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Sooo Exhausted

Anteau25

By Anteau25
in Related Issues & Disorders

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Anteau25 Apprentice
Anteau25
Posted

Over the past couple years I haven't been able to sleep through the night. I would wake up at least 2 times and sometimes every half hour each night. I was tired all the time, and it just got worse. The thing is that about 2 weeks after I started the gluten free diet I slept 9 hours straight through. Now I am sleeping the whole night through most nights. The problem is that I am still so tired. Last week I slept from 11pm to 11 am, and I was ready to go back to bed 2 hours after I woke up. I never feel refreshed and don't feel like I have much energy. Does anyone have any suggestions as to what is wrong? I am always commenting on how tired I am, so my family/ friends keep suggesting that maybe I'm depressed. Although I do have alot to be depressed about, I know I'm not. I am optimistic and positive. I know there is definately something wrong. Is there any bloodwork that I should ask my dr for? Any suggestions or info would be very much appreciated. Thanks.

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clairew Newbie
clairew
Posted

Hi im very new here and very newly diagnosed. I have anemia which is associated with celiac, and that makes you very exhausted along with paeleness of skin and a tendancy to be cold amonst other things. You could ask him to check your full blood count.

I hope things get better for you.

Takr Care Claire.

Canadian Karen Community Regular
Canadian Karen
Posted

I am in the same boat as you are......

Have you had your thyroid checked? Perhaps you are hypothyroid. Also, I am really looking into adrenal fatigue and adrenal exhaustion as the cause of my continued fatigue. There was a link posted on here about it and it was VERY interesting;

www.stopthethyroidmadness.com

Another possibility is anemia, as mentioned. I also suffer from chronic anemia.

Karen

CarlaB Enthusiast
CarlaB
Posted

I suffer anemia, low thyroid and adrenal fatigue. The thyroid and adrenal fatigue are related. If your cbc/iron blood work comes out normal, google adrenal fatigue -- it's very common for those who have been under the stress of being ill.

dlp252 Apprentice
dlp252
Posted

I'm also exploring the adrenal fatigue thing...I too don't ever feel rested even when I DO sleep...this week haven't been able to sleep at all which is just making it worse. Fortunately I have a new group of doctors who really want to get to the bottom of things (they DO think it may be adrenal though).

Adelle Enthusiast
Adelle
Posted

I have sleep apnea, and I would suggest getting tested for that and other sleep problems. I would say get all of the blood tests (anemia, thyroid etc) u can first, but if u don't find anything, it could be worth looking into. The testing sux, but if u have a sleep disorder, there is a ton they can do to help!

Nantzie Collaborator
Nantzie
Posted

There were several surprising things that I never would have thought might be all connected to each other. For me, one of the things that went away was my insomnia. I had insomnia for years. Mine was the not being able to fall asleep variety rather than the waking up after falling asleep. I literally remember being four years old and crying at night because I was so tired but I couldn't fall asleep. As I got older, I chose jobs where I wouldn't have to work in the mornings. Because once I did fall asleep I could easily sleep 12 hours straight and STILL wake up exhausted.

I went gluten-free after negative blood tests and negative biopsy. Now I just FALL asleep. I pretty much turn over, close my eyes and just fall asleep. And when I wake up in the morning (!!!) I'm actually awake with no thought as to how long I'm going to have to stay awake until I get a chance to take a nap. I also wake up on my own after about 8 hours.

If I get glutened, my brain just won't shut off and I experience the same type of insomnia that I had had since I could remember.

I hope you find some answers for your insomnia.

Nancy

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Anteau25 Apprentice
Anteau25
Posted
  • Author

Hey. Thanks for the replies. I do get my thyroid checked regularly because I'm a type1 diabetic. I will be seeing my endocrinologist on the 31st, so I'll be getting my usual bloodwork done. I will discuss anemia, adrenal fatigue, etc. with her. HOPEFULLY I will get some answers right away instead of another wild goose chase!

BRUMI1968 Collaborator
BRUMI1968
Posted

In Chinese medicine, different types of insomnia have diffferent causes: waking up in the night can be your liver. Just another viewpoint.

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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