Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Found A Great Doctor!

kbtoyssni

By kbtoyssni
in Doctors

Recommended Posts

kbtoyssni Contributor
kbtoyssni
Posted

I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linds Apprentice
linds
Posted

you are lucky to have found one. I live in northern minnesota and have been to many doctors that will just dismiss any digestive issues as IBS. if it only had to be one apt. it would almost be worth the 3 hour drive south to see someone.

  • 2 months later...
geminigal Rookie
geminigal
Posted

I would love to know where you are going and who you were seeing. I just recently had a visit with a Dr. at MN-gastro in Maplewood, but would like to have other options if I am not happy with him.

happygirl Collaborator
happygirl
Posted

that is great to know! it gives us hope when we here of doctors who 'get it', even if we don't have doctors like that ;). I'm happy to hear you have found someone you can trust!

sparkles Contributor
sparkles
Posted

I live in Bloomington and would like to know the name of the doc that you saw. My primary doc really frustrates me. I am overweight and she says if you ate less you would lose weight. I think that part of my difficulty in losing weight is being a celiac. I know for those of you whose symptoms included weight loss, this is hard to understand but I think that overweight celiacs have bodies that just suck in the fat. I have been overweight all of my life so this is not a new thing. I have even looked into the weight reduction surgeries. Anyway this is off the subject... is your doc a gastro doc or internal med or what????

  • 3 weeks later...
Pinto Newbie
Pinto
Posted

I am looking for a GI Doctor near in the Burnsville area that in knowledgable about Celiac. I was very disappointed when the Dr. who did my biopsy, simply told me to call his receptionist in a week for the results. The receptionist confirmed I had Celiac and simply gave me a number to a dietician who told me very little. Almost everything I've learned about Celiac has been from reading books & the web.

lavelli27 Newbie
lavelli27
Posted

Yes, I would love to know the name of the Dr. at MN Gastro, Maplewood. I also just moved here and was diagnosed w/ Celiac in May.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
mmaguire Newbie
mmaguire
Posted

Oh Please may I have the name of your doctor! I live in Saint Paul and have just started shopping around for a medical professional to help guide me through my celiac journey. I was diagnosed as an infant but told I outgrew it. I went gluten free 6 years ago as a test and sure enough it stopped my many odd symptoms and I am a different and healthier person as a result. But I feel a need for medical guidance to stay as healthy as I can.

Looking forward to the name of your doc! and Thanks

  • 2 months later...
Helicopter Newbie
Helicopter
Posted
I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!

I have a 24 year daughter that is in need of a Doctor for her Celiacs

kbtoyssni Contributor
kbtoyssni
Posted
  • Author

So good for me not checking this thread for months after saying I found a good doctor - sorry everyone. I see Dr Ronda Stellar at the Shoreview Medical Clinic (corner of Lexington and 96). She's a regular general doctor but I love having someone who's aware of celiac and not going to be skeptical every time I mention it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.