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Attitude Adjustment Needed


SAR99

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SAR99 Newbie

My son and I are starting the diet tomorrow. He is ADHD and so am I. He has one of the worst attitudes of anyone I've ever met. He's always the victim in everything. He hates me. I'm the cause of all of his problems. He doesn't and can't concentrate in school without medicine. He can't walk through the room and be told to do three things - he can only focus on one and halfway does that one thing.

Help!!!!!!

I'm starting the diet tomorrow. He'll go to school Thursday and Friday and will be out until the next Wednesday. What should I expect when we start the diet? How long will we see side effects? I believe the diet will help him, I hope that I'm not wishing for miracles.

SAR


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CarlaB Enthusiast

I don't know, but I can relate. My 16 year old son drives me nuts; he's exactly as you describe. He's a great person and can be fun to be around, but only if you don't live with him or ask him to do anything!!! ;) I think we'll have a much better relationship when he moves out. :rolleyes:

I hope the gluten-free diet affects your son's attitude. It might be bad of me, but I didn't even bother to have my son checked, what would the point be? He wouldn't stay on the diet! (I know, I know, if I read that from someone, I'd jump down their throat ... you'd have to know my son to understand -- I'm sure SAR99 knows what I mean!).

mommida Enthusiast

Good luck starting the diet!! :D

Are you going casein free too?

You should look at some of the articles on the withdrawal affect. The time it takes to notice a difference varies from person to person. Some say they noticed a difference in two days and some articles say two years.

L.

celiacgirls Apprentice

We had a miracle in our house. I noticed a change in my very difficult daughter (10 year old) within a few days when she went gluten-free. She was defiant and irritable before starting the diet. We eventually had to remove casein from her diet, too. Now, it seems that when she has any milk (even trace amounts) that behaviour comes back instantly. We are now weaning her off her antidepressant so far successfully.

For me, I could tell within 2 or 3 days, too. I was taking an a/d and could tell I needed to be off from it. I tapered off pretty quickly and haven't needed it since. I also thought I had ADD and an auditory processing disorder and those went away the first week.

I suspected my younger daughter of having ADHD but the testing showed she did not although she was "easily distracted, impulsive, and hyperactive." Now that she is gluten-free/CF, I notice this comes back when she has eaten something she shouldn't have. I'm not sure how quickly that happened, though.

None of us had any withdrawal issues. We all felt better pretty quickly. I know that isn't the case for everyone.

I think my defiant daughter feels enough better that she believes in the diet now. At the beginning, she was sure it wasn't going to help her. A few days into the diet she said in her most defiant tone, "I'm only staying on the diet until I'm 18!". ;):D Now, she says she isn't sure if she'll go off when she is out of the house. :)

Carla, I know exactly what you mean, too, but with my daughter being 10, it is much easier to control what she eats.

CarlaB Enthusiast
Carla, I know exactly what you mean, too, but with my daughter being 10, it is much easier to control what she eats.

Yea, I have no trouble with my 13 year old daughter either, even my 18 year old daughter is gluten-free! ... my son on the other hand ... I can buy something and say, "These snacks are for school snacks only, we have 8 people in this house, this prepackaged stuff is expensive, and these are ONLY for when you need something to take with you somewhere." He'll STILL eat them, and takes them down to his room -- it's in the basement and there's a huge ant problem there that has been explained to him! I always catch him and I make him PAY for the snacks! I figure gluten-free for him would be impossible ... unfortunately, as I think it would help ...

SAR99 Newbie

Thank you! I bought some snack foods today at the store. He's going to take his lunch tomorrow and I'll have a gluten-free meal tomorrow night. Today when I was at the healthfood store, a young man that works there told me that he took himself off casein and could immediately tell a difference - he could finally focus.

I know that if something doesn't change soon - one of us is going to get hurt and right now, he's the smaller one. ;)

I'm going gluten-free/cf but still have a lot to learn about the diet.

I didn't do the Enterolab testing but did do some bloodwork at my doctor's office. The first Celiac test came back positive but the 2nd one came back negative. I hurt on my right side almost immediately when I eat and then down the middle of my abdomen. As for my son, bloodwork from Sunnyside Health Center shows that he is gluten, casein and gliadin intolerant. I also need to stay away from citrus.

I live in Madison, MS and the cookbooks I've found don't cook very "southern". I'm working on finding recipes that are similar to what we're used to eating.

I hear there's a support group here in my area that I need to go visit.

Thank you all for you help and comments -- wish me luck!

Mayflowers Contributor

I've also read that putting kids on a natural diet, remove all junk, cake, candy, soda, diet anything, ice cream, and processed foods, including any with artificial colors or flavors, makes a huge turn around in their attitude. My 16 year old is going through his brooding phase. Not talking much or being very affectionate. He hides in his tornado struck room talking to his girlfriend..much of the time.


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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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