Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporisis, Osteopenia?


clay4me

Recommended Posts

clay4me Rookie

Would like to know if anyone else has Osteopporsis and what they are doing to help reverse it?

I am new to this way of chat so it might take time to get use to it. So far I am doing well.

I have lymphatic drainage massage weekly and that has helped with many things. I take supplements,enzymes and eat scd legal 100%. I do not cheat and for the first time in my life have so much energy, and can eat without throwing up. :blink:

I am working out with a trainer for weight bearing exercises. A occasional massage does me well. Has anyone been able to turn there osteo around being on scd? I do know Rome was not built in a day and it takes time... :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

Good Morning

I'm so glad to see someone post on MLD.

I was dx'd after getting celluitis.

I also have OA. My PT did not go well and am trying so hard to find a new PT.

I need help with daily wraping as 4 pairs of compression stockings and $450 later can find stockings that help. I did get the pump. This has only been dx'd since June 06 and pump for 1 month. could us ANY AND ALL HELP YOU CAN GIVE ME.

I'm hoping that others will join who have the MLD issue but no one joined a thread but a couple.

If you want to PM me please feel free to do so.

Also have you found any info on line about wraping with pictures..etc on compression? Been to the NLN and stocking sites. Have you found a book that helped? Did you PT give you any handouts.. mine did not.

thanks in advance. Judy in Philly

PS did you find the scd diet worked better for you and are you a celiac?????

trents Grand Master

I am a 55-year-old male with osteopenia. Was dx with Celiac disease about 3 years ago but I know in hind site the initial onset of the disease was at least 16 years ago. Primary care doc didn't have a clue why my liver enzymes were elevated but now I know that celiac disease produces that effect in about 20% people who have the disease. I assume the bone density loss is due to the celiac disease. I have been on Fosamax for about 2/12 years. Bone scans have shown that I am still losing bone density, esp. in my femoral neck, but hopefully, the Fosomax is at least slowing it down. If I had been diagnosed soon after the onset of the disease, things with my bones would probably be much better but can't change that now. Making up bone density loss is much more likely if you are young. I have also developed pronounced chiphosis (that runs in my mother's family, though) and some mild scoliosis.

Steve

  • 3 weeks later...
txnmaryann Rookie

I'm 40 years old, just went gluten free a month ago after 20 years of problems. Had a bone density scan today, I have osteopenia. I have been given Boniva and told to take calcium. I'm concerned that i"m not absorbing the calcium yet since I'm so recent on the diet. I too am hoping to reverse or AT LEAST slow the bone thinning.......

lindalee Enthusiast

someone just started a new thread on this and I started one on calcium rich soups.

Clay- I'm not familiar with the lympatic massage. How is the SCD going? I would think all the yogurt would help.

Judy - Hope you are feeling better!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.