Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Help Please

Jarrett

Recommended Posts

Jarrett Newbie
Jarrett
Posted

Hi all, first post, i have just been diagnosed with Celiac and to tell you the truth it feels good. Not good but just to finally know. Anyway...I have some questions I hope you could all help me with. I have learned so much from this website and do not know what i would do with out it. Okay, here they are.

1. I seem to react to soy, diary, peanuts, possibly citrus and walnuts. Was curious if anybody else had this problem, and if so, if anyone replies to this could they please list what else they react to so I could watch out for it.

2. Now that i am gluten free, when i do eat something bad i get like a quick jolt in my gut, like someone squeezed it real quick...pretty random but just wondering.

3. The jolt is followed by about 45 minutes of brain fog, like jekyl and hyde, it's like two different worlds.

4. I drank gin last weekend and got glutened...I thought it was allright but i guess not..any comments on that possibly.

Thank you all very much and i look forward to hearing and sharing experience with you all

Jarrett

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Green Fingered Gaelic Newbie
Green Fingered Gaelic
Posted

Hi Jarrett,

Welcome to club Coeliac.

I'm glad your having a soft landing.

I've been diagnosed for 24 years. I'm 26. My Gran recognised my condition early and saved me allot of suffering.

It is great to be diagnosed, now you can at least get on with getting better. However its a long road, experience is the teacher, and the better you get at it the harder it becomes.

As an adult I've become more sensitive, really extreme. The more I eliminate gluten from my diet the more sensitive I become, but at the same time the less likely I become to develop other allergies or life threatening illnesss. So far I'm a Coeliac, and thats it. I'm not allergic to anything else. Yet!

To answer your questions:

1) No I don't, but after being glutened I'm less inclined to eat dairy. Just for a little while, untill the stomache bacteria recover. Then I'm back to normal and can eat anything.

Soy sauce is usually fermented using wheat, so stay clear. Unless its tamari, however many of the tamari soy is fermented in the same casks as the wheat ones, so it gets cross contaminated. Cross contamination is a cruel one. If I eat out I expect it, and thats the price of eating out for me. Many Coeliacs/Celiacs stop eating any processed foods to seliminate cross contamination.

2) Yes, I've had similar experiences at times. Over my life the symptoms have changed many times. Apart from the obesity I've encoutered most of them. Right now I've got an aching intestine and occasional sharp shooting pains right through it; which cripple me for a split second.

3) At times, tho over the years I think I have developed pretty good mood control. Its something you need to master when you live with this. Its ironic when your own immune system trys to kill you. It screws with your head. If you expect it you can control it so that it don't ruin relationships. During a reaction your judgement is lapsed. I just try not to say anything. <Obvisously not the case in this post> . When I'm glutened I feel very angry, I try to let it flow through me rather than reflecting it onto the ones I love. Some times its the anger thats made me realise I've been glutened.

4) I love gin, I love whiskey, I love tequila and I ain't got no reactions. However I would get a reaction from a glass that had trace gluten on it. One what was washed up with glutened dishes. Sometimes I wonder about glasses in bars. Was thinking of having a special glass for me in my local, just cause I'm so sensitive now.

Finally this forum is the best thing since sliced bread B)

lorka150 Collaborator
lorka150
Posted
1. I seem to react to soy, diary, peanuts, possibly citrus and walnuts. Was curious if anybody else had this problem, and if so, if anyone replies to this could they please list what else they react to so I could watch out for it.

2. Now that i am gluten free, when i do eat something bad i get like a quick jolt in my gut, like someone squeezed it real quick...pretty random but just wondering.

3. The jolt is followed by about 45 minutes of brain fog, like jekyl and hyde, it's like two different worlds.

4. I drank gin last weekend and got glutened...I thought it was allright but i guess not..any comments on that possibly.

Hi Jarrett, welcome to our boards. To answer your questions.

1. At the beginning, I reacted to everything, but now our of the ones you listed, I cannot tolerate casein/dairy, in addition to allergies I already have to the onion family, buckwheat family, and rice family.

2 + 3. >>> Sounds like my casein intolerance (in addition to other symptoms I get).

I can't answer 4, I don't drink.

Good luck!

FaithInScienceToo Contributor
FaithInScienceToo
Posted
3) At times, tho over the years I think I have developed pretty good mood control. Its something you need to master when you live with this. Its ironic when your own immune system trys to kill you. It screws with your head. If you expect it you can control it so that it don't ruin relationships. During a reaction your judgement is lapsed. I just try not to say anything. <Obvisously not the case in this post> . When I'm glutened I feel very angry, I try to let it flow through me rather than reflecting it onto the ones I love. Some times its the anger thats made me realise I've been glutened.

GREAT reply! Especially that section.

Green Fingered Gaelic Newbie
Green Fingered Gaelic
Posted
GREAT reply! Especially that section.

Thanks buddy! :)

CarlaB Enthusiast
CarlaB
Posted

Jarrett, welcome to the board.

Gin should be fine to drink as it's distilled. However, some people are sensitive to grain alcohols even though they are supposed to be fine from a gluten standpoint. I'm can't really drink anything right now except for an ocassional glass of wine. I'm hoping that as I heal I will be better able to tolerate a cocktail once in a while.

Brain fog is the worst ... mine lasts 8 days.

You might be having problems with foods because you're intestines are in bad shape. As you heal, you might be able to add things back in. I happen to be casein senstive, so dairy will never be an option for me.

I also am allergic to mold, so have to watch for foods with a high mold content -- peanuts, fruit juice, dried fruit bars (Lara Bars, Clif Nectar Bars), etc. I'm very sensitive to mold, most people eat that stuff with no problem. When I'm healthy, I can rotate in foods I'm sensitive to, but never dairy or gluten.

jerseyangel Proficient
jerseyangel
Posted

Carla--What symptoms do you get from the molds?

Recently, I've cut out juices and dried fruits--but because if GI issues. I tried a Lara Bar yesterday, and got sick almost immediately after--

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

It's funny, the molds is something I discovered about 12 years ago on a rotation diet I did back then to see why I was so sick (don't know why I didn't discover wheat was a problem back then!!). Molds make me very fatigued. I don't notice anything at first, it's just that if I have a glass of juice maybe three days in a row, I'll hardly be able to get out of bed. If I just have juice or peanut butter once or twice a week, I'm okay.

Jarrett Newbie
Jarrett
Posted
  • Author

Thanks all

lorka150 Collaborator
lorka150
Posted
Carla--What symptoms do you get from the molds?

Recently, I've cut out juices and dried fruits--but because if GI issues. I tried a Lara Bar yesterday, and got sick almost immediately after--

i heard that if you are allergic to mold, you cannot tolerate cashews... could that have been it?

CarlaB Enthusiast
CarlaB
Posted
i heard that if you are allergic to mold, you cannot tolerate cashews... could that have been it?

I haven't had problems with cashews, but I do with peanuts and pistachios. I generally buy almond butter.

jerseyangel Proficient
jerseyangel
Posted
i heard that if you are allergic to mold, you cannot tolerate cashews... could that have been it?

Hi Lorka--

I checked the label, and the one I ate only had almonds, pecans and walnuts. I get the same thing when I eat dates or raisins plain. This stuff is gonna drive me crazy!!

Thanks :)

CarlaB Enthusiast
CarlaB
Posted

I have to rotate raisins and dates and count them as a mold food. So, if I have a glass of fruit juice one day, no raisins, dates, fruit juice or peanuts for three days. I usually just avoid them altogether, then when I'm out I can eat them in a pinch. Well, that's what I used to do, I feel so bad now, I avoid them completely.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.