Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test I Had A Few Years Ago....maybe A Clue?

dellatigre

Recommended Posts

dellatigre Newbie
dellatigre
Posted

Hi everyone. I am wondering of anyone can help me with this. I just found an older test I had....it is when I was trying to figure out what was wrong with me...why was I getting weaker and weaker and having more stomach problems? I had a Comprehensive Digestive Stool Analysis done through a chiropractor/natural doctor. The test is from Great Smokies Diagnostic Laboratory. My results were significant yet no one at that time knew what to make of them. The Immunology part of the test showed fecal sIgA. Normal ranges are from 44-183. Mine were 1, 130! REALLY high. I have no idea if this just means I have an autoimmune disease....or if it is specific for Celiac or another food allergy? I know it must be a clue but when I try to show my rheumatologist they say...I didnt do that test....and dont bother to look at it. BTW...Ihave been disgnosed with dermatomyositis but it has been difficult to treat...and I have a "GUT" feeling that I may have Celiac causing the immune problems.

Any help or info. would be great.

I am so grateful I found this board....

Rachael

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi everyone. I am wondering of anyone can help me with this. I just found an older test I had....it is when I was trying to figure out what was wrong with me...why was I getting weaker and weaker and having more stomach problems? I had a Comprehensive Digestive Stool Analysis done through a chiropractor/natural doctor. The test is from Great Smokies Diagnostic Laboratory. My results were significant yet no one at that time knew what to make of them. The Immunology part of the test showed fecal sIgA. Normal ranges are from 44-183. Mine were 1, 130! REALLY high. I have no idea if this just means I have an autoimmune disease....or if it is specific for Celiac or another food allergy? I know it must be a clue but when I try to show my rheumatologist they say...I didnt do that test....and dont bother to look at it. BTW...Ihave been disgnosed with dermatomyositis but it has been difficult to treat...and I have a "GUT" feeling that I may have Celiac causing the immune problems.

Any help or info. would be great.

I am so grateful I found this board....

Rachael

I think what you may want to do is to contact Great Smokies themselves. They should be able to tell you what the test is specific for. Are you gluten free yet?

dellatigre Newbie
dellatigre
Posted
  • Author

Thank you, thats a good idea. It says on the form that increased sigA means active infection or increased antigenic load....but that isnt telling me much. I will call Monday and see what I can figure out. I haven't started the gluten free diet yet. I am going in for some blood tests on Mon or Tues. I will wait and then start it. I actually WANT to start it. Even if the tests are negative I am going to do it. I just know it will be better to have an official diagnosis. Especially in my case. My docs want to start a very toxic chemo drug called Cytoxan or IVIG treatments. I am getting weaker and weaker. My diagnosis is dermatomyositis. Inflammed muscles....with a rash.....little blisters....sounds like the celiac rash.....

I just want to feel better....

Thank you again!

Rachael

I think what you may want to do is to contact Great Smokies themselves. They should be able to tell you what the test is specific for. Are you gluten free yet?
nettiebeads Apprentice
nettiebeads
Posted
Thank you, thats a good idea. It says on the form that increased sigA means active infection or increased antigenic load....but that isnt telling me much. I will call Monday and see what I can figure out. I haven't started the gluten free diet yet. I am going in for some blood tests on Mon or Tues. I will wait and then start it. I actually WANT to start it. Even if the tests are negative I am going to do it. I just know it will be better to have an official diagnosis. Especially in my case. My docs want to start a very toxic chemo drug called Cytoxan or IVIG treatments. I am getting weaker and weaker. My diagnosis is dermatomyositis. Inflammed muscles....with a rash.....little blisters....sounds like the celiac rash.....

I just want to feel better....

Thank you again!

Rachael

OOH, sounds like celiac disease to me. Why don't you go gluten-free the day of the tests? As soon as you get home even. There are lots of people on this board who haven't had the "official dx" but know that their body is better without the gluten. And by trying the gluten-free diet for three weeks, then reintroducing gluten to your system and monitoring all physical/mental reactions you are performing another test. It's the diet challenge and a valid dx tool. And some in the medical community think that it is the most reliable test there is! Try it, you might like the results! And it couldn't hurt! Please keep us posted - and don't do the chemo until after you try the gluten-free diet. If you're already weak, the chemo could seriously undermine what reserves you have left.

Hope you get the correct answers soon!

Annette

dellatigre Newbie
dellatigre
Posted
  • Author

Hi Anette,

Thank you for the reply. I am getting the tests on wed. and i am already preparing to start the diet. i am ready and willing for sure! i am thinking i may have other sensitivities too.....i eat a lot of soy. i am not sure yet what to avoid. probly corn too. i need to find a good list of the least allergenic foods and stick to those for a trial. than add one back in at a time. i am willing to try anything. one to get rid of the constant stomach/IBS problems and also to see if it effects my weakness....the "autoimmune inflammatory" disease i have been diagnosed with. i will wait to try the chemo like drug.....maybe i will otice improvement ina few weeks...at least a little. i hope!

thanks again!

BTW...it seems as though breakfast foods are the hardest to find gluten free.....any ideas. cream of rice seems to be one thing....

hope you are feeling well!

Rachael

OOH, sounds like celiac disease to me. Why don't you go gluten-free the day of the tests? As soon as you get home even. There are lots of people on this board who haven't had the "official dx" but know that their body is better without the gluten. And by trying the gluten-free diet for three weeks, then reintroducing gluten to your system and monitoring all physical/mental reactions you are performing another test. It's the diet challenge and a valid dx tool. And some in the medical community think that it is the most reliable test there is! Try it, you might like the results! And it couldn't hurt! Please keep us posted - and don't do the chemo until after you try the gluten-free diet. If you're already weak, the chemo could seriously undermine what reserves you have left.

Hope you get the correct answers soon!

Annette

nettiebeads Apprentice
nettiebeads
Posted

Breakfast- I usually have cereal - malt-o-meal fruity crispy whatever. It's gluten-free (for now at least. I always check bags to make the ingredients haven't changed). Coca pebbles is safe too. Grits are okay. There's eggs and fruit. Some people have reported great success with the specific carbohydrate diet. You might do a search on that in this forum. I'm glad you're trying the gluten-free diet and I hope it works for you. I know of two people who are having digestive problems and I wish that they would try the diet for just three days even!

Best of luck!

Annette

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,539
    • Most Online (within 30 mins)
      7,748
    antoniotorres
    Newest Member
    antoniotorres
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.