Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Maine?

RickC

By RickC
in Introduce Yourself / Share Stuff

Recommended Posts

RickC Newbie
RickC
Posted

Hi there. I found out I have Celiac about a year ago. Is there anyone out there from Maine?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted
Hi there. I found out I have Celiac about a year ago. Is there anyone out there from Maine?

I live in Southern Maine.

powderprincess Rookie
powderprincess
Posted

Hi, i am not from Maine, my hubby is. We travel there a lot for family things

Where in Maine are you?

Lisa Mentor
Lisa
Posted

I believe that "Ocean Girl" is also from Maine. Gosh, I wish I was.

watssup1 Newbie
watssup1
Posted

I am not from Maine but I am moving to Maine next June. I was diagnosed with Celiac Disease 4 years ago. The diet is hard at first but once you get used to it, you start to feel much better. The problem that I have is that I am hungry all of the time. Sometimes, depending on where I am when I get hungry, if I want something to eat I will have to eat something with Gluten in it. Only lately did I feel the serious effects of eating Gluten. I used to be able to eat dairy but not anymore. Lactose Intolerence is also common in Celiacs.

How have you been doing on the diet, being from Maine? My name is Chris.

eKatherine Apprentice
eKatherine
Posted

I am self-diagnosed, based on arthritis and inflammation which went away when I happened to give up carbs for a few days. I've been gluten-free for 3 years now. I always bring meals with me when I'm expecting to be away from home working, although I generally don't have intestinal reactions to eating gluten. It would just make it painful to walk.

The diet has been pretty easy for me, since I've always done all of my own cooking. I don't know of any restaurant around here that has any clue about gluten-free food, and I don't eat out to speak of anyway.

oceangirl Collaborator
oceangirl
Posted
I am self-diagnosed, based on arthritis and inflammation which went away when I happened to give up carbs for a few days. I've been gluten-free for 3 years now. I always bring meals with me when I'm expecting to be away from home working, although I generally don't have intestinal reactions to eating gluten. It would just make it painful to walk.

The diet has been pretty easy for me, since I've always done all of my own cooking. I don't know of any restaurant around here that has any clue about gluten-free food, and I don't eat out to speak of anyway.

RickC,

Hi, and welcome to the Board. I'm from Southern Maine and diagnosed myself through positive bloodwork and then Enterolab in June. I'm still in the paranoid phase and only eat out at a friends' restaurant where they grow their own organic food and they know about gluten. (It's a great place called "Joshua"s" and it's on Route 1 in Wells.) There must be someone in Portland who runs a restaurant that has gluten-free items. Actually, I THINK I saw on here that "Katahdin" on High St. does? But I've never checked it out. What part of the Great State of Maine are you from?

It's nice to have you here!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tay Newbie
Tay
Posted

Hello:

I live in Baltimore but my family has a smal house there. I go to Kennebunkport about 1x per month except in winter. It is great to get some restaurant recs. as I always want to eat out while there but have had some problems with reactions. - Thank you! The natural foods store in Kennebunk stocks some great gluten-free foods, inc. Kinnikinnick food doughnuts - I love them.

  • 5 months later...
loco-ladi Contributor
loco-ladi
Posted

I am formerly from Maine, born and raised there, I have a cousin who also is a celiac who still lives in Franklin county. currently I live in Nebraska

Maeve Newbie
Maeve
Posted
:rolleyes: Hi, I have lived in Maine for 30 yrs,, came here to play "Grizzly Adams" with husband (log cabin in the woods thing",. It's really hard having Celiac in ME because Bar Harbor Ale Micro Brew is like the best beer in the whole darn world. The Blueberry beer was a little bit of heaven, we would hike a small mountain with wild blueberries on it and actually smell the blueberries. Then go and have a blueberry beer (ice cold, on tap) from Lompoc's in Bar Harbor. Boy, those were the days. Blueberry wine doesn't come close. Oh well, I still have the mountains and the ocean.
Joan (Maine) Newbie
Joan (Maine)
Posted

Maeve,

Joan (Maine) Newbie
Joan (Maine)
Posted

Maeve,

I live near Bangor and work in Ellsworth. Once a month we have a Celiac Meeting in Bangor. It is very low key and there are lots helpful tips and information.

Sincerely,

Joan

miles2go Contributor
miles2go
Posted

Hi Maeve and Joan,

I'm also in the Bangor area and attended one of those celiac support meetings. I think I'm more of an online kind-o-person, but could probably be convinced otherwise to meet y'all. :)

Maeve, have you tried any of the Winterport Winery's wines yet? They are really good and I used to be a beer drinker.

I'm gearing up to start my first batch of gluten-free beer.

We gotta make do!

Margaret

P.S. Hi to OceanGirl, too! and everybody else ~!

  • 3 months later...
LynnO Newbie
LynnO
Posted
Hi there. I found out I have Celiac about a year ago. Is there anyone out there from Maine?

Hi! Not sure if i am doing this right. But I am from Maine I am from the capitol area. I found out I had Celiac earlier this year. My grandmother suffered all her life with it, and my brother has it. Recently my Aunt tested positive.

  • 2 weeks later...
Joan (Maine) Newbie
Joan (Maine)
Posted

Hi Lynn,

I live north of you near Bangor would be happy to answer questions or share information.

Joan

Hi! Not sure if i am doing this right. But I am from Maine I am from the capitol area. I found out I had Celiac earlier this year. My grandmother suffered all her life with it, and my brother has it. Recently my Aunt tested positive.

  • 2 weeks later...
LynnO Newbie
LynnO
Posted

Hi Joan, I just went grocery shopping and I always find something new that I can eat! I just made a sandwich with some Hormel turkey, slice of cheese, annies mustard, and 2 rice cakes. MMM that was good, i have days were i really miss bread! I also have been craving hot dogs and not sure which ones were okay - i found Jenni O w/ scooby do on the package that were gluten free. I was so excited! I have been having a problem with tooth paste and read some posts about it, and didnt even realize the toothpaste i was using i could be bothering my mouth, so i bought some uncle tom's. I am wondering if i can contribute some of my bad complextion to my celiac. do you use or do you have a recommendations? i am like any one trying to keep the wrinkles at bay. but i do find my face breaks out real bad - some of that i can call hormones, but i wonder?? any advice? thanks!!! Lynn

Hi Lynn,

I live north of you near Bangor would be happy to answer questions or share information.

Joan

Hi! Not sure if i am doing this right. But I am from Maine I am from the capitol area. I found out I had Celiac earlier this year. My grandmother suffered all her life with it, and my brother has it. Recently my Aunt tested positive.

  • 1 month later...
jmoody74 Newbie
jmoody74
Posted
Hi there. I found out I have Celiac about a year ago. Is there anyone out there from Maine?

We live near Portland, Maine. My son (10 years old) was diagnosed the beginning of this year. Found any good places to get gluten-free baked goods around Portland? His birthdays coming up and I am so scared about trying to bake a cake.

  • 2 weeks later...
Kelly C. Rookie
Kelly C.
Posted

Hi! I'm from Brewer and was diagnosed about a two years ago. I rarely go out to eat, but when I do, it's always Bugaboo Creek in Bangor because they have a gluten free menu. I discovered that Uno's has a gluten free menu from their website, but haven't tried going there yet. I was wondering if any of you have tried eating gluten-free in at the Bangor Uno's, and if so, what was your experiences? I've been weary about it, because I can imagine it may be easy to get some contaminated food there.

Kelly C. Rookie
Kelly C.
Posted
We live near Portland, Maine. My son (10 years old) was diagnosed the beginning of this year. Found any good places to get gluten-free baked goods around Portland? His birthdays coming up and I am so scared about trying to bake a cake.

I don't know about Portland area, but I had a gluten free wedding cake made by Taylor Made Parties in Augusta. I provided them with the recipie because she had never made a gluten free wedding cake before, and it came out awesome. She said she kept the recipie for others who may want a gluten free cake in the future. She does cakes for all occassions.

Kelly C. Rookie
Kelly C.
Posted

Does anyone know of any restaruants that are either familiar with celiac disease or have gluten free menus in the Bangor or Bar Harbor area? (other than Bugaboo Creek)

Kelly C. Rookie
Kelly C.
Posted

Does anyone know of any restaruants that are either familiar with celiac disease or have gluten free menus in the Bangor or Bar Harbor area? (other than Bugaboo Creek)

  • 3 months later...
Rai-Lee Newbie
Rai-Lee
Posted

I live in the Lewiston/Auburn area in Maine. I was diagnosed about 2 years ago while going to college in Canada, and now find myself back home, with few local gluten free contacts. I'd love to make some local celiac friends to hang out with over lunch somewhere and share experiences. I've had good luck eating at Pepper and Spice Thai restaurant in Lewiston, much of their menu uses rice noodles and is naturally gluten free. You just have to stay away from a few appetizers. Thai food is tasty!

Rai-Lee

  • 4 months later...
ProdigiousGroove Newbie
ProdigiousGroove
Posted

If you're in the Biddeford area, Union House Cafe has some gluten free options - particularly if you call ahead. They specialize in lunch. They make a great macaroni and cheese and are experimenting with other foods, like brownies. The owners are extremely nice and eager to work with you. They also do catering. They are talking about putting some gluten free choices on the menu permanently. Plus - as a bonus, they have the best coffee I've ever tasted an free WiFi.

Another choice for catering is Cafe on the Corner in Biddeford. You can visit their deli-style cafe in Biddeford for sit down, or order food to go. The cafe itself is not gluten free - but the owner is, so she understands gluten-free needs. Also wonderful food.

In Portland, Flatbread now offers a gluten-free pizza cooked on a dedicated pan and prepared offsite in a gluten free environment - I can't vouch for cross-contamination at the restaurant, though, since I haven't tried it yet.

As far as bread & cakes & such, you can find pretty much anything you want between Hannaford's natural foods section & Whole Foods in Portland. Both have separate gluten free sections and you can get all different kinds of bread/pastry mixes, gluten-free oreos, other cookies, etc.

I have to say, when I went gluten-free 6 years ago, I missed bread too, but now with all of these great products coming out that are carried by every grocery store, it's really no big loss. I can pretty much get my fix of whatever. Restaurants are the final frontier, but even they are coming over.

  • 2 months later...
oceangirl Collaborator
oceangirl
Posted

Hi! wow, this is an old thread, but, hello to all Mainers out there! I am still in Southern Maine and still do not go out to eat practically ever. But I love to hear of any Portland and south restaurants that truly get "gluten-free" for the very sensitive. I'd love to try going out again someday...

If any Mainers read this, would love to hear from you!

lisa

  • 4 months later...
LEL Newbie
LEL
Posted
Hi! wow, this is an old thread, but, hello to all Mainers out there! I am still in Southern Maine and still do not go out to eat practically ever. But I love to hear of any Portland and south restaurants that truly get "gluten-free" for the very sensitive. I'd love to try going out again someday...

If any Mainers read this, would love to hear from you!

lisa

I've tried Fresh! in South Portland and they've been very accommodating. They're happy to modify almost anything on their menu to be gluten-free. Since they prepare everything there fresh (hence the name) there is a lot of variety. Their salads are fabulous and they can take any of their entrees that are usually served with pasta and serve it over spinach instead. It's nice and healthy that way.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.