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I Can't Drink This Stuff!


Chelle15

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flagbabyds Collaborator

you would NOT like to be me then!

I have blood tests to monitor my thyroid every week at least cause my thyroid gets thrown off by such a little thing and makes me horibbly sick. So i am used to blood tests esp. cause it usually takes them about 5 pokes before they get my vein.


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wonkabar Contributor
Who thinks the IV is hard? I didn't feel anything more than when they take blood....just a little pinch and that was it!

I was more afraid of having an IV than being in labor...honest to God! No one can ever find my veins and my hand or arm is always swollen and killing me before, during and after. It usually takes a few sticks and different nurses b/f they can run the IV...yuck! I'm making a face just thingking about it! :o

CarlaB Enthusiast

They never have trouble finding my vein, it's very obvious. They don't have trouble getting it either, but for some reason, I still get huge bruises.

Nancym Enthusiast

Oh dear, the worst part for me wasn't the taste, it was the endless drinking and feeling like if I took another sip I'd throw it all up. No wait, the worst part was being up all night pooping. No wait.... the worst part was the time I didn't wake up in time.

Chelle15 Apprentice

I had mine done today. Thank god it is over. I was so worried about gagging. They sprayed the stuff in my throat, and I was pretty much out of it for that. The colonoscopy, though, I was awake for most of it. I watched it on the screen. It was a tad uncomfortable, but I was relieved at how smoothly it went. I did not want to be awake at all, but I was. However, I still go to the bathroom alot...

The doctor didn't talk to me cuz she another procedure she was in went over. I was told everything looked normal but I will get the biopsies back in 10 to 14 days. Any chance if everything looks normal that the biopsies could still show damage?

CarlaB Enthusiast

The damage can be microscopic.

Both my biosies and my blood tests were negative, but I went to Enterolab, whose testing is more sensitive, and got positive results.

Glad you got it over with!

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      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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