Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat Allergy/celiac Disease

Drama Queen

Recommended Posts

Drama Queen Newbie
Drama Queen
Posted

Since my Open Original Shared Link, I have gotten an appointment with the G.I. that did my colonoscopy. It's not till the 11th, so I'm trying to be patient and not change my diet, so as not to mess with the blood work...even though I really feel like I would feel much better if I just started eating gluten-free.

I get weekly allergy injections, so it occurred to me to get a list of the things that I'm allergic to today. Wheat was one of them! It wasn't the highest on my list, but it was close (2 points difference). Higher ones were corn, coconut, eggs, milk, and peanuts...but soy and yeast were also there.

To me, it makes total sense that the allergins that I tested for with allergies would also be giving me problems intestinally. Am I thinking right? Will showing the G.I. my allergy test results hold any weight? Could my problems JUST be food allergies and not Celiac Disease?

At one point, the Allergist (ENT) started me on food drops (not injections), but they seemed to be giving me intestinal issues (constipation, then diarrea)...which also makes sense, because the syrum is made up of the things you are allergic to--to build up a tolerance to them. My "inhalent" allergies are so bad, though, he wanted to get those under control, so we stopped the food drops and haven't started them back up.

What do you guys think?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

You could be allergic and intolerant.

I had allergy tests done and found out I was allergic to wheat/gluten/gliadin/soy and dairy among others.

I then went through enterolab for everything they offer and found that I was intolerant to gluten and soy but not dairy.

An intolerance to something means you can't ever eat it again, whereas an allergy is something that you may be able to get your body to forget by not eating it for at least 2 months, preferably 6 or longer and then adding that food back in and seeing if you have an allergic reaction to it. You would need to drop all the foods you tested allergic to for this to work.

Welcome. :D

Michi8 Contributor
Michi8
Posted
Since my Open Original Shared Link, I have gotten an appointment with the G.I. that did my colonoscopy. It's not till the 11th, so I'm trying to be patient and not change my diet, so as not to mess with the blood work...even though I really feel like I would feel much better if I just started eating gluten-free.

I get weekly allergy injections, so it occurred to me to get a list of the things that I'm allergic to today. Wheat was one of them! It wasn't the highest on my list, but it was close (2 points difference). Higher ones were corn, coconut, eggs, milk, and peanuts...but soy and yeast were also there.

To me, it makes total sense that the allergins that I tested for with allergies would also be giving me problems intestinally. Am I thinking right? Will showing the G.I. my allergy test results hold any weight? Could my problems JUST be food allergies and not Celiac Disease?

At one point, the Allergist (ENT) started me on food drops (not injections), but they seemed to be giving me intestinal issues (constipation, then diarrea)...which also makes sense, because the syrum is made up of the things you are allergic to--to build up a tolerance to them. My "inhalent" allergies are so bad, though, he wanted to get those under control, so we stopped the food drops and haven't started them back up.

What do you guys think?

Allergy and intolerance are two different things, but allergies can give you GI symptoms just the same. I've seen my allergies change over my lifetime. Food wise, I've since outgrown my peanut allergy, but have developed food allergies related to my severe Birch pollen allergy: all raw tree fruit, almonds & halzelnuts. From what I understand it's unusual to outgrow something like a peanut allergy, but to keep it out of your diet for a long period of time could help. Apparently, once you "outgrow" a food allergen, you need to keep ingesting it to remain free from allergy to that particular food.

Knowing that you are allergic to wheat should mean something to your G.I. I think it's reason enough to eliminate it from your diet regardless of your gluten intolerance/celiac status. Also, if you eliminate your food allergens from your diet, you may actually see some improvement with your inhaled allergies as well. Personally, I think it's hard on your body to continue to bombard it with allergens...giving it a break could be a good thing.

Michelle

Carriefaith Enthusiast
Carriefaith
Posted

You could have gluten intolerance and a wheat allergy.

plantime Contributor
plantime
Posted

I have multiple respiratory allergies that cause severe nasal symptoms. The worst was the congestion. No drug on the market could wipe out my congestion. When I stopped eating gluten, the congestion went away. It was an intolerant reaction to the gluten. You could very well have the same complication.

mouse Enthusiast
mouse
Posted

I tested positive for a wheat allergy and also positive for Celiac Disease.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748
    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.