Help

[krispysky]

My first post here.

I'm going crazy. My doctor diagnosed me with simply "carbohydrate intolerance" after thinking I might have diabetes. All the diabetes tests were negative.

My major symptom is EXTREME lethargy immediately following any kind of carbohydrate. I simply cannot eat most foods because within minutes I am dizzy or so sleepy I have to lay down.

Does anyone have this symptom? I've read so much on carb intol and celiac but nothing about the instant lethargy I get.

Is this bad enough that asking for a test for Celiac disease doesn't make me insane? I am trying very hard not to become a hypochondriac but the lack of choices in food is driving me up the wall. I am also lactose intolerant and get headaches from anything with nitrates or high amounts of sodium.

Any advice is appreciated. I don't want this disease but I need to know what is wrong with me.

[Ursa Major]

Hi, and welcome to this board.

No, you're not insane at all, your symptoms could very well be due to celiac disease. Unfortunately, since you very likely don't eat much bread, or any carbs (other than the ones in vegetables), conventional testing would probably not be helpful, as you need to be consuming large amounts of the foods that damage you over a long period of time to test positive.

Your best bet would be Open Original Shared Link testing, as it is much more sensitive than conventional testing. Plus, it would show if you have the celiac disease or gluten intolerance genes.

And yes, foods high in carbs (all starches, not just grains) make me lethargic also. Check out the link in my signature on lectins, the information there might be of interest to you.

[Lisa]

Welcome to the Site:

#: Review the opening page on this site.

#2: Research past posts.

#3: Let us know what you have learned

#4: What can we help you about Celiac/Sprue Disease?

#5: How can we help?

[krispysky]

Thanks...I've been google-ing every combination of words I can think of to find information and searching this site as well. I just can't find anything that sounds like my symptoms.