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What Would You Do?

Thankagirl

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Thankagirl Rookie
Thankagirl
Posted

I just got a new Prescription for Etodolac - the generic version of Lodine.

Lodine is gluten-free but I cannot find out if the generic is.

Yesterday I started taking it anyway (I know probably real dumb)

I have had brain fog and itchy armpits and head.

Now the issue is dizziness and itchy can be side effects.

My stomach is fine.

I called the pharmacist who opened the package and looked at the list and said - I see no GLUE Teen listed.

UGH. Well DUH! I asked the pharmacist to fax it over so I could check it out. She said it was to small because it was the insert but I could go look. I am not sure I would know what ingredient had gluten or not.

If the pharmacist doesn't know how could I?

The dr doesn't have office hours until next week.

What should I do? I guess stop taking the pill would be good.

I told you I have brain fog right now!

LOL

Any advise would help.

Thanks for bearing with my dumbness....

Sarah

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CarlaB Enthusiast
CarlaB
Posted
I just got a new Prescription for Etodolac - the generic version of Lodine.

Lodine is gluten-free but I cannot find out if the generic is.

Yesterday I started taking it anyway (I know probably real dumb)

I have had brain fog and itchy armpits and head.

Now the issue is dizziness and itchy can be side effects.

My stomach is fine.

I called the pharmacist who opened the package and looked at the list and said - I see no GLUE Teen listed.

UGH. Well DUH! I asked the pharmacist to fax it over so I could check it out. She said it was to small because it was the insert but I could go look. I am not sure I would know what ingredient had gluten or not.

If the pharmacist doesn't know how could I?

The dr doesn't have office hours until next week.

What should I do? I guess stop taking the pill would be good.

I told you I have brain fog right now!

LOL

Any advise would help.

Thanks for bearing with my dumbness....

Sarah

I'd call another pharmacy, or ask for the pharmacist, hopefully you just got an assistant.

jerseyangel Proficient
jerseyangel
Posted

Hi Sarah,

I never seem to be able to get an answer from either my doctor or the pharmasist at the store I go to.

What I *always* do before taking any prescription medication--find out who makes the med--CVS lists it on the RX label. If it's not there, the pharmacist can tell you.

Go to the manufacturer's website or call information to get their phone number. Call and speak to someone (usually a pharmacist or nurse) directly.

I've done this successfully with both name brand and generic drugs :)

jesscarmel Enthusiast
jesscarmel
Posted

Hi

I always call the manufacturer before taking pills. the manufatcurer name should be on the bottle

Jess

Shalia Apprentice
Shalia
Posted

I found a PI sheet with the inactive ingredients online, but I don't know if it's the right manufacturer.

Who is the manufacturer?

Here's the link I found. Open Original Shared Link

tiffjake Enthusiast
tiffjake
Posted
I found a PI sheet with the inactive ingredients online, but I don't know if it's the right manufacturer.

Who is the manufacturer?

Here's the link I found. Open Original Shared Link

Here are the manufacturers, Mylan, Teva, Actavis Elizabeth, EON LABS, and Taro Pharm. I will try to look things up, BUT you should still call them on monday.

Mylan-724-514-1800

Teva-215-591-3000

Actavis, Elizabeth Location- 908-527-9100

EON Labs- 718-276-8600

Taro Pharm- 914-345-9001

LKelly8 Rookie
LKelly8
Posted

All Teva products are gluten-free. I take generic lodine too, 500mg, from PurePac. (Now merged with Actavis)

The manufactuer name should be on the Rx sticker on the bottle, just after the drug name or dose. :blink: It's easy to miss.

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Guhlia Rising Star
Guhlia
Posted

The manufacturer may be listed wiht an abbreviation. That's how mine usually are. You may have to call your pharmacy to find out what the abbreviation means. Either way, calling the manufacturer is definitely your best bet.

mouse Enthusiast
mouse
Posted

If I get a new RX, I either email the manufactor or I call them. The problem I have had with generic is that sometimes the drug manufacture will not even answer my email. And the last generic I took was about 2 months ago and it was suppose to be gluten-free. And it certainly wasn't. It was made in India and I can only assume there was some CC. My mail in pharmacy then sent me the non-generic one.

Thankagirl Rookie
Thankagirl
Posted
  • Author

Thank you all for your input.

I got ahold of the other Dr in the office and he said to just stop taking it - duh. I obviously had a problem with it. The next day I felt great.

But for future I am looking up every medication first. I was just so excited to get pain free.

I felt like I lost 2 days to fog and itching and feeling down right awful.

Feeling better now :)

Sarah

jerseyangel Proficient
jerseyangel
Posted

Glad you're feeling better now, Sarah :)

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      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
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      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
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