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New Member - Long Standing Cs (long Post)

RKB-MD

By RKB-MD
in Coping with Celiac Disease

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

Welcome aboard! Hope we can help you with some great advice and accumulated knowledge on this board! Hope you are feeling better now too!

Karen

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mythreesuns Contributor
mythreesuns
Posted
For those who have irritating or downright hostile coworkers/ church members/ etc – just look them straight in the eye and say “steatorrhea” – when you start to define it, and they start to look ill, just laugh and walk away. If anyone DARES to hide wheat/oats/ barley and feeds it to you purposely, I’d bring them a Tupperware container with the results!

ROFLMAO!!!!! I love your attitude!

I have not been officially "diagnosed" as my blood test came out negative and the biopsy was negative (besides, it's just too rare to be likely, according to my dr.) but I have put myself on a gluten-free trial. Arthritis was the LAST STRAW FOR ME!

Welcome to the board. I look forward to feeding off your hard-earned experience!

mythreesuns Contributor
mythreesuns
Posted
Banana Daquiri --- I'll take that medicine :D

I think it's worth taking as a preventative measure. :D

VydorScope Proficient
VydorScope
Posted

RKB_MD,

I have not had time to read everything in this thread, I just wanted to extend a warm welcom to you !

Guest Robbin
Guest Robbin
Posted

From a personal standpoint (no doctor stuff here), I have found that when I have glutened, either intentially or unintentially, especially over a period of time - say a week on vacation with eating out every meal - when I am in the recovery period, I sometimes get reactions to foods I had not reacted to before. For example, about 6 years ago I thought I had developed a lactose intollerance, but I can associate it to a time when I was also consuming gluten. After several months of lactaid, and gluten free, I was then able to consume all dairy with the exception of a glass of milk - that still does me in. Weird as I can add real cream or 1/2&1/2 to coffee without issue.

I am aware that there is (was) a suggestion about a genetic link to lactose intollerance and sprue.

Hi and welcome :) I am wondering if perhaps you have a little problem with casein? The cream and the half and half would have more of the fat and less of the proteins. I can have clarified butter with no problems, but the casein is as bad a problem for me as gluten. I hope you feel better soon.

btw-love the idea of banana daquiri treatment--bananas to bind the D and the alcohol to numb the pain. Maybe a Jimmy Buffet song in there somewhere, lol. Take care.

elye Community Regular
elye
Posted

Welcome, Dr. Russ! I haven't been able to read all of this post, but I noticed several suggestions of things to ease glutening symptoms. Dr. Joseph Mercola talks a great deal about probiotics, and how a large dose of them works unbelievably well and quickly to fend off traveller's diarrhea. This may be something to try...I believe he suggested ten caplets initially, and another five an hour later, and that will take care of it. May help with us...

PJKR Newbie
PJKR
Posted

An MD with an open mind!!!! Wow! Hen's teeth!There are 4 MD's in my family and I've been to a lot of medical community events and all ,but have met maybe a handful of open minded MD's. You're special!

I'm new to this forum but have been gluten-free for quite some time. Self DX. (I was right.Gluten hurts!) I'm somewhat "into" home remedies. Bananas help. I don't drink often so no help there. I avoid too much rich food (restaurants usually are) and fast food(no offence anyone) isn't worth the money you spend on icky tasting food.Except IN and OUT.In California I never got sick there unless I overdid the fries.There isn't an IN and OUT in Texas so no fast food.

My best remedy is old fashioned and should be tried in very small amounts first! Catnip tea. I'm not a feline so, no, I don't get high. My cat will tho. I put several leaves of Catmint in water,boil it,add tea and a LOT of sugar because catnip tastes hideous. In summer I pour the whole cup over a PLASTIC cup of ice for a more refreshing,cool beverage in our H*llish Texas heat in the summer.

Don't mind my spelling I'm too lazy for spell check and I'm very dyslexic. Sorry.

Cautions about Catnip/ catnip teas. Catnip is kind of like Chamomeal. It's a naturally occuring "weed" from Europe that has seditive properties. It is not hallucinogenic(no DHT or alkaloid compounds),it IS a seditive for a lot of people so don't drive,use heavy machinery or make big decisions if you feel sleepy from it!Catnip/mint isn't regulated by any government agency. You'll have to try it on your own. I have never heard of a negative reaction but I'm never looked for them or done a comprehensive study or anything. I'm just a stay-at-home-mom.

It's in the mint family. If you don't tolerate real mint,don't bother trying it.

Easy to grow in full sun. In the right areas(moist,cool,loamy acid soil where you can grow Camellias,Azaleas etc... )it will turn into it's own version of Kudzu and choke out everything else! No joke! Choke out the grass and everything. Henbit is also in the mint family and it will take over the lawn. I grow mine in a container.

Let's say you live in a hot climate with alkaline soil and want to grow it. It will take over anywhere you water on any kind of regular basis. It will even grow in a pond.

So....if you'd like to grow Catnip/mint container it. If you have great soil container it over cement.PJ

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paw Apprentice
paw
Posted

Welcome Dr. Russ. I read more than I post because I feel like I have a lot to learn after nearly a year gluten-free.

Thanks for joining us and I look forward to your insights and posts. I hope you feel better soon from your glutening.

queenofhearts Explorer
queenofhearts
Posted
An MD with an open mind!!!! Wow! Hen's teeth!There are 4 MD's in my family and I've been to a lot of medical community events and all ,but have met maybe a handful of open minded MD's. You're special!

I'm new to this forum but have been gluten-free for quite some time. Self DX. (I was right.Gluten hurts!) I'm somewhat "into" home remedies. Bananas help. I don't drink often so no help there. I avoid too much rich food (restaurants usually are) and fast food(no offence anyone) isn't worth the money you spend on icky tasting food.Except IN and OUT.In California I never got sick there unless I overdid the fries.There isn't an IN and OUT in Texas so no fast food.

My best remedy is old fashioned and should be tried in very small amounts first! Catnip tea. I'm not a feline so, no, I don't get high. My cat will tho. I put several leaves of Catmint in water,boil it,add tea and a LOT of sugar because catnip tastes hideous. In summer I pour the whole cup over a PLASTIC cup of ice for a more refreshing,cool beverage in our H*llish Texas heat in the summer.

Don't mind my spelling I'm too lazy for spell check and I'm very dyslexic. Sorry.

Cautions about Catnip/ catnip teas. Catnip is kind of like Chamomeal. It's a naturally occuring "weed" from Europe that has seditive properties. It is not hallucinogenic(no DHT or alkaloid compounds),it IS a seditive for a lot of people so don't drive,use heavy machinery or make big decisions if you feel sleepy from it!Catnip/mint isn't regulated by any government agency. You'll have to try it on your own. I have never heard of a negative reaction but I'm never looked for them or done a comprehensive study or anything. I'm just a stay-at-home-mom.

It's in the mint family. If you don't tolerate real mint,don't bother trying it.

Easy to grow in full sun. In the right areas(moist,cool,loamy acid soil where you can grow Camellias,Azaleas etc... )it will turn into it's own version of Kudzu and choke out everything else! No joke! Choke out the grass and everything. Henbit is also in the mint family and it will take over the lawn. I grow mine in a container.

Let's say you live in a hot climate with alkaline soil and want to grow it. It will take over anywhere you water on any kind of regular basis. It will even grow in a pond.

So....if you'd like to grow Catnip/mint container it. If you have great soil container it over cement.PJ

Hey PJ, I have catmint in my garden. Think it's related to catnip but not exactly the same. (Cats still love to roll in it.) Do you think it would be safe to try a tea of it?

Leah

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