Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will My Anxiety Ease?


myserenityprayer

Recommended Posts

myserenityprayer Explorer

Hi everyone...

This is my very first official post. I am a newly diagnosed celiac and im just freaking out. I have been sick since forever. I went to the GI complaining of terrible indigestion and heart burn (which I have never had in my life) and after explaining my long history of "stomach inconsistencies" and frustration he quickly led me to believe that I probably have IBS and that I am too young to be so stressed. I mean, I do have a stressful job, but who doesn't have stress? I was very unhappy with his immediate diagnosis. He then continued to explain that although he is almost 100% sure I have IBS he is sending me to the lab for some blood work. When my results came back I received a phone that freaked me out. He said I was "terribly" anemic and I need to go see my Gyno asap. He then also told me that my protein levels were extremely low. The next day when the complete results were in he told me that to his suprise I didn't have IBS (which I was actually relieved about) and that now he thinks I have Celiac Sprue and would like to schedule an edoscopy. Talk about a complete 360. Well 2 weeks later, I have Celiac (seeing other posts, I guess I am pretty lucky considering i was diagnosed very quickly). Needless to say I was happy (if that's even the right word) that I have Celiac. I thought, ah finally I will be able to lose weight (i have been on a diet my whole life)- going gluten free will be easy.

Well that lasted maybe about 2 days. My first trip to Fairway (a "gourmet" supermarket in the NY area) was way beyond what i had anticipated, especially since I'm used to Trader Joe's, which is small and intimate. I think I may have had a panic attack in the store. I was so overwhelmed and freaked out. I realized this wouldn't be as easy as I thought. Especially since now that I have been gluten free for almost a month I have GAINED weight (what the heck???!!?).

I really enjoy going out to dinner with my boyfriend but I get so anxious and nervous about going to a restraurant that doesn't provide a gluten free menu. Sometimes I feel like avoiding food all together. I went to a family BBQ on Saturday where it was catered with Italian food (clearly I couldn't eat anything) and a grilled veggie platter. After getting into a huge fight with my mom about wanting to call the restaurant where it was ordered from to find out how they had prepared the veggies she told me to stop being so neurotic and to just eat them. i'm going out to dinner tonight with my girl friends and I'm just a nervous wreck. My doctor told me that I can NEVER cheat, as if I have the guts to even do so!!. I just want to feel healthy and be healthy for once in my life.

Maybe this was just a crazy rant. But does anyone have any advice? Am I being too nuts about all of this? Maybe my mom was right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

It's a big change in life so yes it will be overwhelming and stressful and every time you go out to eat somewhere where they serve gluten you probably will be a bit anxious. I have been gluten free since 2004 and I still get nervous going out to eat at different places. The anxiety does calm down after you adjust to the diet. You are going to have to not only change foods but products like makeup and shampoos as well. There are some lists that would help as a guideline and a list of brands that will list wheat,rye, barley, or oats if they have any. If you would like these lists feel free to message me and I can send them to you.

kbtoyssni Contributor

The first few weeks will be overwhelming. It takes a long time to figure out what brands of food you can eat. I used to spend hours in the grocery store, now it doesn't take me any longer than anyone else. You can probably find most of what you need at Trader Joe's. I've never been there so I don't know what they offer, but I do most of my shopping in a regular grocery store and only go to a specialty store for things like gluten-free bread and crackers.

It would probably be good to not eat out for a while, at least until you get the hang of the diet. I used to hate eating out because it was such a pain, but now I know what questions to ask and what foods are generally safe and it's not a big deal anymore. Maybe you could meet your girlfriends for a walk or at a coffee shop or go ice skating or something else for a while.

You are not being neurotic when you want to call a restaurant and ask about food preparation. You are simply looking out for your health and being safe. Would your mother rather you eat "questionable" foods all the time and continue to be sick? In cases like this, I would bring my own food

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,497
    • Most Online (within 30 mins)
      7,748

    CrazyCatLady
    Newest Member
    CrazyCatLady
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.