Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different Foods... Different Symptoms

clhsc

By clhsc
in Food Intolerance & Leaky Gut

Recommended Posts

clhsc Apprentice
clhsc
Posted

Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have problems with dairy and sometimes soda.

Ursa Major Collaborator
Ursa Major
Posted

Hi, and welcome to this board. Yes, I do react quite differently to foods I am intolerant to. Which foods bother you? And what are your symptoms? If you tell us more, we will be able to hopefully help you better.

Budew Rookie
Budew
Posted

Welcome. I joined last Monday. I hope someone can give you pointers on the skin. My sister and my mom and I all have celiac and a variety of skin problems. Dermatologists can help but we usually got some type of cream. Cortisone, Meto creme, triamicinolone is working for me now. I have more than white bumps.

About food sensitivity. I am still unraveling my mystery. Read and post questions and you will learn a lot.

Before I was celiac I became vegetarian. 25 years ago.

I eliminated eggs, (except in bake goods and noodles) about 15 years ago.

I was diagnosed celiac 5 years ago. Stopped gluten. I got really sick for 2 years. I ended up not being able to keep anything down.

So, I figured out my stuff so far by elimination.

I began with white potato, margerine, salt, water. 3 months later I realized the iodine in the salt was a problem.

For 3 months I tried to eat a balanced gluten free vegetarian diet with out processed foods. I was still sick.

I eliminated dairy. I was still sick. I eliminated night shade vegetables. I was still sick. I eliminated salycilcates(wrong spelling). I am still sick. Adding enzymes, right now. I am also wondering about corn and soy.

Well welcome to a great group of folks who have a wealth of experience. Being a member for only one week has given me direction, hope, and the understanding that was so lacking. Thanks everyone!

Simply-V Newbie
Simply-V
Posted
Hi! I'm new here and don't know if this is the right place to post, but does anyone else notice that some foods and drinks bother you more than others? Certain foods will leave me cramping and hurting for days, but some foods just make me feel a little tired? Also, does anyone have some problems with small white bumps on their arms after being glutened? My doctor says it's due to a Vitamin A deficiancy. My mom and sister have the same problems but they aren't celiacs. Any help would be greatly appreciated!

I'd hate to tell your doctor he's wrong about the bumps.. but we've been discussing this on Delphi Avoiding Corn and several of us get it as a symptom of getting into something we're allergic to.. aka allergic reaction, much like breaking out with acne can be because of allergies. My bumps only went away when I switched laundry soaps. They come back now and then if I get into something, but they go away as soon as my system is clear of the allergen.

And yes some of my food intolerances just make me a little tired, while others (usually my IgE allergies) will mess me up for days.

Budew Rookie
Budew
Posted

Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

clhsc Apprentice
clhsc
Posted
  • Author
Me too. I almost forgot that a bunch of the skin rashes cleared up when I eliminated soaps, lotions and cosmetics. The only thing I use now are baby oil, pantene/sauve shampoo a couple times a week, and dishwashing detergent.

I had 10 potato chips Sat. Sunday night I was covered with ???...mosquito bites? I have not been outside in over a week so it must be the potato.

Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
Last Tuesday, I got glutened... BAD! Being new to this I thought, "Oh Chicken and Rice soup, I can have that." Not so, I found out about 1 hour later. Since then I have been sick and broken out on my arms with those little bumps. I switched back to baby shampoo and body wash and the rash has cleared up significantly. However, I am still feeling a little sluggish. Also, is Malt Extract Powder (barley) bad? ... It sounds that way, but a friend brought some chocolate back from Switzerland and I am dying to try it.

Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

clhsc Apprentice
clhsc
Posted
  • Author
Yes, malt extract obviously has gluten, and you better give it away before you give into the temptation!

I guess you live and learn! Thanks for saving me from a tremendous amount of pain.

I know it seems like I am asking tons of stupid questions (at least I feel I am), but my doctor told me to try the diet and didn't really give me any information. This site has been a life saver!

Budew Rookie
Budew
Posted

I am amazed everyone seems to get glutened and realize a reaction.

I don't know that I have been glutened by mistake since I as diagnosed.

Since being diagnosed I have felt worse, not better.

I don't vomit as much, and the skin seems to be slowly improving but on the flip side I now have headaches fevers, sluggishness, mindfog, memory loss, a mass in my stomach (no one seems to be alarmed about) and sometimes for no apparent reason I just hurt all over, lose my mind and lay down too limp to move. These episodes last 5 minutes to 15 hours.

I am hoping that I can really get on board taking enzymes. I realized last night that I was having trouble taking l-glutamine with .5 grams and my doctor wants me to take 40 grams. Any advice on how to get from 1 gm to 40 gms with the least amount of trouble?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,633
    • Most Online (within 30 mins)
      7,748
    Sandra Lene
    Newest Member
    Sandra Lene
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Buckwheat

      By Inkie · Posted

      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Frequent nausea after gluten-free diet

      By Wheatwacked · Posted

      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
    • Inkie
      Thee

      By Inkie · Posted

      I  notice a reaction to tea bags, possibly due to gluten or other substances. Is this recognizable?
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      The blood tests you had done are not the main ones. The two main ones are the "Total IGA" (to check for IGA deficiency) and the "TTG-IGA". Current guidelines for the "gluten challenge" when people have been gluten free for a significant time period are the daily consumption of at least10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the blood draw. That should give you some perspective.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.