Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Indegestion


taz sharratt

Recommended Posts

taz sharratt Enthusiast

anyone know of something for indegestion, im in awfull pain at the mo, everything i seem to eat leaves me in pain. has to be lactose free and possibly soya.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

You may want to try Digestive Enzymes...they have helped me a lot over the years.

taz sharratt Enthusiast
You may want to try Digestive Enzymes...they have helped me a lot over the years.

thanx kaiti, would i have to go to the doctors or could i get it over the counter. are there brands that i should look for. sorry gone on a bit.

TinkerbellSwt Collaborator

I wrote this in another thread, but I dont know where that was.. sooo.. I have major problems with indigestion. My dad and brother have always had major problems (I suspect that my dads side of the family is where my Celiacs comes from) But anyway... my indigestion has gotten considerably worse since gluten free. I usually would only get the indigestion from raw onions and really really spicy foods.. now everything gives it to me.

My dad introduced me to Zegrid. Its newer. You can only get it by prescription. Its a large pill to take. My dad actually had to get it in the powder form b/c he couldnt take the pill. The powder tastes awful. But it works.

I dont know anything about digestive enzymes. I hear that they work though. If they are available otc, I might try those first. I am sure someone on here has more info on those.

NoGluGirl Contributor
I wrote this in another thread, but I dont know where that was.. sooo.. I have major problems with indigestion. My dad and brother have always had major problems (I suspect that my dads side of the family is where my Celiacs comes from) But anyway... my indigestion has gotten considerably worse since gluten free. I usually would only get the indigestion from raw onions and really really spicy foods.. now everything gives it to me.

My dad introduced me to Zegrid. Its newer. You can only get it by prescription. Its a large pill to take. My dad actually had to get it in the powder form b/c he couldnt take the pill. The powder tastes awful. But it works.

I dont know anything about digestive enzymes. I hear that they work though. If they are available otc, I might try those first. I am sure someone on here has more info on those.

Dear Taz Sharret and TinkerbellSwt,

I have had such bad reflux that I had to sleep practically sitting straight up. This was with taking Prilosec OTC twice daily and watching my diet! The thing is, I could suck the juice out of a jalepeno, and not get bothered, but if I ate tuna and crackers or cereal, I would be so sick! After going gluten-free that has helped, but I still take the Prilosec. Guess what? You could get the same effects from Prilosec OTC that you get from Zegrid! You know why? They are both Omeprazole! That is right, the same thing!

Sincerely,

NoGluGirl B)

ebrbetty Rising Star

are you having heartburn?? if so try a little baking soda mixed with water. DGL is a great homeopathic. I also sleep on a 6 inch wedge to keep the acid down[big help] and take Reglan 30 mins before each meal, its made a big difference for me, helps the food digest [i have slow gastric emptying] along with helping control acid

TinkerbellSwt Collaborator

I know that Prilosec and Zegrid are the same thing.. for some unknown reason?? I find that Zegrid works better! Maybe its just mind over matter!!! ;)

I also get so bad that I have to sleep sitting up. And drinking glass after glass of milk. Eventually it goes away.

(and for us RX's are cheaper than OTC) sometimes I really like insurances!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    3. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748

    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.