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Recommend A Doctor In You State


Guest celiacbuzzroom

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macocha Contributor

tacoma, wa:

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part of mary bridge children's health center. awesome doc. after going to another doc here for my daughter who is dealing with fructose malabsorption, I switched to him and got way more answers and way more proactive care.

My son will be going to him to finish the confirmation of celiac disease. just a great doc!

  • 2 weeks later...

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  • Replies 113
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Dannyfor zsuzy Newbie

Dr. Wataru Tamura in Oro Valley, Arizona. He's part of Foothills Gatroenterology.

He's a bit quirky, but seems nice, thorough, and extremely knowledgable about celiac disease. I went to see him after my first GI doc. said, essentially, 'you have celiac. Here's a nutritionist to tell you what to eat. bye.'

Dr. Tamura, on the other hand, started immediately talking about the fact that people with celiac disease can have food intolerances, vitamin deficiences, allergies, and other issues, so we should be checking me out for these right away to get me as healthy as possible.

Considering that I - who have never had a known allergic reaction to food before - had an anaphylactic reaction to 'something' the same day I went in for blood tests for allergies, I'm very glad I'm with Dr. Tamura now and not my first doctor!

Does this Doctor work with kids? My daughter is 10 years old and was diagnosed by Dr. Hasan, But I'm not really satisfied with him.

T.H.

  • 3 weeks later...
Kathy59 Rookie

No help here in North Carolina...still trying to seek a DR. who cares enough to do some research. <_<

Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

farmwife67 Explorer

I secong this one! She also now practices in Marlette, Michigan a day a week, not sure which day.

She is good with celiac because her whole family has it. However, she doesn't use enterolab for testing and she had my boys tested and they came back negative and going with symptoms I am sure they have at least gluten sensitivity. I have active gluten sensitivity and it runs rampant in my husbands family. They also have eosinophilic esphogitis. But, I think if I have it done she would accept it as a diagnosis.

Chef Oonagh Rookie

Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

HI, our adult son diagnosed a year ago (silent symptoms) recently moved to Pittsburgh PA. Who did you see as a doctor when you lived there. Pittsburgh Celiacs don't seem to say much. I phoned UPMC and girl tried to put me onto asthma and allergy doctors. Then I asked for GI and she said digestive disorders drs, gave me some names, phoned a week ago and no replies. So wouldn't bother going to them anyway. he is very good about following gluten-free diet and can cook, but he still needs to see someone to see healing, any deficiencies, nutrition etc. We live in NH so it is difficult. Plus can you recommend any restaurants that you know genuinely do gluten-free. gluten-free registry lists some supposedly gluten-free places, but when you check menus and comments, they don't seem at all consistent. thanks.

wjp Newbie

Not sure where you live in NC, but I was finally helped at Highland Neurology Center, 3645 Cape Center Dr., Fayetteville, NC..Neurologist there has helped me immensely! The phone number is 910-483-9200

Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

mamaw Community Regular

Ohio

For you people in Ohio --- you have several gluten-free groups available to you.. Childrens hospital of Columbus has great resourses for gluten-free. Mary Kay Sharrett is the gluten-free dietician & she can put you on to doctors who understand celiac & gluten intolerance.

The GIG (gluten intolerance group) has a branch in Canton... I think there may be a CSA group as well....

hth

mamaw


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mamaw Community Regular

Pittsburgh Pa

Three Rivers Endo, Moon Twp 412-262-1000 Dr Ernest Stanley

Allegheny General Hospital has a group in the Wexford area- beside Outback Restaurant

Dr Colatrella & Dr Gloriosio- south of Pittsburgh

hth

blessings

mamaw

GFLindsey Explorer

I really need a second opinion and made an appointment to meet with Dr. Colatrella in 2 weeks! Thanks for the recommendation -- I am really hoping he can help me!

LDJofDenver Apprentice

Dr. Leslie Stark, GI,

Kaiser Permanente, Denver CO

  • 1 month later...
Chef Oonagh Rookie

Hi,

I'm new to the forum. I am hoping that someone can help me. I have recently decided to move to the northwest part of ohio. I moved from Pittsburgh, Pa. I can not drive the 6 hours to get to my doc back home that was excellent with celiac. Is there any chance that anyone knows of a doc that has some knowledge of celiac in the toledo, fort wayne, lima area? I would appreciate any information anyone has. I have tried so many doctors in this area and it seems that I know more than they do and I'm tired of having to tell them what is what and what to do rather than them knowing. :(

Thanks

Who did you see in Pittsburgh? Our son recently moved to Pittsburgh and we are trying to find a celiac dr. for him. University of Pittsburgh was useless.

Linkz Newbie

What about Michigan???

T.H. Community Regular

Have you checked out your local celiac group? That's how I ended up finally finding a celiac friendly doc where I am.

I had found a link for the group in your area here:

Open Original Shared Link

My children and I have all been diagnosed with celiacs and some with gluten intolerances within the past 3 years. I am looking for a good doctor in the South Jersey area or Philadelphia who understand the disease and can help us.

Kathy59 Rookie

Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?

Just saw this..sorry...I do not know if there are any groups in fville area

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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