Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Insane?


jnclelland

Recommended Posts

jnclelland Contributor

I dunno whether I want you guys to talk me into this or out of it, but here goes:

I don't have any official diagnosis of anything. I've been wheat- and casein-free since my acupuncturist suggested it over a year ago, and completely gluten-free since October. I've just recently realized that soy is problematic as well, and I've been gradually finding all the places it hides and cutting them out. Since starting all this last summer, I've had huge improvements in eczema, anxiety, and a zillion little things, and I've never felt better in my life. I'm still in a state of denial/grieving about the soy (WAH - I miss Chinese food! I can find gluten-free soy sauce, but not soy-free soy sauce! :( ), but overall I'd rather be healthy.

I never had any GI-type symptoms until very recently, but the past few months I've had several episodes of sudden D that I'm sure were brought on by cross-contamination of some sort. They pass fairly quickly; usually it's just one rush-to-the-bathroom, or sometimes a few within an hour or so. But then I'm fine, except for feeling a bit dehyrated.

The thing is, I feel this need to know WHY. Is it gluten, or dairy, or something else? So I'm toying with the idea of trying some mini-challenges - a few bites of pasta, a few sips of milk, etc. - just to see which substances cause which reactions. Would this be totally insane???? I did try some plain yogurt a few months back, and it made my eczema break out, but this was before I started having problems with D. I haven't knowingly consumed any wheat in over a year, and the thought of it kind of freaks me out. But then, for all I know, my entire problem could be dairy, KWIM?

I guess what I'm really wondering is whether doing a mini-challenge could cause any long-term damage. If not, I suspect that curiosity will get the better of me eventually.

Jeanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Jeanne

I don't blame you for being curious. I know that Ursula did some challenges on herself a while back and posted the results.

Good luck with whatever you do--let us know :)

queenofhearts Explorer

About the gluten challenge, I sympathize with the spirit of scientific inquiry, but it sounds kind of scary to me.

Then again I've been diagnosed by biopsy so I feel like I already know the answer.

About the soy sauce, have you tried fish sauce? No, it doesn't taste the same, but you can sub it in recipes for a hit of Asian saltiness... if you haven't tried it, don't be put off by smelling the bottle-- if you just use a splash it isn't overpowering at all. Do check & make sure the brand you buy is gluten-free because some do contain wheat.

Leah

marciab Enthusiast

I had to retry wheat 3 times before I could give it up. So, I understand completely. Now, I can honestly say I am not interested in trying wheat ever again. Each time the reactions took me at least a week to get over.

I am still trying to convince myself that I should give up eggs. They kill me, but I keep trying them about once a month. The reaction time is only 2 days and only gas so they are much harder to give up.

So, I would say go ahead and enjoy whatever you decide to test with. Garlic bread, cake .. yum !! :D

jnclelland Contributor

I guess I'm just feeling frustrated because I had one of these D incidents yesterday, and I'd at least like to be able to tell people - like my doctor, for instance! - "This is what happens when I accidentally ingest X." But I don't really know whether X is gluten, dairy, or something else.

Don't get me wrong - I am NOT trying to see if I can eat gluten or dairy again. I'm happier and healthier without them. I'd just like to know what's responsible for these GI symptoms that I've never had before.

About the soy sauce, have you tried fish sauce? No, it doesn't taste the same, but you can sub it in recipes for a hit of Asian saltiness... if you haven't tried it, don't be put off by smelling the bottle-- if you just use a splash it isn't overpowering at all. Do check & make sure the brand you buy is gluten-free because some do contain wheat.

I didn't know they made gluten-free ones; do you know where to find them? (Of course, what's really a bummer is not being able to do take-out...)

Jeanne

lorka150 Collaborator

Thai Kitchen fish sauce.

mle-ii Explorer
I guess I'm just feeling frustrated because I had one of these D incidents yesterday, and I'd at least like to be able to tell people - like my doctor, for instance! - "This is what happens when I accidentally ingest X." But I don't really know whether X is gluten, dairy, or something else.

Don't get me wrong - I am NOT trying to see if I can eat gluten or dairy again. I'm happier and healthier without them. I'd just like to know what's responsible for these GI symptoms that I've never had before.

I didn't know they made gluten-free ones; do you know where to find them? (Of course, what's really a bummer is not being able to do take-out...)

Jeanne

Same here. I've thought about trying some glutened food to see what symptoms I get and to see if they match up with what I think the symptoms are for me when I think I accidently ingest it. Haven't had the guts (ha ha) to do it yet. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748

    CrazyCatLady
    Newest Member
    CrazyCatLady
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.