Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing The Specialist In 3 Days :-x


num1habsfan

Recommended Posts

num1habsfan Rising Star

I shouldnt be afraid of seeing this specialist---I saw him twice before (he was the one that performed my first colonoscopy)

I guess I'm just afraid of him not knowing the answer to my problems either! I have the copy of the letters from my recent test results (to give to the specialist) I'm gonna type both up and maybe you guys can decipher lol .. all my family doc said was they both turned up negative obviously, but half these words I cant even say!

"BARIUM ENEMA FOLLOW-THROUGH:

CLININCAL HISTORY:

This is a 22-year-old female with a historhy of weight loss, blood diarrhea

FINDINGS:

Normal small bowel and the ascending part of the large bowel. Normal preistaltic movement and flow. No evidence of abnormal dilatation of the small bowel. No transiet intussusception or filling defect. Normal fill pattern of the jejunum and the ileum. Normal appendix has been demonstrated.

IMPRESSION:

Unremarkable study."

and.....

"INDICATIONS: HISTORY OF BLOODY DIARRHEA.

...blah blah blah...

PROCEDURE: COLONOSCOPY.

FINDINGS: Examination was carried up to the cecum. The cecum was identified by the triadiate fold and ileocecal valve. Examination up to the cecum was normal. No mucosal lesion was found to explain her symptoms. It is likely that her diarrhea is of infective origin.

ENDOSCOPIC DIAGNOSIS: NO MUCOSAL LESION FOUND - IT IS LIKELY THAT HER DIARRHEA IS OF INFECTIVE ORIGIN"

...................

Well theres the OFFICIAL wording :lol: If anyone can understand that, great, cause I cant haha ... we know it isnt infection causing it because like I said, I've been on the meds 3 times this year already (this'll be my 4th) and he gave me one of the strongest doses, so it should have killed it the first 3 times if it was an infection!

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

It is saying that your food and waste are moving normally through the various parts of your intestines and that there are no signs of damage to the intestines that would cause bleeding. The bleeding you have had, they believe, was caused by an infection in your intestines that appears to be healed.

Steve

Carriefaith Enthusiast

This is my opinion: They are not sure where the blood came from. Your small and large intestine seem normal. They didn't seem to find any direct evidence of the blood origin (such as hemroids, infections, lesions, ect). The blood you had may be from something that they can't see or something that was there and is now gone.

I wish you luck at your appointment and I hope that they can help you find an answer.

num1habsfan Rising Star

God, I cant even concentrate on homework tonight, too busy thinking about Tuesday no matter how hard I try not toooooo

Remember: This specialist decides me next step--if I should be tested again for something else, or if not, do I go to another province?

I'm thinking of taking my list of Crohn's symptoms that I put together and that I've checked off which of them I've had (which is almot all), see what he thinks of that...

~lisa~

jerseyangel Proficient

Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

Rikki Tikki Explorer

Nothing to add Lisa:

Just wanted to wish you luck

num1habsfan Rising Star
Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

well like i said, I still swear I have it..it would explain my trouble with eating veggies too, and anything else! And I know what its like to have a disease and have no proof: thats how it was with Celiac!

Thanks for liking the pic, I figured I should show that I really AM the #1 Habs fan ;) (and thats how I look during any hockey game I watch--ALWAYS must wear a hat and jersey!)--just wish it wouldnt make me look squished :lol:

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Yep. Definitely bring in the list.

Love the picture too!

Nancy

num1habsfan Rising Star

They have free internet access in the hotel here, so I got internet for all of today.. yay! So i promise as soon as I get back to the room after my appointment (which is less than 3 hours from now!) I'll come here and post about it!

*NERVOUS*

~lisa~

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    Shelly Fitzgerald
    Newest Member
    Shelly Fitzgerald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.