Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can My Gi Dr. Be Wrong?

EddieJP125

By EddieJP125
in Doctors

Recommended Posts

EddieJP125 Explorer
EddieJP125
Posted
:unsure: hey everybody...i've been cheatin with the gluten-free diet here and there...And i feel fine...except for bloating?...can my dr. be wrong about the bloodwork, and biopsy?
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

Eddie,

You're probably just a celiac without a lot of symptoms -- bloating, plus bloodwork, plus a biopsy would mean you surely have it, I would think. Some celiacs have no symptoms; you have very mild ones.

joemoe003 Apprentice
joemoe003
Posted

im like that to...i cheat and i feel fine (i havent been dxed by the doc but im pretty sure i have celiac disease) but remember you may not have symptoms but you are still hurting your self on the inside. jus be strong and try not to cheat!

Boojca Apprentice
Boojca
Posted

Sorry Eddie, but the other two here are right. Some people go their entire lives with no symptoms at all. My son has no "GI symptoms"...none of the diarrhea, bloating, etc..., he just suddenly lost a lot of weight and was very lethargic. He's been gluten-free just over a month now, and he's already gained 5 lbs back!

Anyway, if your blood work said you have celiac disease, you have celiac disease. You are just among the "lucky" ones that don't feel it when you cheat. I say lucky bc I wonder about that sometimes. It would be great for those who DO get those symptoms to be able to flub, or have someone else flub, and not have to pay for it for hours/days/weeks after. But, on the other hand, those who do not have any of those "consequences" tend to think it ain't no big deal and "cheat" and cheat often...and do some serious damage to their insides.

But, as I've said to others before, it's all up to you to decide how strict you are going to be. Just remember, though, you can develop "new" symptoms at any time. So that gluten-filled food you eat could be your immediate ticket to the "montazuma's revenge 5K" to the bathroom!!!

Welcome to the boards!

Bridget

dana-g Newbie
dana-g
Posted

My 11-year-old daughter was biopsied only because I was dx'd with celiac disease. She had NO symptoms, elevated bloodwork. Her gut, however, was a mess. Think I should let her eat gluten? Didn't think so! Stick with the doctor's advice--how lucky you are to have a doctor who actually dx'd you in the first place!

Dana

flagbabyds Collaborator
flagbabyds
Posted

You're probalby just A-Symoptommatic

lovegrov Collaborator
lovegrov
Posted

As others said, if your bloodwork and biopsy were positive, you absolutely have celiac. Mine were all highly positive and I was so ill I was near death, yet when I make mistakes now (I've never cheated on purpose) I don't react.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kvogt Rookie
kvogt
Posted

I doubt your lab made an error, but it is remotely possible. If you are concerned, repeat the blood work. If your gut doesn't play up too much, you may be working on some other autoimmunde disease in your future, like lupus, rheumatoid arthritis, asthema, or something else equally difficult. Look at your parents, grandparents and their cousins and see what your heritage tends towards. Some of the possibilities of untreated celiac disease are fatal, so I would recommend anyone who is cheating to get serious.

EddieJP125 Explorer
EddieJP125
Posted
  • Author

my grandfather never drank..but died of Liver Cancer when my mother was a teen...but they were from a Korean Ethnic back ground...i know it is rare in the Asians to have celiac disease...but i'm an American born and raised...she doesn't like to talk about it...i'll ask my dr. again for a second bloodwork, and i have been goin through meds for my hernia, hemmroids, and stomach ulcers...which probably is from havin celiac disease, right?....

but i'm done cheating now, b/c i was in sooooo much pain, to the point i was goin to call 911, so i'm done with cheating... :)

itz funny that i would have to call 911 to request medical support when i'm an EMT myself :D

flagbabyds Collaborator
flagbabyds
Posted

Well if you were in so much pain when you were cheating then you know you have it! Why would you get re-tested?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

      @Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...
    2. knitty kitty
      - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...
    5. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,084
    • Most Online (within 30 mins)
      7,748
    BlueIcyRose
    Newest Member
    BlueIcyRose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.