Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Drink This Stuff!


Chelle15

Recommended Posts

flagbabyds Collaborator

you would NOT like to be me then!

I have blood tests to monitor my thyroid every week at least cause my thyroid gets thrown off by such a little thing and makes me horibbly sick. So i am used to blood tests esp. cause it usually takes them about 5 pokes before they get my vein.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wonkabar Contributor
Who thinks the IV is hard? I didn't feel anything more than when they take blood....just a little pinch and that was it!

I was more afraid of having an IV than being in labor...honest to God! No one can ever find my veins and my hand or arm is always swollen and killing me before, during and after. It usually takes a few sticks and different nurses b/f they can run the IV...yuck! I'm making a face just thingking about it! :o

CarlaB Enthusiast

They never have trouble finding my vein, it's very obvious. They don't have trouble getting it either, but for some reason, I still get huge bruises.

Nancym Enthusiast

Oh dear, the worst part for me wasn't the taste, it was the endless drinking and feeling like if I took another sip I'd throw it all up. No wait, the worst part was being up all night pooping. No wait.... the worst part was the time I didn't wake up in time.

Chelle15 Apprentice

I had mine done today. Thank god it is over. I was so worried about gagging. They sprayed the stuff in my throat, and I was pretty much out of it for that. The colonoscopy, though, I was awake for most of it. I watched it on the screen. It was a tad uncomfortable, but I was relieved at how smoothly it went. I did not want to be awake at all, but I was. However, I still go to the bathroom alot...

The doctor didn't talk to me cuz she another procedure she was in went over. I was told everything looked normal but I will get the biopsies back in 10 to 14 days. Any chance if everything looks normal that the biopsies could still show damage?

CarlaB Enthusiast

The damage can be microscopic.

Both my biosies and my blood tests were negative, but I went to Enterolab, whose testing is more sensitive, and got positive results.

Glad you got it over with!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.