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New To Celiac

toothpicker

By toothpicker
in Coping with Celiac Disease

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toothpicker Newbie
toothpicker
Posted

Hello,

I am very new to Celiac (have been gluten-free for about 2wks - what an interesting adventure). The doctors are still up in the air about firm diagnosis.... "try the diet, see if you feel better". I go back on the 29th. So far, this last week esp., I feel soooo much better. Who knew I had so much energy and can eat with out being sick! I have 2 kids who have on/off again belly trouble and am taking them this week to talk to the pediatrician. I was wondering if anyone knew of any support-groups around the Butler, Pa area? I'm kind of stumbling in the dark, reading all I can, and I have several lists of things that I can and cannot have in my purse. Any advice would be greatly appreciated!

Toothpicker

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Rikki Tikki Explorer
Rikki Tikki
Posted

Hi toothpicker:

Welcome to the board! I live in Northern California so can't be much help to you regarding a support group in your area. But you will learn quite a lot on this site and find many people that have a lot of knowledge and are willing to answer about any questions.

Again welcome :D:D:D

mythreesuns Contributor
mythreesuns
Posted

Welcome! I'm new too. Gluten free for about 3 weeks or so...with some slip-ups already.

I don't know anything about support groups, but I am thinking about having my children tested as well. I'm waiting to get some EnteroLab testing done to be sure, because my blood tests and endoscopy came up negative.

Good luck with the diet. This place is a GREAT resource for info and support.

toothpicker Newbie
toothpicker
Posted
  • Author
Welcome! I'm new too. Gluten free for about 3 weeks or so...with some slip-ups already.

I don't know anything about support groups, but I am thinking about having my children tested as well. I'm waiting to get some EnteroLab testing done to be sure, because my blood tests and endoscopy came up negative.

Good luck with the diet. This place is a GREAT resource for info and support.

Thanks for the welcome! How did you feel after the slip ups? I accidently ate something on my "no-no" list, and was pretty sick all evening and tender the next couple of days. What are the EnteroLab tests? I had a neg. biopsy and I don't know how well the blood test will work since I've been on the diet. I guess they can test for the gene. I do know that I feel better, slowly getting my energy back......I actually stopped taking my protonix (for reflux) 4-5 days ago, and have not had one twinge! YaY!

Do your kids have any symptoms? I take mine on Thurs... I'm trying to prepare them for bloodwork.

Thanks again for your response.

queenofhearts Explorer
queenofhearts
Posted

Welcome, Toothpicker! You can post a question about a specific region in the Meeting Room; I bet you'll find someone in your area. If you haven't already found out about Nini's Newbie Kit, it's very helpful... you can find it on her site, Open Original Shared Link

Good to have you with us!

Leah

toothpicker Newbie
toothpicker
Posted
  • Author
Welcome, Toothpicker! You can post a question about a specific region in the Meeting Room; I bet you'll find someone in your area. If you haven't already found out about Nini's Newbie Kit, it's very helpful... you can find it on her site, Open Original Shared Link

Good to have you with us!

Leah

thanks for the link.... I can use all the info I can get.

mythreesuns Contributor
mythreesuns
Posted
Thanks for the welcome! How did you feel after the slip ups?

What are the EnteroLab tests?

Do your kids have any symptoms?

Well, first of all, I feel tired and bloated, and usually have some diarrhea when I get contaminated.

Many people here know much more about EnteroLab testing than me, but you can go to www.enterolab.com for more info.

My oldest son has Asperger's, and has had problems in the past with constipation/diarrhea, but Asperger's and celiac seem to be related somehow, at least a little bit, so it's worth the testing since I'm having so many problems.

My middle son has had chronic diarrhea for a couple of years, and he has neurological *differences* as well (Tourette's and OCD).

The 2 y.o. has some mild neurological issues (a neurological speech disorder and mild SID) but so far his digestive system seems to be ok. Again, it's worth the testing given the whole family history.

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toothpicker Newbie
toothpicker
Posted
  • Author
Well, first of all, I feel tired and bloated, and usually have some diarrhea when I get contaminated.

Many people here know much more about EnteroLab testing than me, but you can go to www.enterolab.com for more info.

My oldest son has Asperger's, and has had problems in the past with constipation/diarrhea, but Asperger's and celiac seem to be related somehow, at least a little bit, so it's worth the testing since I'm having so many problems.

My middle son has had chronic diarrhea for a couple of years, and he has neurological *differences* as well (Tourette's and OCD).

The 2 y.o. has some mild neurological issues (a neurological speech disorder and mild SID) but so far his digestive system seems to be ok. Again, it's worth the testing given the whole family history.

Well, I hope all goes well... I bet you have your hands full w/3 boys.... I have 1 of each and they keep me on my toes (looked out yesterday, and my son was on his skateboard on top of the slide ready to ride it down). I sometimes think Celiac will be the easiest thing to keep him safe from! :lol:

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      my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening  thank you for attaching this, could this happen randomly even after being gluten-free for so long ? my ttg iga was 16.5 3 months ago and jumped to 30.1 last week. my iga was 415 and jumped to 455. This was done at a different lab though than the first test for ttg iga one had units as ml the other as cu... so not sure if they really jumped as much as shown. i am so strict on my diet and have no clue why this is happening 
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