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On The Topic Of Ssi..


dahams04

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dahams04 Apprentice

Has anyone been approved on the basis of Celiac? I thought about this route but I wasnt sure if it qualified as a disability?


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ravenwoodglass Mentor
Has anyone been approved on the basis of Celiac? I thought about this route but I wasnt sure if it qualified as a disability?

Everyone is different but in most places a celiac diagnosis is not a basis for SSI. If it is diagnosed promptly it will not effect someones ability to work and after a while on the gluten-free diet many are healthier than the rest of the population. The exception to this is for people who it took years to diagnose because of the damage the disease does to other body systems other resulting problems like arthritis and neurological difficulties with thought and movement. In those cases it is the resulting damage and diseases from the undiagnosed celiac that qualifys one for SSI. The best one to talk to about SSI would be your states SSI office and perhaps a lawyer as rules are different for different areas. If you are newly diagnosed and following the diet strictly, this includes non-food gluten avoidance, you should see enough improvment in your health to have no problem working.

toothpicker Newbie

I don't know about disability benefits, but I did stumble across something about governmental vouchers for specified gluten-free stores. They recognize the increase in cost for gluten-free foods. You, and your Dr. have to fill out their forms (you can get them in any Social Security office). Good luck to you!

ravenwoodglass Mentor
I don't know about disability benefits, but I did stumble across something about governmental vouchers for specified gluten-free stores. They recognize the increase in cost for gluten-free foods. You, and your Dr. have to fill out their forms (you can get them in any Social Security office). Good luck to you!

Do you have a link to this info? What would I ask for at the SSI office? I fought getting disability for years always hoping I would get better but I have been left with some residual problems the force me to work from home. Those vouchers would be a great help if you have any more information on this.

toothpicker Newbie
Do you have a link to this info? What would I ask for at the SSI office? I fought getting disability for years always hoping I would get better but I have been left with some residual problems the force me to work from home. Those vouchers would be a great help if you have any more information on this.

I looked it up again... hopefully I can get it to work on here. (if not just put "gluten-free food vouchers" into your search engine and it should come up in the search.)

Open Original Shared Link[url=Open Original Shared Link

Good luck!

ravenwoodglass Mentor
I looked it up again... hopefully I can get it to work on here. (if not just put "gluten-free food vouchers" into your search engine and it should come up in the search.)

Open Original Shared Link[url=Open Original Shared Link

Good luck!

Thanks for posting this, I saw a reference to 'if you leave the island' is this in the United States?

toothpicker Newbie
Thanks for posting this, I saw a reference to 'if you leave the island' is this in the United States?

Yep, the site is out of New Jersey.


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penguin Community Regular
Thanks for posting this, I saw a reference to 'if you leave the island' is this in the United States?

From what I saw, it's an island off the coast of France...

hineini Enthusiast
From what I saw, it's an island off the coast of France...

Yeah, that site is not for the US, nor for New Jersey. It is for the "State of Jersey".... which is in Europe

Matilda Enthusiast

..

sillyactsue Explorer
Has anyone been approved on the basis of Celiac? I thought about this route but I wasnt sure if it qualified as a disability?

People with asthma and food allergies work too. but children with these problems qualify because of the added expense of their care I believe. That is why I am looking into it.

dahams04 Apprentice
People with asthma and food allergies work too. but children with these problems qualify because of the added expense of their care I believe. That is why I am looking into it.

Right it is my son who has the dx. I am lookin ginto it for him. I posted this to the parents of Celiac board. Not sure how it ended up here? :blink:

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      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
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    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
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