-mail along to the group's current secretary, but I haven't heard anything back yet.

Any Lehigh Valley Celiacs out there?? :P

My husband was recently diagnosed with celiac disease, along with my niece (6 yr old). I do not know of any support groups in the Lehigh Valley, but I can inform you of what I know so far. Wegman’s is a great place to buy gluten-free foods and their list is expanding everyday. You do not have to go to the gluten-free aisle either! Their labeling is changing to include gluten-free foods. You can also go online and print out all of their gluten-free items. NCCC is offering a celiac cooking class on October 16th; $19 for the class & $16 for supplies. There is an awesome bakery in Philly that is 100% gluten-free. It is a little pricey, but very high quality. I have made several baked goods using their flour mixture and the results are incredible! I have tasted a lot of gluten-free foods that I would not even feed to my dogs!! Here is the link to the bakery: Open Original Shared Link. They ship and since we are so close, we can order almost anything off of their list.

  • 10 months later...
gfgirl23 Newbie
gfgirl23
Posted

Hi,

I live in Allentown and am a celiac. My mother is too and we'd like to form a Lehigh Valley gluten-free group. Let us know!! :)

blueeyedmanda Community Regular
blueeyedmanda
Posted

Wegmans is the best store possible!!! They aren't changing their labels, they have been doing the gluten free labeling, the G in the orange circle for quite a few years. Hello from Harrisburg!

  • 9 months later...
starrymazed Rookie
starrymazed
Posted

Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

  • 2 weeks later...
RunnerGrl Newbie
RunnerGrl
Posted
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

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mamaw Community Regular
mamaw
Posted

Hi Everyone

I'm not in your area but I have started a gluten-free group on the other side of the state! We had nothing here & shopping is always at least an hour or more away. It has become a large group & I line everything up each month on my own. I have people who have survived on only five foods for years !!!! I'm so glad I'm able to bring happiness back into their lives...

I can help you in regards to the best of best in gluten-free & help satisify your cravings!!! Feel free to contact me through a private pm...

blessings

mamaw

starrymazed Rookie
starrymazed
Posted
Hi Starry

I too have been recently diagnosed and while I thought I was going to cope really well, I am finding that I am having a really difficult time with it. I am in the LV...did you get any response?

~Kris

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

  • 5 weeks later...
mac0521 Newbie
mac0521
Posted
Has anyone heard about a group in the valley yet? I am newly gluten free, and really have no support. I live in Lehighton, but am willing to go down into the valley providing gas prices do not increase too much more! :rolleyes:

Hello - I live in Macungie as was just diagnosed with Celiac .

We do have a very good support group in the Lehigh Valley - have you gotten the information on it yet?

Maureen

mac0521 Newbie
mac0521
Posted

:rolleyes:

Hello! Nope, I have not heard much. Right now I am doing a gluten challenge of sorts, so that I can have my biopsy done on June 5th. I cannot wait to feel better again! Eating out with my family is what is hardest for me, as hardly anything is gluten free :angry: However, in case you never heard of it, there is a pizza place in Bethlehem called Manny B's, and they serve gluten free pasta dishes as well as pizza. As soon as my biopsy is done, I am going right back to a gluten-free diet, regardless of the results, and I am going to go to Manny B's for sure. They are located on Freemansburg Ave if you are interested, and they have a web site with their menu www.mannybspizza.com

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

RunnerGrl Newbie
RunnerGrl
Posted
:rolleyes:

HERE IS THE INFORMATION ON THE Lehigh Valley Celiac Support Group meets five times a year at 2166 S. 12th Street in Allentown. Speakers and participants provide information, tips and support, covering everything from restaurants and products to health concerns. They have food you can try and recipes to share. You can even participate in a food co-op, saving you money and allowing you to buy in smaller quantities. For more information, contact Kathleen Heist at 610-767-1622 or Beverly Kistler at 610-776-1178.

Neet meeting is July 7 - I hope this helps - Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!

mac0521 Newbie
mac0521
Posted

Great -I will be at the July 7 meeting. I hope to see you there. Maureen

Thanks so much for getting back to me! I will definitely contact someone about it!
starrymazed Rookie
starrymazed
Posted

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

mac0521 Newbie
mac0521
Posted

Thank you for this information! I was trying to get a hold of someone regarding the meeting just yesterday!

Glad I could help - its tough doing it on your own in the beginning!

  • 3 years later...
ciavyn Contributor
ciavyn
Posted

Any news on this old topic? I'm new to the area and looking for restaurants and such to enjoy, and would love to connect with other gluten free folks in the area.

  • 10 months later...
ccassid1 Newbie
ccassid1
Posted

I'm a 42 year old living in Allentown who just got diagnosed last week. This was years after being pricked and pried by every specialist in the LV. I'm relieved to finally have a diagnosis, but yet frustrated! I don't know where to begin, ugh, but I'm happy I found this website (great info, but I'm overwhelmed ....Anyway, I spoke with Kathleen Heist (very nice person) from the LV support group and she told me they are meeting on April 24th and they have a guest speaker (Dr. Harmad). The meeting is at: 2166 S. 12th Street in Allentown at 7:00.  

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    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
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