Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Idea What's Going On Anymore

Chrisser

By Chrisser
in Coping with Celiac Disease

Recommended Posts

Chrisser Explorer
Chrisser
Posted

OK, my body has gone absolutely haywire since going gluten-free. Things sort of leveled out for a little bit after several weeks of being on the diet. I was still kind of tired and constantly eating, but at least I was getting into somewhat of a regime and my blood sugar levels had leveled out a bit. But all of a sudden, the last few weeks, I'm a mess. My blood sugar will not get high enough. Yesterday I ate 10 meals. 10 MEALS. I was eating like every hour and a half. And after every meal my blood sugar would drop into the 70s. Late last night it dropped into the 60s. The last week or two my blood sugar hasn't gone above the 80s after a meal. And obviously with low blood sugar comes low energy levels. I've been keeping a food diary. It's like eating doesn't really make a difference. I hate it now. I hate food. I'm so tired of eating. I'm held captive by food. I had to come back to NY to live with my mother so I could try to get back on my feet and get this all figured out. I had seem my PCP and endocrinologist in Dallas, and no one had any answers. Everyone keeps telling me my blood sugar levels are normal. This is ridiculous. I saw an internal medicine dr here in NY, and I'm waiting on the bloodwork results from her, but I have to wait until the 23rd to see an endo to get anything more extensive done.

Several weeks ago I had not slept for 4 days straight, I had a horrible throat infection, and I ended up in the ER getting fluids and pain medication and antibiotics for my throat. It seems like after that everything went haywire. But it just keeps getting worse, and I don't know why. It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

Ugh. Anyone have any similar experiences?? Or any clues as to what in the world may be going on??

I"m so tired of fighting this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

This stood out to me because I suffer adrenal fatigue. Blood sugar is tied to adrenals, so it could be part of your problem. Google it and see.

Shalia Apprentice
Shalia
Posted

I'd suggest seeing your endo about adrenal failure. I have a good friend who also couldn't get her blood sugar at anywhere near a decent level for quite a while until she got her adrenals taken care of.

It sucks, because now she needs to be prepped with more shots, but it'll save her life. The last thing you'd want is to find out you actually have adrenal failure when you need them to work.

Good luck to you.

CarlaB Enthusiast
CarlaB
Posted

Remember, when they check your adrenals, you may not necessarily be all the way to failure, and if you're not, then their tests won't show a problem. It would be like catching celiac before it actually damages your intestine. Most docs won't diagnose adrenal fatigue in much the same way that they don't diagnose celiac until your intestines are damaged.

jesscarmel Enthusiast
jesscarmel
Posted
OK, my body has gone absolutely haywire since going gluten-free. Things sort of leveled out for a little bit after several weeks of being on the diet. I was still kind of tired and constantly eating, but at least I was getting into somewhat of a regime and my blood sugar levels had leveled out a bit. But all of a sudden, the last few weeks, I'm a mess. My blood sugar will not get high enough. Yesterday I ate 10 meals. 10 MEALS. I was eating like every hour and a half. And after every meal my blood sugar would drop into the 70s. Late last night it dropped into the 60s. The last week or two my blood sugar hasn't gone above the 80s after a meal. And obviously with low blood sugar comes low energy levels. I've been keeping a food diary. It's like eating doesn't really make a difference. I hate it now. I hate food. I'm so tired of eating. I'm held captive by food. I had to come back to NY to live with my mother so I could try to get back on my feet and get this all figured out. I had seem my PCP and endocrinologist in Dallas, and no one had any answers. Everyone keeps telling me my blood sugar levels are normal. This is ridiculous. I saw an internal medicine dr here in NY, and I'm waiting on the bloodwork results from her, but I have to wait until the 23rd to see an endo to get anything more extensive done.

Several weeks ago I had not slept for 4 days straight, I had a horrible throat infection, and I ended up in the ER getting fluids and pain medication and antibiotics for my throat. It seems like after that everything went haywire. But it just keeps getting worse, and I don't know why. It's turned into a vicious circle...the more stressed out I get, the worse it gets...the worse it gets, the more stressed out I get. I've been practically living on Xanax, which I normally don't take.

Ugh. Anyone have any similar experiences?? Or any clues as to what in the world may be going on??

I"m so tired of fighting this.

I'm sorry i have no good advice or insight into whats happening to you but i really hope you feel better soon. i will keep you in my thoughts. its so awful to feel so sick and not know whats causing it. i really hope you feel good soon!!!

Jess

oceangirl Collaborator
oceangirl
Posted
I'm sorry i have no good advice or insight into whats happening to you but i really hope you feel better soon. i will keep you in my thoughts. its so awful to feel so sick and not know whats causing it. i really hope you feel good soon!!!

Jess

I would like to echo what Jess said. I have to say, after doing much better for awhile, I have not been doing very well since a nasty throat infection for which I did 3 ROUNDS of antibiotics in August and which has recurred 4 times! I hope you get to the bottom of this and start to feel better soon!

lisa

kbtoyssni Contributor
kbtoyssni
Posted

I don't have any suggestions for you, but I hope you find out the root of your problem and start feeling better soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


daffadilly Apprentice
daffadilly
Posted

Are you eating dairy? soy? eggs? corn? Those are the other common problems.

Chrisser Explorer
Chrisser
Posted
  • Author
Are you eating dairy? soy? eggs? corn? Those are the other common problems.

I haven't been eating corn. I have soy in whatever products it may be in. But I don't see how any of those would contribute to low blood sugars, especially if I'm eating 6-8 meals a day.

ilovechocolate Explorer
ilovechocolate
Posted

my thoughts and prayers are with you, i'm so sorry that you arent finding any answers.

HANG IN THERE!!! hey it finally got cooler here in dallas! we are in the low 70's! its a total miracle:) let me know if i can do anything for ya :rolleyes:

emily

lindalee Enthusiast
lindalee
Posted

Chrisser, when I first went on the diet , some things got worse and I think it had a lot to do with getting rid of toxins and fungus. I had a lot of sinus issues (used sinus cleanser and cleared that up so it didn't get to the throat).

I ate all the time also. I think that had to do with malabsorption.

Never checked the sugar levels but I do know it took a while for my energy levels to go up. I figured I had been eating the gluten so long it would just take a while and needed rest and a healing diet.

Sleep was also a problem and I started melatonin so I could sleep (body cannot heal without sleep).

I had been on antibotics previously for a dental issue which I believe put me in a disbiosis state in the gut. I started eating lots more yogurt (per SCD) to kill the bad bacteria. This is a long process and any sugar,etc. can contribute to these nasty bacterias.

All the best to you and hope you get some answers and let us know. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.