Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else In Central Upstate Ny?

TriticusToxicum

Recommended Posts

TriticusToxicum Explorer
TriticusToxicum
Posted

Just curious. I know of 2 other individuals w/ Celiac's in my area. One of them is my sister! I figure there are others out there! Come on in!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

How about near Western New York across the Canadian border? It's the best I can do. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

ravenwoodglass Mentor
ravenwoodglass
Posted
Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

jerseyangel Proficient
jerseyangel
Posted

My husband and I are both from Syracuse--our families are still there. We used to have family picnics at Keuka Lake years ago--my mom's family also has people in Owego and Auburn.

Ravenwood--you're so right about how beautiful it is up there--especially this time of year.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

jerseyangel Proficient
jerseyangel
Posted
One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

Ouch is right :lol:

babygirl1234 Rookie
babygirl1234
Posted

buffalo ny here

ravenwoodglass Mentor
ravenwoodglass
Posted
buffalo ny here

The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.

lorka150 Collaborator
lorka150
Posted

the falls are wonderful until you live there :P

jerseyangel Proficient
jerseyangel
Posted

We went to the Falls on our honeymoon! (I know, very original! :lol: )

lorka150 Collaborator
lorka150
Posted

i love niagara on the lake, but can do without the falls. some 'hidden' parts are nice. i live on the canadian side, though. the american side, in my opinion, is really grungy. although i am sure there are hidden parts on there i dont know, too.

Anteau25 Apprentice
Anteau25
Posted
buffalo ny here

Hey, I'm from Buffalo too!!

babygirl1234 Rookie
babygirl1234
Posted

cool :) ive been gluten-free since i was 16

utopia Newbie
utopia
Posted

Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

jerseyangel Proficient
jerseyangel
Posted
Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

Hi and welcome to the board :D Always great to meet a fellow Central New Yorker B)

I'm glad you found a doctor who will listen and work with you--you're right, that's half the battle right there! Yes, read up on the recipes and the products forums--lots of great info there. Good luck on the tests, and feel free to post with any questions you might have. Last year was my first gluten-free, so I know that the holidays can be successfully done on the diet.

Let us know how your tests come out :)

Canadian Karen Community Regular
Canadian Karen
Posted

Don't know NY very well, I am originally from Toronto, but now live about 1 hr east of Toronto. The only time I have been to NY is when I played baseball. We used to play tournaments on the weekend, and after playing 3 games on a Saturday, we would go home, shower and change and then drive down to Buffalo to party for the night at a place called "The Library". We had designated drivers so the rest of us could have a blast. We would get home around 3 a.m. and be up at 6:00 a.m. to play a 7:00 a.m. game!!!! Ahhhhh, those were the days!

The only other thing I am aware of in NY is my niece goes to university there, in Ithaca, NY. Anyone near there?

Hugs.

Karen

Anteau25 Apprentice
Anteau25
Posted
cool :) ive been gluten-free since i was 16

Hey. Did you lose power from the snow storm? I lost it Thursday night and just got it back on today!!

babygirl1234 Rookie
babygirl1234
Posted

yes i did got it back on sunday lost it thursday night

AmyMarie Newbie
AmyMarie
Posted

I'm live in upstate, Saratoga NY. About 30 min north of Albany.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I'm live in upstate, Saratoga NY. About 30 min north of Albany.

Welcome!

That's a great area. I used to live in Albany - absolutely LOVE hiking in the Adirondacks!

  • 1 month later...
jcgirl Apprentice
jcgirl
Posted

Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748
    Elyn Joy
    Newest Member
    Elyn Joy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.