Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Insane?


jnclelland

Recommended Posts

jnclelland Contributor

I dunno whether I want you guys to talk me into this or out of it, but here goes:

I don't have any official diagnosis of anything. I've been wheat- and casein-free since my acupuncturist suggested it over a year ago, and completely gluten-free since October. I've just recently realized that soy is problematic as well, and I've been gradually finding all the places it hides and cutting them out. Since starting all this last summer, I've had huge improvements in eczema, anxiety, and a zillion little things, and I've never felt better in my life. I'm still in a state of denial/grieving about the soy (WAH - I miss Chinese food! I can find gluten-free soy sauce, but not soy-free soy sauce! :( ), but overall I'd rather be healthy.

I never had any GI-type symptoms until very recently, but the past few months I've had several episodes of sudden D that I'm sure were brought on by cross-contamination of some sort. They pass fairly quickly; usually it's just one rush-to-the-bathroom, or sometimes a few within an hour or so. But then I'm fine, except for feeling a bit dehyrated.

The thing is, I feel this need to know WHY. Is it gluten, or dairy, or something else? So I'm toying with the idea of trying some mini-challenges - a few bites of pasta, a few sips of milk, etc. - just to see which substances cause which reactions. Would this be totally insane???? I did try some plain yogurt a few months back, and it made my eczema break out, but this was before I started having problems with D. I haven't knowingly consumed any wheat in over a year, and the thought of it kind of freaks me out. But then, for all I know, my entire problem could be dairy, KWIM?

I guess what I'm really wondering is whether doing a mini-challenge could cause any long-term damage. If not, I suspect that curiosity will get the better of me eventually.

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Jeanne

I don't blame you for being curious. I know that Ursula did some challenges on herself a while back and posted the results.

Good luck with whatever you do--let us know :)

queenofhearts Explorer

About the gluten challenge, I sympathize with the spirit of scientific inquiry, but it sounds kind of scary to me.

Then again I've been diagnosed by biopsy so I feel like I already know the answer.

About the soy sauce, have you tried fish sauce? No, it doesn't taste the same, but you can sub it in recipes for a hit of Asian saltiness... if you haven't tried it, don't be put off by smelling the bottle-- if you just use a splash it isn't overpowering at all. Do check & make sure the brand you buy is gluten-free because some do contain wheat.

Leah

marciab Enthusiast

I had to retry wheat 3 times before I could give it up. So, I understand completely. Now, I can honestly say I am not interested in trying wheat ever again. Each time the reactions took me at least a week to get over.

I am still trying to convince myself that I should give up eggs. They kill me, but I keep trying them about once a month. The reaction time is only 2 days and only gas so they are much harder to give up.

So, I would say go ahead and enjoy whatever you decide to test with. Garlic bread, cake .. yum !! :D

jnclelland Contributor

I guess I'm just feeling frustrated because I had one of these D incidents yesterday, and I'd at least like to be able to tell people - like my doctor, for instance! - "This is what happens when I accidentally ingest X." But I don't really know whether X is gluten, dairy, or something else.

Don't get me wrong - I am NOT trying to see if I can eat gluten or dairy again. I'm happier and healthier without them. I'd just like to know what's responsible for these GI symptoms that I've never had before.

About the soy sauce, have you tried fish sauce? No, it doesn't taste the same, but you can sub it in recipes for a hit of Asian saltiness... if you haven't tried it, don't be put off by smelling the bottle-- if you just use a splash it isn't overpowering at all. Do check & make sure the brand you buy is gluten-free because some do contain wheat.

I didn't know they made gluten-free ones; do you know where to find them? (Of course, what's really a bummer is not being able to do take-out...)

Jeanne

lorka150 Collaborator

Thai Kitchen fish sauce.

mle-ii Explorer
I guess I'm just feeling frustrated because I had one of these D incidents yesterday, and I'd at least like to be able to tell people - like my doctor, for instance! - "This is what happens when I accidentally ingest X." But I don't really know whether X is gluten, dairy, or something else.

Don't get me wrong - I am NOT trying to see if I can eat gluten or dairy again. I'm happier and healthier without them. I'd just like to know what's responsible for these GI symptoms that I've never had before.

I didn't know they made gluten-free ones; do you know where to find them? (Of course, what's really a bummer is not being able to do take-out...)

Jeanne

Same here. I've thought about trying some glutened food to see what symptoms I get and to see if they match up with what I think the symptoms are for me when I think I accidently ingest it. Haven't had the guts (ha ha) to do it yet. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,862
    • Most Online (within 30 mins)
      7,748

    Donna Moxley
    Newest Member
    Donna Moxley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Peace lily
      Thank you ,it’s been a long road for me for having both now ,what upsets the most is that if they discovered that I also have cealiac earlier I would not have injested gluten if I was aware. Double whammy.
    • trents
    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • LowellFrancis
      The information you shared is very useful, thanks.
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.