Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's The Deal With Soy?


mythreesuns

Recommended Posts

mythreesuns Contributor

I have read some people say that soy is poison, but for someone who can't have gluten and can't have milk, for crying out loud what's left!? LOL

I wouldn't even begin to know how to stay away from soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I have read some people say that soy is poison, but for someone who can't have gluten and can't have milk, for crying out loud what's left!? LOL

I wouldn't even begin to know how to stay away from soy.

Hi, for right now you may want to read the posts about it but I wouldn't even try to eliminate it until you have been gluten-free for a little while. If after a couple of months gluten-free/CF you are still having troubles then maybe consider eliminating soy and see if it helps. Many of us have troubles with soy, and there is some conflicting research out there about the effects of eating large amounts. For right now just cruise the posts and the net for info on it but IMHO you should spend awhile dealing with gluten-free/CF. You don't want to end up too overwhelmed. There are lots of folks who know more about soy than me and I am sure they will come on and perhaps give more detail. As for me I don't avoid soy, but I don't consume large amounts of it either.

ms-sillyak-screwed Enthusiast

Try GOATS MILK.

Mia H Explorer

Do you not drink milk because of the lactose or the casein?

I'm intolerant to the casein and goats milk also has casein.

I like almond milk, the original tastes like regular milk in cereal and cooking. For butter I used ghee which is clarified butter, has no lactose or casein in it. I buy it at the natural food store.

For ice cream I eat ben & jerry's sorbet.

For me my hair has been falling out so I am trying to go without soy and see if that helps. It was in my shampoo even.

I agree with others, get a handle on the gluten/milk thing first, worry about soy when you're up for it.

Mia

gfp Enthusiast
I agree with others, get a handle on the gluten/milk thing first, worry about soy when you're up for it.

Mia

Well the other way is cut out everything right at the beginning and then slowly introduce?

I think summer is perhaps the easiest time to do this if you decide.

One reason is that the casein allergy and lactose intolerance can both be exasperated by the gluten and damaged villi and many people find they can add limited amounts back after a while.

I'm not rabidly anti-soy but I definately watch it... Far too many people with one auto immune response seem to trigger others. My mother has almost identical glutening symptoms as myself (not surprising really) but she reacts really badly to soy. She spent (or more accurately wasted) a year of her life in misery after starting eating soy in any quantity (before this she was a vcery occiasional soy sauce person but not TSP or other soy products...

It took her a year to be REALLY gluten-free as well so its hard to tell but she now tolerates the small amount of soy in some of her meds.

IrishKelly Contributor

Does anybody know what is in soy (like maybe a protein?) that people cannot tolerate?

ms-sillyak-screwed Enthusiast

It contain nitrogen-fixing bacteria

sounds like poison to me

I'm intolerant to the casein and goats milk also has casein.

Thank you for bringing this to our attention.

I'm a little suprised my doc recomended GOATS MILK. As a infant I couldn't drink cows milk but I could drink goats milk. I wonder why? And the book 'Dangerous Grains' says people who can't tollerate dairy can drink goats milk, it has a different makeup.

I also found something else. This lady is very helpful and I have read her book.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
It contain nitrogen-fixing bacteria

sounds like poison to me

Nitrogen-fixing bacteria are actually a very important part of the ecosystem. "Nitrogen-fixing" refers to the fact that nitrogen in the air is in the form of an inert gas, and these bacteria have the ability to "fix" it with other atoms to form ammonia and nitrate, which are necessary for plant growth.

I don't know off the top of my head whether or not these are something that you'd want to be eating, but I wouldn't just write them off as poison.

Jeanne

Mia H Explorer

I'm a little suprised my doc recomended GOATS MILK. As a infant I couldn't drink cows milk but I could drink goats milk. I wonder why? And the book 'Dangerous Grains' says people who can't tollerate dairy can drink goats milk, it has a different makeup.

I also found something else. This lady is very helpful and I have read her book.

Open Original Shared Link

mythreesuns Contributor
Do you not drink milk because of the lactose or the casein?

I'm intolerant to the casein and goats milk also has casein.

I like almond milk, the original tastes like regular milk in cereal and cooking. For butter I used ghee which is clarified butter, has no lactose or casein in it. I buy it at the natural food store.

For ice cream I eat ben & jerry's sorbet.

For me my hair has been falling out so I am trying to go without soy and see if that helps. It was in my shampoo even.

I agree with others, get a handle on the gluten/milk thing first, worry about soy when you're up for it.

Mia

I believe it's the casein. When I tried to eliminate just the Lactose I only got limited results. I have a head full of hair, so if soy IS affecting me, it's not in that department! LOL

Well the other way is cut out everything right at the beginning and then slowly introduce?

I think summer is perhaps the easiest time to do this if you decide.

One reason is that the casein allergy and lactose intolerance can both be exasperated by the gluten and damaged villi and many people find they can add limited amounts back after a while.

I'm not rabidly anti-soy but I definately watch it... Far too many people with one auto immune response seem to trigger others. My mother has almost identical glutening symptoms as myself (not surprising really) but she reacts really badly to soy. She spent (or more accurately wasted) a year of her life in misery after starting eating soy in any quantity (before this she was a vcery occiasional soy sauce person but not TSP or other soy products...

It took her a year to be REALLY gluten-free as well so its hard to tell but she now tolerates the small amount of soy in some of her meds.

I actually started this whole journey by eliminating lactose, then added milk, then gluten. I really don't know if I could handle giving up any more right now! LOL

Well the other way is cut out everything right at the beginning and then slowly introduce?

I think summer is perhaps the easiest time to do this if you decide.

One reason is that the casein allergy and lactose intolerance can both be exasperated by the gluten and damaged villi and many people find they can add limited amounts back after a while.

I'm not rabidly anti-soy but I definately watch it... Far too many people with one auto immune response seem to trigger others. My mother has almost identical glutening symptoms as myself (not surprising really) but she reacts really badly to soy. She spent (or more accurately wasted) a year of her life in misery after starting eating soy in any quantity (before this she was a vcery occiasional soy sauce person but not TSP or other soy products...

It took her a year to be REALLY gluten-free as well so its hard to tell but she now tolerates the small amount of soy in some of her meds.

What kind of response did she have to it? What should I look out for?

I really don't think I'm having a reaction to it, but the only thing I do know is that my arthritis didn't rear it's ugly head until I went milk-free (and started injestion a lot more soy) but that seems like a pretty quick turn-around to me. Also, my migraines virtually DISAPPEARED after eliminating casein (and thus starting on the soy), so I don't know what to think.

gfp Enthusiast
I believe it's the casein. When I tried to eliminate just the Lactose I only got limited results. I have a head full of hair, so if soy IS affecting me, it's not in that department! LOL

I actually started this whole journey by eliminating lactose, then added milk, then gluten. I really don't know if I could handle giving up any more right now! LOL

What kind of response did she have to it? What should I look out for?

That's the problem, D, indigestion ... pretty much the same as celiac disease.

I really don't think I'm having a reaction to it, but the only thing I do know is that my arthritis didn't rear it's ugly head until I went milk-free (and started injestion a lot more soy) but that seems like a pretty quick turn-around to me. Also, my migraines virtually DISAPPEARED after eliminating casein (and thus starting on the soy), so I don't know what to think.

I know its like a minefield.

Like I say I'm not rabidly anti-soy, I just minimise it.

The point is loads of stuff has soy and I don't want to have to cope with eliminating it altogether at a later date through provoking something now.

I'm a little suprised my doc recomended GOATS MILK. As a infant I couldn't drink cows milk but I could drink goats milk. I wonder why?

People have been drinking goat/sheep milk for a lot longer than cows milk. Goat/sheep milk has been around since man was a hunter gatherer ... cows milk is mainly only a dietry item for the last 10,000 yrs.

eKatherine Apprentice
People have been drinking goat/sheep milk for a lot longer than cows milk. Goat/sheep milk has been around since man was a hunter gatherer ... cows milk is mainly only a dietry item for the last 10,000 yrs.

According to Dogtorj, cow's milk has only become a major component in the diet in the past 500 years, with the arrival of mass dairy businesses. Previously people mostly kept goats and sheep, which were more manageable.

I find that goat cheese is fine. I hate the taste of goat's milk, so I don't use it. Sheep's milk cheese give me the same casein reaction as cow's milk.

Different protein. Goat milk protein forms a softer curd (the term given to the protein clumps that are formed by the action of your stomach acid on the protein), which makes the protein more easily and rapidly digestible. Theoretically, this more rapid transit through the stomach could be an advantage to infants and children who regurgitate cow's milk easily. Goat's milk may also have advantages when it comes to allergies. Goat's milk contains only trace amounts of an allergenic casein protein, alpha-S1, found in cow's milk. Goat's milk casein is more similar to human milk, yet cow's milk and goat's milk contain similar levels of the other allergenic protein, beta lactoglobulin. Scientific studies have not found a decreased incidence of allergy with goat's milk, but here is another situation where mothers' observations and scientific studies are at odds with one another. Some mothers are certain that their child tolerates goat's milk better than cow's milk, and mothers are more sensitive to children's reactions than scientific studies.

Open Original Shared Link

Ovine vs. Bovine

Sheep's milk offers distinct nutritional benefits, containing 75 percent more protein than cow's milk and almost twice as much calcium, along with plenty of zinc, vitamin E, and vitamin C. Granted, sheep milk has a higher fat content, which gives it a creamy flavor. But this fat is more easily digested than the fat in cow's milk, making it an option for those with cow's milk allergies. With almost twice as many milk solids as cow's milk and high levels of casein, sheep milk yields twice as much cheese from fluid milk in a shorter amount of time. Most sheep's milk is used in cheese making, and popular cheeses include feta, asiago, ricotta, and Pecorina romano.

Open Original Shared Link

Wow, no wonder I react to small amounts of sheep's milk cheese. Byebye romano for good!

It looks like the dairy allergy or intolerance is a complex thing.

gfp Enthusiast
According to Dogtorj, cow's milk has only become a major component in the diet in the past 500 years, with the arrival of mass dairy businesses. Previously people mostly kept goats and sheep, which were more manageable.

I find that goat cheese is fine. I hate the taste of goat's milk, so I don't use it. Sheep's milk cheese give me the same casein reaction as cow's milk.

It looks like the dairy allergy or intolerance is a complex thing.

Open Original Shared Link

Yes I was giving the maximum lee-way since some cultures did or at least archaelogical evidence points that they did. Inparticualr the pre-dravidian peoples of the Indus valley...

With the exception of stilton and Parmigiano Reggiano there are really very few cheeses worth the name made from cows milk depending if you count buffalo as cow :D IMHO.

Also neither do goat or cheese products require pasturisation against TB and cheeses made from them contain many pro-biotics when not pasturised.

p.s. If you have never had real Parmigiano Reggiano it is nothing resembling the "copies" made in the US.

eKatherine Apprentice
Yes I was giving the maximum lee-way since some cultures did or at least archaelogical evidence points that they did. Inparticualr the pre-dravidian peoples of the Indus valley...

With the exception of stilton and Parmigiano Reggiano there are really very few cheeses worth the name made from cows milk depending if you count buffalo as cow :D IMHO.

Also neither do goat or cheese products require pasturisation against TB and cheeses made from them contain many pro-biotics when not pasturised.

p.s. If you have never had real Parmigiano Reggiano it is nothing resembling the "copies" made in the US.

I'd have to disagree with you. There are many types of cow's milk cheese I used to enjoy. It's just a matter of personal taste if you only have found two that you like.

But in any case, no cow's milk cheese is in my future, including Parmagiano Reggiano.

elye Community Regular

Back to the soy for a sec--I have been reading and abiding by everything Dr. Joseph Mercola has said for years now (www.mercola.com). He warns everybody to stay completely away from UNFERMENTED soy, which is the common stuff--tofu, food additives, TVP. But FERMENTED soy (tempeh, miso) is in fact very beneficial for your health, as all properly fermented foods are. Interesting...I haven't bothered to search out the fermented products as they are tougher to find and I'm still kind of new to all this. But Dr. Mercola is worth reading on all of this (you should hear what he has to say about GLUTEN)! :)

gfp Enthusiast

I'd have to disagree with you. There are many types of cow's milk cheese I used to enjoy. It's just a matter of personal taste if you only have found two that you like.

For me it was largely a backwards process. When I decided to reduce cow milk products I actually realised that most of the ones I actually REALLY liked were sheep or goats.

It might just be personal taste....but it might also be a bit of the body knowing what's good and bad?

I have to be really strict with myself over cheese in any event because I can't afford the calories so I started thinking, if I'm only having a small amount infrequently I should just buy what I really like regardless of cost.

When I did this I just found that nearly all the cheeses I really loved were sheep and goat and the odd buffalo but most of the chesses I could take or leave were cow. Like you point out cow cheese is a pretty new affair and most of the cheeses I like pre-date the dominance of cow milk.

But in any case, no cow's milk cheese is in my future, including Parmagiano Reggiano.
:(

mythreesuns Contributor

Well, I'm staying away from gluten and casein...and that's about all I can handle right now! LOL

I'm still pretty new to all of this, so I'll have to see how it goes as I'm off the gluten longer and longer.

Thanks, guys!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Son's legs shaking

    3. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    4. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.