Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Where I Introduce Myself?

Adelle

By Adelle
in Introduce Yourself / Share Stuff

Recommended Posts

Adelle Enthusiast
Adelle
Posted

Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Turtle Enthusiast
Turtle
Posted

That's AWESOME!

Welcome to the boards!!

You'll love it here!!

mouse Enthusiast
mouse
Posted

Welcome to the forum. Just remember that we do not consider any question stupid. That is great that doctor #10 listened to you and ran the blood tests. That is totally awesome.

AndreaB Contributor
AndreaB
Posted

Welcome Adelle! :D

You've come to the right place. This is a very warm and loving community.

BTW....I'm about 2 hours North of you....SW Washington, north of Vancouver about 1/2 hour.

ÆON Newbie
ÆON
Posted

Howdy hi!

I'm happy to hear that you found the problem and are feeling better. I'm kinda new here too and have found this to be the greatest place for information and support. :)

Guest ~jules~
Guest ~jules~
Posted

Hi, I am from salem also! Wow there really is someone else in this town with celiac....If you don't mind me asking, are you seeing a gi? I see Dr. Em at salem gastroenterology, he's awesome. I actually only had to see him twice before diagnosed, imagine that! My family doctor is the stubborn moron, he's over at the salem clinic, I'm looking to change that soon. I saw him about 6 times over a period of a year and a half before he even gave me a refferal, that I had to ask for. :blink: Well, welcome to the group, if I find any good gluten-free stuff here in town I'll be sure to share, or don't hesitate to ask....Julie

Adelle Enthusiast
Adelle
Posted
  • Author

No I'm not seeing a GI yet, I did about 4.5 years ago. He said I was, "just fine". So I really don't want to see another doc, yet. Yay more people in salem!! I'm me or something sometime :). Anyway, I'm so happy to find a place like this. I just got a bread maker today. Mmmm gluten-free sandwiches. Well, I have nothing else to say. Thanks for bein here ya'll!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome Adelle:

I just wanted to add that the poster "Nini" has a gluten free startes list, that has lots of great information for those begining the diet. Just remember, being gluten free, is not all about food. Gluten can be found the shampoos, soap, cat food, dog food, face creams and and basically anything that can get into your mouth.

Do a members search for her name and personal message her and it will be there for you.

Again, welcome to the world of Celiacland.

Lisa

par18 Apprentice
par18
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

Hi,

I am really impressed that you were able to find out on your own. Also that you feel confident that the diet is your answer. Just keep listening to your body. Having a spouse willing to support you makes all the difference. I feel 100% that you will continue to progress. My wife supported my diet and our home is gluten free. Good luck and welcome. Your success is our success!

Tom

Adelle Enthusiast
Adelle
Posted
  • Author

I know I'm uber lucky! Yay! So far things are going well (3.5 weeks!). Someone mentioned to look in unexpected stuff, all clear, I randomly got lucky with my bath products, I already cleared/washed the cupboards. But I forgot to check my guinea pig food! I have 2 piggies, boudika and maeve. Their food contains wheat. Oh no! I can't just not feed them. Luckily ryan (my husband) volunteered to feed them (and buy the food etc) so I don't have to touch it! I also work with horses (many of whom eat oats), so I'l have to wash my hands a ton and be extra careful. Anyway I feel so welcomed! Yay!

AndreaB Contributor
AndreaB
Posted

I love horses!!!!!

I had one in high school. Now I collect breyer custom painted horses. :)

cowrdlyon Rookie
cowrdlyon
Posted

Conragtulations on finding the site. I too was only diagnosed recently. August 16th to be exact. I was on vacation at the beach and got a call from the doctors office...Happy Birthday, I know your on vacation so enjoy the sun...By the way, stop eating all wheat and products containing gluten bacause that's what has been making you sick for the last 4 months!!! Not the perfect way or day to find out but what can ya do? I've been gluten free since 3 days after that and I feel so much better. So......Welcome, Welcome, Welcome and hang in there!

lovebug Newbie
lovebug
Posted
Hey! My name is Adelle, and I'm from salem, oregon. Ummmm..... What should I say?? I'm soooooo glad to have found ya'll!!!! I have been getting progressively weaker for the past 6 years (I'm 22 now). I have been close to bedbound from pain and fatigue. 9 docs have either given up or said it was a "mental thing". I finally took charge of my health and googled my symptoms. I cut gluten out and in 4 days I felt better than I had in a year. My doc (#10) did the blood test, I'm at his office waiting for the official word, but his office called telling me to stay on the diet! I feel incredible! I am now a certified equine massage therapist (yay!) and I'm practically going insane from all the energy. I'm married and my hubby is going gluten free too (how swet!). My fam is great (keeping food I can eat there, adjusting thanksgiving etc). This feels like a miracle. Ahhhhh yay!

thats great you are lucky. i was diagnosed in april and have been on the gluten-free diet ever since but i am very sick. i myself am so week i cant work.

debmidge Rising Star
debmidge
Posted

Adelle

Welcome! You'll be glad that you came aboard. There's a great group of people here who are very eager to share tips, hints and commiserate with you if you need it.

Don't be bashful about joining in any of the threads.

Deb

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,874
    • Most Online (within 30 mins)
      7,748
    RoxanneK
    Newest Member
    RoxanneK
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
    • Wheatwacked
      Gluten-Free Newbie

      By Wheatwacked · Posted

      Hello @Suze046 In the western world 40 to 60 percent are low or deficient in Vitamin D.  Malabsorption from Celiac Disease, avoidance of UV from the sun and seasonal variations can result in low vitamin D.  A simple 25(OH)D test will tell you your status.  Low vitamin D affects immune system, bone health, mental health.  I keep mine around 80 ng/ml (200 nmol/L). Choline has many functions in our body.  From the neurotransmitter Acetylcholine to fat digestion.  It is made by our bodies but in insufficient amount.  The major dietary source is from beef and eggs.  The RDA is 500 mg a day.  That would be equivelant to 3 eggs or 10 cups of cooked brocolli a day.  Choline is a significant portion of biliary phospholipids and is a crucial element for bile function.n.  I found taking Phosphatidly Choline capsules helps.  A homocysteine test can be indicative of choline deficiency.  Could we be overlooking a potential choline crisis in the United Kingdom? NIH Choline Fact Sheet Vitamin D Is Not as Toxic as Was Once Thought
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
×
×
  • Create New...