Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Deficiencies

Guest adamssa

By Guest adamssa
in Post Diagnosis, Recovery & Treatment of Celiac Disease

Recommended Posts

Guest adamssa
Guest adamssa
Posted

Hi Everyone,

Do any of you guys also have this problem? I recently realized that I've been having lots of problems lately probably because I stopped taking a vitamin b supplement, and now that I am again already am improving a little. I thought I knew about everything else I had to be on the look out for! But I was really feeling pretty bad again, and it will take some time to build that up again I think. I see a holistic person, and they told me I didn't need to take one. It's as if you always have to figure everything out on your own, you can never count on any sort of health practitioner to be more helpful than not.

I am just kind of bummed that it is so easy for just one thing to throw you off so much! I've been having bad brain fog and trouble eating anything that wasn't gluten-free tuna out of a can. It's like you can never have all your bases covered...

Just kind of wanted to complain about that, I guess...

Also, do you guys think a b vitamin complex and niacin is enough, or are celiacs more inclined to be definicent in other specific b vitamins?

Sara

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

The deficiencies will vary from person to person, but it seems all of us need to get more of something or other in order to keep from having even more problems. That's the nature of a compromised gut. I doubt anyone can tell you which nutrients you lack without a ton of tests, and even then I doubt it would be entirely accurate. Your doctor shouldn't say it like it's for certain that you don't need any supplements, but given ideal circumstances our food would supply everything. Real life doesn't always work the way it's supposed to :rolleyes:

Many on this board find it helpful to get extra magnesium, since it's very important for the absorption of other nutrients. So just getting that can help other deficiencies.

cathzozo Apprentice
cathzozo
Posted

I recently picked up The Real Vitamin and Mineral Book by Shari Lieberman. It's an awesome book. She supports more supplementation than the average American takes. I think she does a great job explaining her scientific rationale and citing studies, as well as emphasizing that you will find your own optimum supplementation program.

One thing that is mentioned in the book is that many celiacs are low on B-12. And for B-12, the best way to get it is through shots or sublingual. I do sublingual because I don't want any more shots than I have to. Regular oral supplements don't usually get absorbed for B-12.

Good luck!

rinne Apprentice
rinne
Posted

My Vitamin B 12 is at 226 and I've been told I need injections, do you know what your levels are at?

Guest adamssa
Guest adamssa
Posted

so taking B12 in pill form isn't going to be all that effective.? too bad. I really don't want injections.

RiceGuy Collaborator
RiceGuy
Posted
so taking B12 in pill form isn't going to be all that effective.? too bad. I really don't want injections.

You don't need to get injections. Just go for the sublingual type of B12. That's the kind which you place under the tongue. It comes in either liquid or pill form, and is supposed to be a good replacement for the shots. Apparently the type of B12 in those can go directly into the bloodstream, bypassing the need for the stomach and liver to do their stuff in order to make use of it.

annacsmom Apprentice
annacsmom
Posted

My daughter was recently diagnosed (18 yrs old), and one of her defining symptoms was anemia. Her naturopath put her on a good iron supplement, but told her to go off it in a month. She's away at college, and I think the ND was afraid of too much iron. Well, my daughter was off it for two weeks, and although she doesn't feel well in general, she started feeling pretty badly. I told her to continue the iron again. Obviously her anemia can't even be close to being resolved, so I didn't think we should worry about overdosing on iron just yet. Plus her hair loss was getting very bad again, which can be related to low iron. So my advice is to absolutely go by how you feel. I did eventually tell the ND that I have her back on the iron again. As a parent, who has done more research than most doctors, I have found that being bold isn't a bad thing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DingoGirl Enthusiast
DingoGirl
Posted

Been taking B12 sublingually for weeks now...no difference at all in mind/energy level/well-being...how long is it supposed to take - anyone know?

Guest adamssa
Guest adamssa
Posted

as far as any b vitamin goes, it can help right away or take a few weeks to help as much as it will. you should the subtler affects sooner. but it can't hurt, so i wouldn't stop.

Michi8 Contributor
Michi8
Posted
as far as any b vitamin goes, it can help right away or take a few weeks to help as much as it will. you should the subtler affects sooner. but it can't hurt, so i wouldn't stop.

I pray that B12 is never a definciency for me...since I'm allergic to cobalt, I can not take any type of B12 supplement. I haven't been able to find any info on treating B12 definciency in this regard. I assume that it would need to be treated with diet alone.

Michelle

georgie Enthusiast
georgie
Posted

Susan,

Been taking B12 sublingually for weeks now...no difference at all in mind/energy level/well-being...how long is it supposed to take - anyone know?

Some people notice no difference with sublinguals and needs injections. How low was your B12 ? Correct loading dose varies but is intensive - weekly or daily jabs for weeks - followed by monthly jabs for life. The sublinguals may work once you level is a bit higher.

Methylcobalamin 3000mcg is the best type.

Michelle,

Is there cobalt in the jabs ?

Diet won't work ! The old fashioned remedy for Pernicious Anaemia was to eat 500g of RAW liver a day !!!!!!!!!!

I pray that B12 is never a definciency for me...since I'm allergic to cobalt, I can not take any type of B12 supplement. I haven't been able to find any info on treating B12 definciency in this regard. I assume that it would need to be treated with diet alone.

Mine was 148 this year when dx. <300 is bad and b12 number should be 800 - 1000 !

I have had 12 weeks of weekly jabs, and soon will have monthly jabs. I am also taking sublngual lozenges. Still tired as I have Thyroid as well and take Armour for that - and that can take months to get right dose.

My Vitamin B 12 is at 226 and I've been told I need injections, do you know what your levels are at?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    3. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

    4. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it. There are...
    5. lalan45
      - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,840
    • Most Online (within 30 mins)
      7,748
    Pat C
    Newest Member
    Pat C
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.