Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Infertility


Natlay

Recommended Posts

Natlay Apprentice

Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Natlay, it is quite common for people with celiac disease to have fertility issues, including not getting their period. Hopefully, once you recover and gain some weight, things will normalize. But it can't hurt to mention it to your doctor.

sillyyak Enthusiast

I also have not gotten my periods in awhile and only get a withdrawl bleed on the pill. They just diagnosed me with premature ovarian failure, so you might want to check into if you have that.

IrishKelly Contributor
Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?

Yep, i started to become very irregular (like i would go anywhere from 2-5 months without getting it) around the age of 21. When my husband and i wanted to plan our second child it took us almost a year to conceive her...but i have recently found that this was all linked to my body being low in vitamins. I recently remembered that once i started to take womens multi-vitamins, two months later i got pregnant. The malabsortion included all the necessary things my body needed to function properly...it's amazing to me now to know that i was having conceiving issues because something as simple as a lack of vitamins...i hope this helps ;)

powderprincess Rookie

I am wondering whats up with my cycle as well. I wish you good luck and good health and hope you figure out what is going on.

I have been gluten-free since May and off the pill since Aug. My periods are really far apart and I am taking vitimins. I don't think I am technically underweight but have lost a little, only because I don't eat as many cupcakes and cookies (I think that's why anyway). I have been feeling good, but the weird cycle is questionable, I'm thinking unless when I pee on stick tomorrow there's a plus sign, I should probably go to a doctor and ask what the deal is.

Michi8 Contributor
I am wondering whats up with my cycle as well. I wish you good luck and good health and hope you figure out what is going on.

I have been gluten-free since May and off the pill since Aug. My periods are really far apart and I am taking vitimins. I don't think I am technically underweight but have lost a little, only because I don't eat as many cupcakes and cookies (I think that's why anyway). I have been feeling good, but the weird cycle is questionable, I'm thinking unless when I pee on stick tomorrow there's a plus sign, I should probably go to a doctor and ask what the deal is.

Have you ever considered trying FAM? (Check out the book "Taking Charge of Your Fertility" by Toni Weschler.) Charting your basal temp and other signs/symptoms during your cycle can give you information on what is going on, and provides your doctor with some detailed info for easier diagnosis & treatment.

Michelle

  • 2 weeks later...
NicoleAJ Enthusiast

I had irregular periods before diagnosis, but it went in the other direction. I'd have my period very heavy for two weeks straight, and then I'd get two weeks off before it came back in full force for another 2 weeks. My PMS symptoms were always severe, and I'd often have to stay home because even maximum absorbency tampons and pads weren't enough to slow it down enough for me to stand up for more than a few minutes at a time. At 15, the doctors needed to put me on the pill for hormone control (I was far from needing it for prophylactic purposes). After diagnosis though (when I was 24), I started getting normal periods after only a few months. It's nice to be normal now, but the PMS is still a killer if I don't use medicine. I have no idea what caused this, but I'm glad that it's back on track because I spent so much time anemic in the past.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



georgie Enthusiast

Infertility can be caused by low Thyroid too - so you may want to check that out with your Dr. Make sure you get Antibodies tested. Hashimotos Thyroid is an autoimmune disease like Celiac and often they co exist.

abc Rookie
Has anyone else had problems with not getting a period for a very long time? I have not had one (except for when I was on the pill for a while) in quite a while. I know I'm at a low weight right now and that could be part of the problem, but I don't get it even after gaining some weight. I don't know if I ever want to have kids but I would at least like to have the option. Is this something that is common with celiac disease or should I be more worried and see the doctor about it?

I am now 35 with 2 kiddos, but had a very very irregular period for most of my youth (I would go months (read 10-12) without one. I was regular when I was on the pill too - but as soon as I went off it, I never got my period. We tried off and on for 2 years for a baby. I did have big issues with infertility with my first daughter, but with a lot of assistance of fertility drugs, was able to get pregnant finally. That was about 4 years ago. When I finally weaned her, I became very regular - and was able to get pregnant with my son rather quickly. I did use TOni WExler's book (someone else in this thread recommended it). I am not a confirmed celiac, but do think gluten intolerance had something to do with it...the female body is incredibly intuitive and very sensitive to what it perceives as inadequate environments for a fetus. Gaining weight might help you, but don't necessairily expect it to...you might want to see a physician to have them help you bring down your period (with progesterone) and if that doesn't work, they will probably check your thyroid, check you for premature menopause - all the fun stuff. Its best to know...before you get too far along. Also, remember that periods are there for a reason - it is important to shed the lining every month - if you are not, it can build up and a d&c might be in order to clean it out (that happened to me as well). SO, I guess I would recommend going to a doc - just to be sure all is okay. Good luck!

elaine33 Apprentice

I had infertility issues and irregular periods my whole life. I had two late pregnancy losses and saw a reproductive endocrinologist, who diagnosed me with polycystic ovarian syndrome because of the appearance of a lot of small pearl-like cysts on my ovaries. His information was so much more helpful and accurate than my OB's, so I would recommend a reproductive endo very much.

Here is a site about PCOS - www.soulcysters.com

  • 2 weeks later...
Nova-Gryphon Newbie

Fertility issues and irregular periods are how I ended up self diagnosing. I had been irregular all my life and I had to use fertility drugs to get pregnant with my first daughter. After giving up wheat I was able to concieve normally with my second daughter. Still not 100% regular, but by charting my temperature I was able to concieve in 3 months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.