Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Gain Weight Back?


Guest ~jules~

Recommended Posts

Guest ~jules~

When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
When all this started, in one summer I went from a size 9 in jeans, to a size 3. Now, I am wondering have any of you gained any weight back since your loss, and diagnosis? I could stand to gain a few pounds but I'm not looking for anything drastic..Just curious how it happened for others...Julie

Gained it back and then some.... and then some more..... and more.

Don't know American sizes but I was a 26" waist and 44" chest and went from that to a 36" waist in about a year...

and about 128 lbs to 190lbs. (male 5'10") in about a year.

The moral is keep tabs on it.... I was just so enthusiastic about being able to eat without being ill I carried on eating what I had before. When I was a kid 14 or so I actually had a special plate (a serving plate) and my mother eventually gave in and gave me two plates for dinner but I was still the 2nd smallest in my class (regardless of school??) and in the bottom 5% for weight. When I was at uni (putting 4" on my chest I used to count my calories ... and I wouldn't gain anything under 9000 a day so I was probably still eating 7000 a day when my villi healed and man did the weight go on fast.

It took a lot of hard work to get down to a 30" waist and in doing so I lost 2-4" of muscle of my chest. (which took a lot of effort to put there in the 1st place) ...

Now whatever I do I cannot get below a 30" waist... which is kinda OK.. but Ive been down to 2% bodyfat (by caliper, not immersion) and still my waist never goes below 30"... having said that my bladder seems to hold a lot more

I would be interested in peoples opinion of this...

Is it possible at 25-26 that I hadn't completely developed internal organs due to undiagnosed celiac or that they were being held in?

If I relax on exersize or diet for a short time my weight shoots back up....

Daxin Explorer

I am only now (4 months in) gaining back SMALL amounts of weight. I lost almost 40 lbs before my dx. It may take more time, and I am usually patient.

I guess we'll see. I hope you begin to gain some back and feel better.

CarlaB Enthusiast

I'm 5'8" and weighed 136 when I got sick. I dropped 15 pounds, got scared about it and started eating tons of food, about 3 times as much as my 6'2" husband. It was not unusual for me to eat out at a place like Outback, then come home and make myself a second meal ... I still eat much more for my size than I probably would under normal circumstances ... and I now weigh a little under 130. I lift weights, not machines, the free weights as heavy as I can and still get the reps and form right ... I think that helps keep me healthy looking instead of just skinny.

jerseyangel Proficient

I've always run about 15-20 lbs over what I would like. Two years ago, when I got very sick, one of the things that particularly worried me was that I lost 15 pounds in a short time--while still eating normally. Normal for me then was a lot of carbs--especially baked things.

When I went back to the doctor for my 2 month follow-up after the biopsy, I had already gained back 10 lbs! The doctor was not surprised in the least. I've gained back a few more, which I'm now in the process of trying to lose gluten-free!

One thing that I'm noticing is that since I've been eating primarily natural foods (very few processed), my weight is slowly going down, but my clothes are fitting better. Yesterday, I tried on a couple pair of jeans--my best barometer!--and they fit so nicely. Last spring, they had been getting a little tight.

Guest ~jules~

I also work out. I run 3 to 4 times a week, and do light resistence training. I agree that instead of looking like the walking stick I became, I actually defined my muscles, so it wasn't that bad. I also didn't know what was going on with me, so I kept working out. I am glad that I did the whole time I was sick because I truly believe that it helped me with stamina. There were days though where there was no way in the world I was going running! I am starting to feel better now, and I am hoping that I gain about 5 lbs, because I am a bit too thin I think. Besides everyone keeps telling me all the time! Ugh don't you ever get sick of that! I think its incredibly rude to comment on someones weight, thin, or chunky, unless asked. :angry: It just amazed me the weight I dropped, I have been the same size since I was 14 years old, then all the sudden poof! I was a skeleton, it really scared me. :unsure:

CarlaB Enthusiast

I found that I had to reduce cardio a little in the beginning, but I continued on with weights. If you tried to increase your weight workout and decrease your running till you gained weight back, you may get it back faster. I'm not saying cut it out entirely, but I used to do 40 minutes, and just cut down a bit from there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~

Lol, thats funny I cut back from 45 to 30 just now. After I was dx, I took the whole week off though and rested. I just got started again because I'm feeling better. Thanks for the advice! :D Julie

CarlaB Enthusiast

Don't get discouraged if you have to take a week off here and there. I was doing cardio and weights regularly, then about 3 weeks ago, had to cut out cardio because I've had NO energy, but continued doing weights for another week. The past two weeks, I haven't been able to do either. It seems that there are ups and downs in the healing process.

Carriefaith Enthusiast

I gained most of my weight back within 6 months on the gluten-free diet.

Rikki Tikki Explorer

My experience is that I was so ill when finally diagnosed, I am 5' 7" and had dropped from about 135 to 115 and looked awful. I went gluten-free and still didn't really put on any weight. Then about 7 months ago I quit smoking and am now up to 132 and looking for it to slow down. Mostly because none of my clothes are fitting! But, yes I did get really tired of people commenting on how thin I was, it was like I knew but people kept mentioning it :angry::angry::angry:

I have been walking between 3 and 4 miles a day but still putting on weight. Before I never exercised and didn't gain a pound. Any ideas on how to firm things up without actually losing any weight?

CarlaB Enthusiast
Any ideas on how to firm things up without actually losing any weight?

Weight lifting. You can get a personal trainer for a session or two to get you started.

jerseyangel Proficient
Any ideas on how to firm things up without actually losing any weight?

Pilates is also very good. :)

CarlaB Enthusiast
Pilates is also very good. :)

Yea, I mix that in on "core" day.

Kaycee Collaborator

We are all different. I would love to loose a bit of weight. Are there any takers?

But on the positive side, I have not gained any since going gluten free, and that makes me happy.

Cathy

Guest ~jules~

I'll second the weight lifting, and you don't have to join a gym to do so. Just go to your local sports equip. store and start with some 5 and 8 lb free weights. After awhile you can increase the weight if you want more bulk, I have been using those two sizes for a long time now, I like being toned, not buff! lol.. For my legs I do lunges and squats, and some legs lifts, this all works for me....

eleep Enthusiast

I had to cut out cardio for a while as well. What helped quite a bit was substituting more Ashtanga yoga than usual -- although I stuck with doing it at home because I wanted to stick to the pace that was best for my body and not have to worry about keeping up with a class.

eleep

KaitiUSA Enthusiast

I was able to gain it back but it took a while

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Going for upper endoscopy today

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    3. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    4. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.