Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Issues And Celiac?

Jolanta

Recommended Posts

Jolanta Newbie
Jolanta
Posted

I have been dealing with symptoms that include chronic diarrhea that is the absolutely worst! I have been dealing with anemia and a slew of other issues! Well, my primary decided to test my thyroid and looks like I am hyper. I have gone to the Endocrinologist and have been diagnosed with Graves Disease. After stopping gluten now for almost 1- 1/2 months, I feel wonderful! My thyroid is actually repairing itself. Also, my blood pressure has gone from a constant 160/90 to 110/80!

The primary even stated that I will probably be taken off meds for blood pressure and I probably do not have Graves disease!!!! My primary told me that I definitely have celiac. I was tested for celiac, but since I have been gluten free for this period, all tests came back negative. She does not think I need any additional tests. She said this is proof enough!

I did see a Gastro and he thinks I should be tested anyway - endoscopy and colonoscopy. I feel that these are just very nice expensive tests for the doctor to get reimbursed, and that I should probably just follow my primary doctors recommendations.

What do you think? Should I have the tests? Or does this prove that I have celiac?

Jolanta

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Welcome!!

If you've been off gluten for some time, those other tests will probably be negative as well. I don't know why they're wanting to do more tests as dietary response IS clinical proof. I wouldn't bother. You feel better, and your primary doc is working with you on it.

Jolanta Newbie
Jolanta
Posted
  • Author
Welcome!!

If you've been off gluten for some time, those other tests will probably be negative as well. I don't know why they're wanting to do more tests as dietary response IS clinical proof. I wouldn't bother. You feel better, and your primary doc is working with you on it.

That's exactly how I feel. But, there is always that little voice saying maybe it's something else. But, as you said, the diet is proof itself. My blood pressure has not been so low in over 5 years. I've been battling chronic diarrhea and unexplained anemia even longer. The docs always said the anemia was since I was a woman and had my periods. Hmmm...

I will be seeing the Endo in December and will see if the thyroid has gone back to normal. Seems that I have many antibodies... Graves or Hashimoto. Doctor said Graves most likely.

We will see... Has anyone heard of Celiacs having Graves???

Jolanta

Canadian Karen Community Regular
Canadian Karen
Posted

Hi! Welcome to the board!

I agree that the tests will basically be worthless anyway, now that you are gluten free. Even if you were still consuming gluten, the endoscopy and biopsies are basically a hit and miss situation, depending on the amount of damage done. If the damage is only sporatic, then in all likelihood the spots they pick to biopsy very well may not be the damaged parts and will come up as a false negative.

Dietary response is the most important indicator, IMO.

I have hypothryoidism, so it's a bit different from yours. I can tell you about the chronic diarrhea though, since I have not had anything but water for a BM for over a decade! The doctor also found (during the colonoscopy) that I have collagenous colitis. It can only be diagnosed via biopsy as it can only be seen by a pathologist through a microscope. Here is a link you might find interesting:

Open Original Shared Link

Oh, maybe PM KaitiUSA, I believe she has Graves......

Karen

Nancym Enthusiast
Nancym
Posted

Wow! That's' terrific. I wish I had known about the gluten/thyroid thing almost 20 years ago. Dr. Fine says that 30% of thyroiditis sufferers can go into remission on a gluten-free diet. But I went and had RAI done. :(

But I am so happy for you!

Ruth52 Newbie
Ruth52
Posted

I'm very pleased that you are feeling well. An overactive thyroid makes life really difficult. Hopefully your recovery will continue and you will be back to full health before you know it.

I was diagnosed with Graves Disease in early 2004 and was put on medication. I had a dream run through to remission, only needing to be on medication for 11 months. My thyroid levels have been constant for the past two years.

I didn't know anything about Celiac Disease or Gluten Intolerance until my cousin told me about how it effected her. It was like an awakening - what she described was exactly how I had been feeling for a couple of years. I started to dable in eating gluten free in September 2004. I say dable because I would do it for a few months, feel really great and go back to the gluten diet only to get sick again. Anyway the long and short of it is that for the past twelve months I have been totally gluten free and have finally got back the stamina that I lost through a combination of Graves Disease and Gluten Intolerance.

I know there is a lot of debate about whether or not a gluten-free diet can improve thyroid disease , but I because I have stayed in remission (Graves Disease) for two years I am a believer.

Jolanta Newbie
Jolanta
Posted
  • Author

I am relieved to hear that there is some hope out there. I have been having so many issues that my life is just so crazy! I have a pretty stressful job and have been dealing with anxiety on top of all this. I was NOT able to drive my car for over a 2 years. My husband would drive me everywhere. Being diagnosed with something was a relief that this was not all in my head! It was real! and stopping gluten made such a difference.

I wish the best for you. Sounds like we are all finding the right path!!!!!!

Jolanta

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

When I was hyperthyroid I was wired all the time and had a hair-trigger temper. My anxiety levels were astronomical. It was like running on adrenoline constantly.

Well, anyway, hope you have the thyroid thing beat!

georgie Enthusiast
georgie
Posted

Jolanta, I have Thyroid and Celiac. ( think its celiac). Some Drs don't have a clue re Hashis. With Hashis you alternate between hyper and hypo as your thyoid dies. You need Armour meds to suppress the Antibodies attacks.Synthetics don't work very well. My guess is that you have Hashis as that goes with Celiac a lot. I haven't had all the tests for Celiac. My Dr thought it wasn't necessary for me. But read this site to learn about Thyroid www.stopthyroidmadness.com

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,608
    • Most Online (within 30 mins)
      7,748
    lorrasmama
    Newest Member
    lorrasmama
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.