Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Miss?

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

em2005 Rookie
em2005
Posted

POUTINE!!!!!!!!!!!

Mmm...fries with cheese curds and gravy...esp. the ones you get at the casse-croûte stands. Mmmmmmmmmmmmmmmm.........

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 92
  • Created
  • Last Reply
gdobson Explorer
gdobson
Posted

I miss being able to go into any restaurant and looking at the menu and saying, "hmmm, I've never had that before. I think I'll try that," and not having to wonder or care what was in it.

I also miss Pizza Treats!!!! And my memory of those Hostess Cupcakes and Snowballs - definitely Snowballs. I know it sounds way weird, but I just want to touch one to remember that spongey texture. Oh, and Miller Genuine Draft. sigh

jaten Enthusiast
jaten
Posted
Have you tried real latin american tortillas?

I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

Guest ~jules~
Guest ~jules~
Posted
I'm not sure where to get them. Can you tell me? Thanks, Jennyj, for your suggestion of Mission brand, too. Yes, I've tried Mission. I don't know. There was a thread on here a couple of mos ago about corn tortillas. I've tried all of the ones that I could find around here. I get sick every time. But I can eat On the Border tortilla chips and many other corn products, but not a single corn tortilla. It doesn't make sense to me. (I wish On the Border made corn tortillas). I don't want to hijack this thread. Thanks for your suggestions, though!

I buy the mission corn tortillas, and chips. I like mission products because it simply states "gluten free" so I can pick it up and throw it in the cart instead of standing there reading the label. Its just more convinient, any shot of eating being simple I'm taking it....plus they taste really good. Now I'm on a "tort. chip kick" I've been melting cheese over my tort. chips, and drowning them in Newmans Own chunky salsa...Yummmy

Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

jerseyangel Proficient
jerseyangel
Posted
Also, (this may sound gross but its actually really good) Dip your cool ranch doritos in cottage cheese....Don't knock it till you try it....lol :D

One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

Guest ~jules~
Guest ~jules~
Posted
One of my favorite snacks, pre dairy free, was potato chips or Fritos dipped in cottage cheese! :D I really miss cottage cheese.....

I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

L.A. Contributor
L.A.
Posted

Trashy breakfast cereal...Alpha Bits, Captain Crunch, Fruit Loops :rolleyes: Or maybe it's just the fact my choice is gone---sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted
I'm sorry :( I really do feel for those of you with multiple food allergies. It really makes me appreciate the things I can eat. When I first got here I was so mad at doctors and the lach of food. Now that I've gotten to know more about the people here, and the extent of food allergies I'm a lot more posative about eating.... B)

Oh, don't feel bad! It's ok, really :D I feel so much better, that it makes it pretty easy to stay away from the foods that I'm intolerant to.

I just had to comment on the cottage cheese dipping--I was surprised to see that someone else did that :lol:

burdee Enthusiast
burdee
Posted

My answer to that question would depend on when you asked ... When first was diagnosed with celiac disease, I found many great gluten-free substitute foods and didn't miss anything. After my dairy diagnosis, I tried to substitute soy products for dairy, but really missed cottage cheese. When I realized I also didn't tolerate soy, I really missed ice cream, yogurt, butter and other dairy products. Then I found almond milk, some sorbets and margarine substitutes as well as other new foods. So I stopped missing anything and enjoyed new favorites. However in August I was diagnosed with additional egg and cane sugar allergies (and confirmed soy intolerance). So I really missed mayonnaise at first. Then I started using guacomole or hummus spread in sandwiches. Strangely I did NOT miss eggs as a food. I also found many egg replacement foods for baking.

I don't miss cane sugar per se, but I SURE MISS CHOCOLATE!!! I had previously found some dairy/soy free chocolate which had sugar. I can't tolerate many artificial sweetners (especially alcohol derivatives like sorbitol, etc.). So I have not yet found a safe chocolate candy substitute. However, I suspect that once I start experimenting with recipes from my new food allergy cookbooks, I'll come up with a pretty good fudge substitute recipe.

Above all I miss spontaneity ... I can't just walk into any restaurant and find something suitable on the menu. I stick with classier ($$$) restaurants who want to please their patrons and prepare safe meals or Mexican restaurants where I can substitute corn tortillas, avoid deep fried foods possibly contaminated by gluten foods in the same fryer and pass on cheese. Frequently I order simple grilled meats and steamed vegies, while enjoying a glass of wine. Nevertheless, I sure don't miss that chronic cramping pain, bloating and gas. I'm happy to abstain from 5 different foods to avoid those symptoms.

BURDEE

Pearia Newbie
Pearia
Posted

Fish & chips, pizza, a GOOD sandwich, BEER, Big Mac & Filet of fish, french bread with pasta, the list goes on & on.

Mango04 Enthusiast
Mango04
Posted

Rubios...mmmmmm

Other than that I'm completey okay with being gluten and dairy free...but I miss soy!!!!!!!!! How sad is that? I miss Earth Balance!!!!!!! and all the yummy gluten-free stuff made with soy flour...and this is even more sad...the other day I saw some gluten-free, dairy-free, tofu cheesecake and I just looked at it longingly. Hehe how many "normal eaters" would laugh in my face if they knew all I wanted in life was some gluten-free tofu cheesecake? Okay I'm exaggerating a bit...but still....

ÆON Newbie
ÆON
Posted

Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

Guest ~jules~
Guest ~jules~
Posted
Oh, this is an easy question. I'm a vegetarian and I miss meat substitutes so, so, so bad. Fake chicken, fake lunchmeats, I even had access to fake tuna for a while and it was soooo good.

I get overwrought just thinking about that stuff. :wub:

I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

Carriefaith Enthusiast
Carriefaith
Posted

I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

ÆON Newbie
ÆON
Posted
I have a veggie friend, she eats alot of morningstar farms chic patties, are they gluten free? I have had them and they are really good. Just curious...

No, I'm sorry to say that they're not. Morningstar makes good stuff though, I agree. Alot of fake meat has wheat in it but there are a very few that don't.

Qourn makes some chicken bits (little chunks that go nicely in rice) that are gluten-free and really good and Gardenburger makes a grilled burger that's okay.

My all-time favorite was gravy with fake sausage crumbled up in it over biscuits - ohhh so yummy. That would incapacitate me now - oh well.. memories. :D

barbara3675 Rookie
barbara3675
Posted

One of the things I miss is oatmeal with brown sugar and milk on a cold winter morning......I tried it after being gluten-free for a while and it gave me problems. I know there are some gluten-free people that eat it, but it does not work for me. Some of the things that have been mentioned multiple times, like Pizza Hut pizza, KFC, and good crusty breads would be up there on my list of things that I miss also.

burdee Enthusiast
burdee
Posted

There are safe substitutes for most foods we miss. Our food preferences develop through habits. We can develop other food favorites if we look for appealing substitutes. Lots of people, who say they hate gluten free bread, have not tried all the many gluten free breads available. I dislike most gluten-free breads, but have a few (3-4) absolute favorites which I found after doing lotsa research. I've also found decent substitutes for other former favorites containing gluten, dairy, soy, eggs and cane sugar. Just don't eat choclate in front of me!!! LOL (I wear a teeshirt that says "Just drop the chocolate and nobody gets hurt".)

BARBARA: Quinoa flakes are very similar to oatmeal as a hot cereal or in cookies.

MANGO: Smart Squeeze makes a tasty gluten/dairy/soy free margarine in a squeeze bottle.

ANY VEGETARIANS: Look for soy based meat substitutes if you can have soy.

BURDEE

jerseyangel Proficient
jerseyangel
Posted

burdee--

Where do you find that Smart Squeeze Margarine? I have looked everywhere.

burdee Enthusiast
burdee
Posted

I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Ashley Enthusiast
Ashley
Posted

Poptarts. I crave those things all the time! There's almost an edible substitute for everything, except for pastries. I don't miss regular pretzels because there's awesome substitutes. But, I do miss the mustard-flavored ones though. Can't find gluten-free ones.

-Ash

jerseyangel Proficient
jerseyangel
Posted
I found "Smart Squeeze" at my local QUALITY FOOD CENTER (QFC), but they're owned by Kroeger Foods who also owns Fred Meyer. So you might find them at Fred Meyer Stores. Maybe that's a Northwest Chain. You could also look up the "Smart Balance" (who makes "Smart Squeeze") and look for a store locator or 'google' Smart Squeeze.

BURDEE

Thanks! I went to their website and sent an email to customer service--they didn't have a store locater. There's also a phone # I can call on Monday :)

mouse Enthusiast
mouse
Posted

Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

jerseyangel Proficient
jerseyangel
Posted
Does Smart Squeeze marg. have corn in it? I bought Spectrum marg. and it does not even melt on my baked potato.

Hi Armetta

I've not actually seen the Smart Squeeze--so I don't know if it has corn in it. That's something I'd want to check when I can read the label.

I've never seen the Spectrum Margarine--dosen't sound too good, though, from what you said--I do love their shortening!

Why is it so hard to find a margarine without soy, corn and whey? :angry:

CarlaB Enthusiast
CarlaB
Posted

Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

jerseyangel Proficient
jerseyangel
Posted
Have you tried Ghee? I use it or coconut oil exclusively -- and the benefit of coconut oil is that it's good for you!

I haven't tried ghee, but I'd like to. Do you make your own, or is there a good brand I should look for?

I can't, unfortunately, use coconut oil because I'm intolerant to coconut. :angry:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,922
    • Most Online (within 30 mins)
      7,748
    Amber Gumm
    Newest Member
    Amber Gumm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.